Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Pee A Lot?

scuzy

Recommended Posts

scuzy Rookie
scuzy
Posted

I posted this on the pre-diagnoses but I might get more responses from the post-diagnoses section. :)

So as the description said I used to pee about every hour. I didn't drink a lot, but after measuring my input and output one day I found that I am normal, but I would always pee 3 oz, aside from when I woke up in the morning and it would be about 8 to 10 oz. The doctor told me that because my output was less then my input that there was nothing he could do, except maybe run some expensive tests, but I don't have health insurance. I have now been gluten free for over 2 months and I can now go between 2 to 4 hours without a trip to the bathroom. So has anyone else had a frequent urination problem, that has lessened or done away with the gluten free diet? Does anyone think it might be related to Celiac? Thanks :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


precious831 Contributor
precious831
Posted

I posted this on the pre-diagnoses but I might get more responses from the post-diagnoses section. :)

So as the description said I used to pee about every hour. I didn't drink a lot, but after measuring my input and output one day I found that I am normal, but I would always pee 3 oz, aside from when I woke up in the morning and it would be about 8 to 10 oz. The doctor told me that because my output was less then my input that there was nothing he could do, except maybe run some expensive tests, but I don't have health insurance. I have now been gluten free for over 2 months and I can now go between 2 to 4 hours without a trip to the bathroom. So has anyone else had a frequent urination problem, that has lessened or done away with the gluten free diet? Does anyone think it might be related to Celiac? Thanks :)

I have a condition called Interstitial cystitis, one of the symptoms is frequent urination(without a UTI). The symptoms to UTI are similar so you might want to get checked. My GI dr said that Interstitial cystitis(IC) and celiac (and fibromyalgia) go together. I have all of them.

So to answer your question, if you have IC like me, yes it's related to celiac disease.

My symptoms were much more severe(extreme bladder pain and back pain, etc) than yours and the tests does cost a lot. My symptoms got better after being gluten and dairy-free.

Anyway there's so much info about IC, let me know if you need help, I'll be happy to point you to the right direction. If you do have it, there's a lot of things you can do to help, for me I was on the alkaline diet and that helped. But most of all being gluten-free helped me tremendously with the IC.

anabananakins Explorer
anabananakins
Posted

I posted this on the pre-diagnoses but I might get more responses from the post-diagnoses section. :)

So as the description said I used to pee about every hour. I didn't drink a lot, but after measuring my input and output one day I found that I am normal, but I would always pee 3 oz, aside from when I woke up in the morning and it would be about 8 to 10 oz. The doctor told me that because my output was less then my input that there was nothing he could do, except maybe run some expensive tests, but I don't have health insurance. I have now been gluten free for over 2 months and I can now go between 2 to 4 hours without a trip to the bathroom. So has anyone else had a frequent urination problem, that has lessened or done away with the gluten free diet? Does anyone think it might be related to Celiac? Thanks :)

I think there is a connection between gluten consumption and thirst / peeing a lot. I used to be thirsty all the time. It was crazy. People at work tease me because when I went away for 3 weeks they barely had to change the water cooler bottles. I do not have diabetes - I've been tested a million times. I do have insulin resistance but my doctor said it was unrelated to my thirst since my blood sugar levels are still normal. No one has been able to explain it and it's been about 10 years of endless thirst and the back of my mind fear of being stuck somewhere with not enough water to drink (you would not have wanted to stuck with me if there were was water rationing!)

Anyway, I gave up gluten and I'm now thirsty like a regular person. I have to make sure I drink the 8 glasses, rather than trying to keep it below 4 litres a day.

MelindaLee Contributor
MelindaLee
Posted

I feel like I have just been the opposite. I have been gluten free for 2 weeks now and I feel like my output has increased. I can't say frequency is increased, but it seems like output has. Does this make any sense??? Could it be swelling resolving? I never thought I was swollen, but I have always had high inflammation levels (Sed rates and ANA) so doctors ruled out lupus and rhematoid arthritis. (I also chose to go off my anti-inflamatory meds as my joint pain has been gone since going gluten-free) :huh:

glutenfr3309 Rookie
glutenfr3309
Posted

I posted this on the pre-diagnoses but I might get more responses from the post-diagnoses section. :)

So as the description said I used to pee about every hour. I didn't drink a lot, but after measuring my input and output one day I found that I am normal, but I would always pee 3 oz, aside from when I woke up in the morning and it would be about 8 to 10 oz. The doctor told me that because my output was less then my input that there was nothing he could do, except maybe run some expensive tests, but I don't have health insurance. I have now been gluten free for over 2 months and I can now go between 2 to 4 hours without a trip to the bathroom. So has anyone else had a frequent urination problem, that has lessened or done away with the gluten free diet? Does anyone think it might be related to Celiac? Thanks :)

when i have something that irritates my gut this definitely happens. i normally go every few hours anyways but it also depends on how much water i've had during the day. at night i don't normally wake up to pee unless i've had alot before bedtime.

CarolinaKip Community Regular
CarolinaKip
Posted

I posted this on the pre-diagnoses but I might get more responses from the post-diagnoses section. :)

So as the description said I used to pee about every hour. I didn't drink a lot, but after measuring my input and output one day I found that I am normal, but I would always pee 3 oz, aside from when I woke up in the morning and it would be about 8 to 10 oz. The doctor told me that because my output was less then my input that there was nothing he could do, except maybe run some expensive tests, but I don't have health insurance. I have now been gluten free for over 2 months and I can now go between 2 to 4 hours without a trip to the bathroom. So has anyone else had a frequent urination problem, that has lessened or done away with the gluten free diet? Does anyone think it might be related to Celiac? Thanks :)

I was this way before going gluten-free. I would wake up in the morning and couldn't get enough to drink.

bincongo Contributor
bincongo
Posted

I posted this on the pre-diagnoses but I might get more responses from the post-diagnoses section. :)

So as the description said I used to pee about every hour. I didn't drink a lot, but after measuring my input and output one day I found that I am normal, but I would always pee 3 oz, aside from when I woke up in the morning and it would be about 8 to 10 oz. The doctor told me that because my output was less then my input that there was nothing he could do, except maybe run some expensive tests, but I don't have health insurance. I have now been gluten free for over 2 months and I can now go between 2 to 4 hours without a trip to the bathroom. So has anyone else had a frequent urination problem, that has lessened or done away with the gluten free diet? Does anyone think it might be related to Celiac? Thanks :)

I felt that I urinated less often after going gluten free. My theory is that I have less bloating and so there is less pressure on my bladder, makes sence to me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.