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Guess What Guess What!

Aphreal

By Aphreal
in Coping with Celiac Disease

Recommended Posts

Aphreal Contributor
Aphreal
Posted

I have not had a cramp, emergency potty trip or bout of D in 5 days!!!

gluten-free, carb and sugar light. 1 librax at night (can't take it 3x a day. It has valium in it and that just throws me for a loop), 1 probiotic in the morning.

When I mean carb light I mean really light. I am mostly back to whole foods, eggs, boarshead bacon, beans, lean meats, Lots of veggies, watermelon (other fruits kinds tear up my mouth). I have also been dairy light but not on purpose. Not sure if that means something.

I am just so happy that I have been able to go to the store without praying someone isn't in the bathroom!

Oh and I've lost 11 lbs in the past couple of months.

Oh I have been dxed with High blood pressure but on meds for that now too.

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Cheryl-C Enthusiast
Cheryl-C
Posted

That's great! It's good to hear you're feeling so good. Keep it up :)

Skylark Collaborator
Skylark
Posted

That's great news! So glad to hear you've found something that works.

kareng Grand Master
kareng
Posted

Yeah! :P

anabananakins Explorer
anabananakins
Posted

Yay! :D

mushroom Proficient
mushroom
Posted

So have you eliminated all grains? Potatoes? or just some? I would be interested in knowing. :)

Charlie's Girl Apprentice
Charlie's Girl
Posted

Isn't it heavenly not planning your day by access to bathrooms? I (and I am sure many others) am so happy for you.

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lucia Enthusiast
lucia
Posted

Hurray!!! Sounds like we're on a similar diet (although mine is technically SIBO) - basically whole foods, protein in the form of fish, chicken broth, or eggs, and lots of cooked veggies and fruits. It's working for me too!

Aphreal Contributor
Aphreal
Posted
  • Author

Mushroom- Not entirely. I will make like a banana bread and eat a piece (rice flour) once a week. I made pizza the other night and ate several pieces but that is the only grain carb I've had all week. I've given up all the waffles, pancakes, bread, crackers etc. I find I don't really miss them though.

Now things like potato, although carb, do not react in my body like grain carbs do. I eat a LOT of potato. Usually baked. One every other day maybe. I also eat carrots. I seem to have no problem from veggie carb, only grain carb. *shrug* Im not going to try to understand why lol. If it works, I'm stickin with it!

Aphreal Contributor
Aphreal
Posted
  • Author

Lucia, what is SIBO?

precious831 Contributor
precious831
Posted

That's great, I'm glad for you! I'm mostly grain-free(I'm getting there). I still eat white rice maybe once or twice a week. I use a lot of non-grain(buckwheat and quinoa are okay on the grain-free diet, they're not grains). I do feel better too.

missceliac2010 Apprentice
missceliac2010
Posted

Yay yay yay yay yay! Congats! I'm in a similar boat...been feeling great for over a month now! I'm trying to not let "pessimistic" Heather back into my brain, but it's still hard. My paranoia runs deep because my symptoms of glutening are so intense!

Good job again, and good job for staying vigilant! Mad props to you!

mushroom Proficient
mushroom
Posted

Lucia, what is SIBO?

Since Lucia is not around, it stands for Small Intestine Bacterial Overgrowth.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

I have not had a cramp, emergency potty trip or bout of D in 5 days!!!

gluten-free, carb and sugar light. 1 librax at night (can't take it 3x a day. It has valium in it and that just throws me for a loop), 1 probiotic in the morning.

When I mean carb light I mean really light. I am mostly back to whole foods, eggs, boarshead bacon, beans, lean meats, Lots of veggies, watermelon (other fruits kinds tear up my mouth). I have also been dairy light but not on purpose. Not sure if that means something.

I am just so happy that I have been able to go to the store without praying someone isn't in the bathroom!

Oh and I've lost 11 lbs in the past couple of months.

Oh I have been dxed with High blood pressure but on meds for that now too.

Hurray! It's great to find what works. It makes it so much easier to stick to it when you feel much better. :)

T.H. Community Regular
T.H.
Posted

Congrats on the gut getting happier!!!

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  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
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