Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Increased Sensitivity After Going Gluten Free?


williamsburg000

Recommended Posts

williamsburg000 Rookie

I just wanted to ask if anyone feels that the longer they're gluten free, the more sensitive they seem to become?

For the past few months I've mostly only eaten whole foods, chicken, fish, veggies, fruit, eggs and lactsose free cheese/milk - the only processed food I've eaten are a brand of sausages that adhere to the 20 ppm codex.

I seemed to be doing well and thought I'd finally got a good handle on how to live with this condition and now you guessed it, I'm back to square one with all the old symptoms again :angry:

I have to admit I have eaten the sausages a couple of times over the course of each week, out of hunger really rather than appetite - so maybe it's a cumulative effect?

Does this mean only eating anything that's entirely whole from now on? There just doesn't seem to be much left that I can eat without worrying.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



curiousgirl Contributor

I just wanted to ask if anyone feels that the longer they're gluten free, the more sensitive they seem to become?

For the past few months I've mostly only eaten whole foods, chicken, fish, veggies, fruit, eggs and lactsose free cheese/milk - the only processed food I've eaten are a brand of sausages that adhere to the 20 ppm codex.

I seemed to be doing well and thought I'd finally got a good handle on how to live with this condition and now you guessed it, I'm back to square one with all the old symptoms again :angry:

I have to admit I have eaten the sausages a couple of times over the course of each week, out of hunger really rather than appetite - so maybe it's a cumulative effect?

Does this mean only eating anything that's entirely whole from now on? There just doesn't seem to be much left that I can eat without worrying.

I'm noticing that other issues are showing their ugly little heads. I'm looking at the blood type diet, too. I've noticed that the foods my type should stay away from, have caused problems...more allergy-type problems though...like my tongue burning. After eating at Cafe Gratitude (a gluten-free restaurant in San Francisco (fantastic btw!) other familiar allergy symptoms have popped up (never knew why before kuz nothing had gluten in it)...like my tongue burning. This was after finding out my blood type. I took the menu home and read ingredients and there are 2 things in the meal that my type should avoid. Anyway, it's something to look at.

tmbarke Apprentice

I just wanted to ask if anyone feels that the longer they're gluten free, the more sensitive they seem to become?

For the past few months I've mostly only eaten whole foods, chicken, fish, veggies, fruit, eggs and lactsose free cheese/milk - the only processed food I've eaten are a brand of sausages that adhere to the 20 ppm codex.

I seemed to be doing well and thought I'd finally got a good handle on how to live with this condition and now you guessed it, I'm back to square one with all the old symptoms again mad.gif

I have to admit I have eaten the sausages a couple of times over the course of each week, out of hunger really rather than appetite - so maybe it's a cumulative effect?

Does this mean only eating anything that's entirely whole from now on? There just doesn't seem to be much left that I can eat without worrying.

I get reactions from sausage - fillers and possible seasoning issues.

I make my own - try this recipe.....it's easy and delicious - I use ground pork or ground turkey - either way - it's gluten-free!!!!!!!

Homemade Italian Turkey Sausage 1 lb. lean ground turkey2 tsps. garlic powder1 1/4 tsps. fennel seed, crushed1 1/4 tsps. sugar1 tsp. salt1 tsp. dried oregano1/2 tsp. pepper Combine everything. Cover and refrigerate for at least 8 hours or overnight. Shape into patties or crumble and cook until no longer pink.

I just gave up on trusting processed meats

dilettantesteph Collaborator

I got more sensitive. First I felt great just cutting out bread and cheerios. Then more and more. Now stuff tested to 5 ppm still gets me. I do mainly whole foods. Good luck.

JBaby Enthusiast

Yes this is common. For me, I am now sensitive to High fructose corn syrup and red dye #40. Dairy is a work in progress.

Skylark Collaborator

I just wanted to ask if anyone feels that the longer they're gluten free, the more sensitive they seem to become?

