Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Any Of You Wear A Med Bracelet?

Aphreal

By Aphreal
in Coping with Celiac Disease

Recommended Posts

Aphreal Contributor
Aphreal
Posted

I was just wondering if any of you wear a medical alert bracelet for your food allergies.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I have one on my car key chain that lists celiac and another that states that I have a penicillin allergy.

Aphreal Contributor
Aphreal
Posted
  • Author

I was wondering how important it is that someone knows this allergy if your unconscience.

kareng Grand Master
kareng
Posted

If your unconcious, they aren't going to be giving you medications or food by mouth. If you are concious but not all there, I guess that could be a problem. They don't ususally give you food or oral meds in the first few hours in an ER. Hopefully, by then , your family would be there. I guess if your family doesn't believe about gluten problems, and you're mentally incompetent but concious, they could feed you or give you medication with gluten. My understanding is that most hospitals don't do well with gluten-free food so it doesn't matter what you tell them.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

I don't have one, but I have been debating on getting one since I saw it mentioned here. The way I see it, it's not vital unless you have a drug allergy (like penicillin) or unless you are single and frequently travel alone or something. If you are unconscious they won't give you food right away, maybe later via feeding tube in the hospital, but not right away. I know my husband would look out for me and tell them that I need to be gluten free in that case. I'm still up in the air about it though. It wouldn't hurt to have it on a bracelet or in writing somewhere, but I also wonder if paramedics would know what celiac disease or gluten intolerant means, since it seems many doctors are clueless.

scarlett77 Apprentice
scarlett77
Posted

As an adult, I probably would not get one for myself unless I had actual severe allergies. But I do plan on getting one for my son in the near future so that it can alert adults that he comes into contact with... whether at school or at a friend's house. I'm hoping that having the medical bracelet or necklace may give him more credibility with adults when he says that he can't eat certain things.

Aphreal Contributor
Aphreal
Posted
  • Author

Thank you for your responses. I was just curious :) I am allergic furanol but when I tell medical personal that, they have never heard of it! I don't think it's prescribed anymore.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


K8ling Enthusiast
K8ling
Posted

I wear one, I am married but a military wife so I am alone a lot. Also, I have a toddler who is usually with me. If something happened to me, people would need to know 1) I have asthma, 2) I have a PCN allergy and 3)I have celiac disease. My husband feels MUCH better with me wearing a bracelet.

Skylark Collaborator
Skylark
Posted

I wear one for a naproxen allergy and it has celiac on the back. I wouldn't worry about it for just celiac I don't think.

  • 2 weeks later...
Travisevian Newbie
Travisevian
Posted

I wear one for a naproxen allergy and it has celiac on the back. I wouldn't worry about it for just celiac I don't think.

Actually, I think it's a very good idea. When a relative of mine who has celiac disease had to have surgery and was in recovery, a nurse offered her saltine crackers. It would've been easy for someone under sedation to have eaten a food containing gluten. Had I not been there to inform the nurse, she would've given gluten to a patient with celiac disease. Sometimes, I think it's better for people to refer to their celiac disease as an allergy because doctors and nurses seem to take the word "allergy" more seriously.

Luvbeingamommy Contributor
Luvbeingamommy
Posted

As an adult, I probably would not get one for myself unless I had actual severe allergies. But I do plan on getting one for my son in the near future so that it can alert adults that he comes into contact with... whether at school or at a friend's house. I'm hoping that having the medical bracelet or necklace may give him more credibility with adults when he says that he can't eat certain things.

Is your son Celiac?? My ds is only almost 3 now, but when he gets older and goes to preschool, etc I think this would be a good idea!

I don't have one, I pretty sure my family would be there asap and would fill them in. If I had a life threatening allergy then I would, but it can't be a bad idea.

  • 4 weeks later...
11475 Apprentice
11475
Posted

You could also possibly consider making, or having a card made up to keep in your wallet. Many people with communication difficulties keep these. It's not as obvious, but could still be found and useful to medical staff if the situation arose.

notme Experienced
notme
Posted

you know, at first i thought, 'nah, i don't need one.' but, recently, a whole lot of people are dabbling in this diet (because it is healthy, to lose weight, because it's the 'hip' diet, because of blah-blah) who won't really get sick from getting glutened. maybe i will get one so people REMEMBER that this is a medical condition. puh-leez, i am so underweight they should know i am not on a *diet* diet. my friend, Mr. Junk Food Eater, is even considering trying this 'gluten-free thing' *a little* - he's just gonna 'cut down'..... it's his way of taking me seriously???? maybe i will get a set of medical alert brass knuckles. ka-POW he can have a knuckle sandwich on gluten free bread hahahahaha!!! btw had udi's bread 1st time yesterday - IT'S DA BOMB!!!! :))))

K8ling Enthusiast
K8ling
Posted

UDIS FOR THE WIN!!!!! I love it!

bridgetm Enthusiast
bridgetm
Posted

I keep a MedicAlert tag on my key chain and a card in my wallet for asthma and medicine allergies. Just a few weeks ago I updated my MedAlert file so my food intolerances will show up if any EMT tries hard enough to check. If I were unconscious and they slipped me gluten, I would probably have bigger things to worry about than D and intestinal inflammation.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.