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Soy Reactions!

Marz

By Marz
in Coping with Celiac Disease

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Marz Enthusiast
Marz
Posted

So the past two weeks I was struggling with typical mild glutening symptoms. I was desperately trying to figure out what was causing it, what could possibly contain gluten... possibly the gluten free flours I was using... or some nuts that got CC'd?

Now I'm starting to wonder, after reading that soy can cause similar symptoms. After my "gluten challenge" this week, I realised my initial symptoms are identical to that of my "soy challenge" - stomach pain, loss of energy, nausea. I think I may be sensitive to soy as well...

And this whole week I've been drinking a soy/corn mix for a top-up when I'm hungry, think that's my connection right there.

Anyway, thought I'd share that revelation, for what it's worth. After being told by my own nutritionist that "lots of celiacs are sensitive to soy as well", I'm surprised it took until now for my to realise this.

So any research done on soy intolerance? Is it the same mechanism/as damaging as gluten?

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sandsurfgirl Collaborator
sandsurfgirl
Posted

Soy gives me writhing stabbing pain in my gut and my nose gets all stuffy and swollen. I was drinking soymilk daily before I got diagnosed with celiac. Cut soy at the recommendation of this board and then when I challenged it YIKES! The pain was so bad I writhed in bed all night long.

Accidentally ate soy flour in some gluten free cookies and thought I was going to pass out from the pain.

bridgetm Enthusiast
bridgetm
Posted

I got that same stabbing pain. It started out mild, but the more I ate the worse it got. One time I felt like there was a twisting knife just above my waist line.

I cut out all those gluten-free snacks that are loaded with soybeans and by-products like oil, lecithin, etc and noticed a vast improvement. Now I do okay with small amounts like Tostito's tortilla chips which are made with soybean oil (my general rule of thumb is that if there are more than 3 "and/or's" listed under vegetable oil in the ingredients I can probably have a bite or two. It is best to just avoid it all though.

Some day I will try adding soy back to my diet (some research says soy lecithin should not cause a reaction in those who are soy-sensitive; I disagree now, but I may test that theory in the next few months) but for now I'm enjoying not having a knife in my gut. Just keep reading those labels.

NorthernElf Enthusiast
NorthernElf
Posted

Wow, I've been experiencing the same thing. I've noticed that when I go away, no matter how careful I am, I seem to get sick...and I bring a lot of my own food. Just got back from a one week camping trip where I switched my usual breakie for cereal & Silk soy milk and had stomach aches (D, etc.) all morning until I stopped eating that breakie the last couple of days. Before I left I had made a couple of stir fries with Bragg's Aminos (soy based) and had headaches and the like. *Ding* a light went off - I'm avoiding soy at the moment, just bought some Almond Breeze (haven't tried it yet).

Anyway, I'll see how it goes and maybe try a little soy back in later & see what happens. Darn it !!!!!

NorthernElf Enthusiast
NorthernElf
Posted

Wow, I've been experiencing the same thing. I've noticed that when I go away, no matter how careful I am, I seem to get sick...and I bring a lot of my own food. Just got back from a one week camping trip where I switched my usual breakie for cereal & Silk soy milk and had stomach aches (D, etc.) all morning until I stopped eating that breakie the last couple of days. Before I left I had made a couple of stir fries with Bragg's Aminos (soy based) and had headaches and the like. *Ding* a light went off - I'm avoiding soy at the moment, just bought some Almond Breeze (haven't tried it yet).

Anyway, I'll see how it goes and maybe try a little soy back in later & see what happens. Darn it !!!!!

julandjo Explorer
julandjo
Posted

(some research says soy lecithin should not cause a reaction in those who are soy-sensitive; I disagree now, but I may test that theory in the next few months)

I too thought I was fine with soy lecithin. I'm down to so few safe foods and yet was still having constant chest pain (a cardiologist ruled out any cardiac problems). I switched my omega supplement, which contained soy lecithin in the capsule shell, and voila! the chest pain is *completely* gone. I tried a small piece of dark chocolate a few days ago. Soy lecithin was the only questionable ingredient, and whammo - instant chest pain. This blows me away! So much for soy lecithin being safe, at least for me!

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