I joined this board to ask exactly that same question. I have become quite a bit more sensitive on the diet. I used to be able to eat french fries and not worry about the fryer or go to places like Taco Bell and not worry about CC. Suddenly I started reacting to very small amounts of gluten and now I have to be very strict. 20 ppm foods occasionally get me if I eat a lot.

srall Contributor

Absolutely. And it's a relief to hear it's common. As of right now I have moved to a completely whole foods diet. When I first started this diet I felt great cutting out dairy and wheat. Now I feel like one slip will send me on a downward spiral for days. I avoid wheat (obviously), dairy, corn, soy, wine, and coffee and am now wondering about eggs. It is frustrating.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

I've been trying to see if eggs are causing my morning sneezing. I cut them out for two weeks and it seemed to get better. Then ate them again and it seemed to get worse. Now I am cutting them out again. There are so many other possible triggers, it is hard to tell.

Tazer Newbie

I'm not sure if this is exactly what you meant, but once my girlfriend stopped eating gluten she now has a severe reaction if she eats it. She's been gluten-free for about 8 months, and if she ingests a bite of gluten she will literally be in bed for 2 weeks, the first week of which she is in absolute agony. Unfortunately, she has not seen any benefits from going gluten-free - the naturopath said it would cure her chronic joint pain. I'm reading that it can even take a year or two for the body to heal from gluten, but she has literally not improved one iota - very disheartening.

anabananakins Explorer

I don't think I'm getting progressively more sensitive, but I'm definately very sensitive now. I can't believe I used to eat that stuff all the time. I'm glad though because the stomach ache and D stops me from ever chancing it. I came really close to getting noodles from the chinese take away the other night but knowing the cross contamination would destroy was incentive enough to get me to walk home and make a proper dinner.

srall Contributor

I'm not sure if this is exactly what you meant, but once my girlfriend stopped eating gluten she now has a severe reaction if she eats it. She's been gluten-free for about 8 months, and if she ingests a bite of gluten she will literally be in bed for 2 weeks, the first week of which she is in absolute agony. Unfortunately, she has not seen any benefits from going gluten-free - the naturopath said it would cure her chronic joint pain. I'm reading that it can even take a year or two for the body to heal from gluten, but she has literally not improved one iota - very disheartening.

I'm sorry your girlfriend is struggling. This reaction, including the joint pain sounds so similar to my symptoms. I'm only 5 months in. I have good days and bad days. Her intestines may have a lot more damage than mine, because I'm like the others with good days and bad days but definitely major improvement. I guess I would just reiterate whole foods, no processed. And coffee and wine also cause flare ups. I think that joint pain is just awful to deal with. I really feel for her.

williamsburg000 Rookie

Sorry for taking so long to thank everyone for their replies, my mind's only just started to get back into gear after the glutening.

Well, I guess it looks like 100% whole foods from now on then. Deep down I think I knew what may have been happening with the processed 'gluten free' stuff, but after giving up quite a few things I enjoyed eating, it was just nice to have found something I thought I could eat w/o having problems.

I'll give the sausage recipe a go TMBarke, thank-you. At least I'll know for sure that it will only contain those products I've included, no more taking a gamble even on those processed foods I thought I could trust, or at least perhaps as a treat once in a while.

sandsurfgirl Collaborator

Sorry for taking so long to thank everyone for their replies, my mind's only just started to get back into gear after the glutening.

Well, I guess it looks like 100% whole foods from now on then. Deep down I think I knew what may have been happening with the processed 'gluten free' stuff, but after giving up quite a few things I enjoyed eating, it was just nice to have found something I thought I could eat w/o having problems.

I'll give the sausage recipe a go TMBarke, thank-you. At least I'll know for sure that it will only contain those products I've included, no more taking a gamble even on those processed foods I thought I could trust, or at least perhaps as a treat once in a while.

How many months gluten free? It was 6 months for me before I felt good and could handle complex foods. You might just need more healing time. It's trial and error. I could not eat tapioca starch for the longest time. Now it's fine.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,894
    • Most Online (within 30 mins)
      7,748

    Lostcha
    Newest Member
    Lostcha
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.