Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lopsided Bloated Abdomen?


sahm-i-am

Recommended Posts

sahm-i-am Apprentice

I have been gluten-free for 5 months now and symptoms are getting worse. Bloating and tiredness and my edema in my feet is coming back like before diagnosis. I am not getting CC or eating gluten. My GI dr. doesn't want to do the follow up MRI or antibodies blood test check to see if my lymph nodes and left intestinal wall thickening has gone down. ????? I am getting another opinion on that, but wanted to ask others: is it normal for your abdomen to swell more on the left side than the right? Do you think it relates to the left side intestinal wall thickening? Just wondering if bloating is always symmetrical! ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

i really dont know??? but if you had issues in your descending colon- that could make your left side swell more than the rest of the abdomen.

but idk. make sure your doc is ruling out everything and checking you're ok :) ?? ask him if you should have a colonoscopy to check the area...

idk, best of luck to you:)

ravenwoodglass Mentor

If your GI doctor is not doing follow up bloodwork go to your GP for it. You may have gluten sneaking in somewhere you don't expect. Look at what may have changed when you started getting symptoms again. Are you on any generic meds? They can change binders at will and should be checked with each refill. New cosmetic or toiletries? New arts and crafts or remodeling projects at home? Gluten can be sneaky and not all companies tell us about CC risk on the packages. One example is Lay's products, they do now tell us about CC risk on the website but it is not on the packages.

As to the one sided bloating if your GI doctor doesn't want to figure out if anything else could be wrong it might be time to look for a different GI doctor. Be aware that we can develop other intolerances also. Soy and dairy are the most common. I was fine with soy for quite some time but within a couple years I began to react to it.

For me the one sided more than the other bloat is from adhesions. An ultrasound showed that my intestines were pulled to that side. Since I have a history of adhesions they surmised that was the cause. It may of course not be the case for you.

aderifield Apprentice

In recent years, I've always had this! At one point, it got even worse and turned out I had kidney stones and an infection on that side. After treatment, it went back down to its normal just slightly inflated elevation. I haven't had a endoscopy, yet, but am anxious to see what they have to say about this next month.

bluebonnet Explorer

for me its my right side. at the beginning of the summer i had the colonscopy and endoscopy but it didnt reveal anything about being "lopsided" so hopefully it will be something that improves with time. my own theory is that maybe because i have mild scoliosis the slight curve naturally crunches everything together?? who knows ... but it kinda makes sense.

TrillumHunter Enthusiast

Adhesions from previous surgeries caused that for me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

    2. - Scott Adams replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

    3. - Aretaeus Cappadocia replied to Thoughtidjoin's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Dried Chickpeas

    4. - ainsleydale1700 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Confused about HLA-DQ Celiac gene test result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,434
    • Most Online (within 30 mins)
      7,748

    LexiBusch
    Newest Member
    LexiBusch
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @ainsleydale1700! First, it is very unlikely, given your genetic results, that you have celiac disease. But it is not a slam dunk. Second, there are some other reasons besides having celiac disease that your blood antibody testing was positive. There are some diseases, some medications and even (for some people) some foods (dairy, the protein "casein") that can cause elevated celiac blood antibody test scores. Usually, the other causes don't produce marginally high test scores and not super high ones. Having said that, by far, the most common reason for elevated tTG-IGA celiac antibody test scores (this is the most common test ordered by doctors when checking for celiac disease) is celiac disease itself. Please post back and list all celiac blood antibody tests that were done with their scores and with their reference ranges. Without the reference ranges for negative vs. positive we can't tell much because they vary from lab to lab. Third, and this is an terrible bum steer by your doc, for the biopsy results to be valid, you need to have been eating generous amounts of gluten up to the day of the procedure for several weeks.  Having said all that, it sounds most likely that you have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. The two share many common symptoms but NCGS is not autoimmune in nature and doesn't damage the lining of the small bowel. What symptoms do you have? Do you have any blood work that is out of norm like iron deficiency that would suggest celiac disease?
    • ainsleydale1700
    • Scott Adams
      HLA testing can definitely be confusing. Classic celiac disease risk is most strongly associated with having the full HLA-DQ2 or HLA-DQ8 heterodimer, which requires specific DQA1 and DQB1 genes working together. Your report shows you are negative for the common DQ2 and DQ8 combinations, but positive for DQB102, which is one component of the DQ2 pair. On its own, DQB102 does not usually form the full DQ2 molecule most strongly linked to celiac disease, which is likely why your doctor said you do not carry the typical “celiac genes.” However, genetics are only part of the picture. A negative gene test makes celiac disease much less likely, but not absolutely impossible in rare cases. More importantly, both antibody testing and biopsy are only reliable when someone is actively eating gluten; being gluten-free for four years before testing can cause both bloodwork and intestinal biopsy to appear falsely negative. Given your positive antibodies and ongoing symptoms, it may be reasonable to seek clarification from a gastroenterologist experienced in celiac disease about whether proper gluten exposure was done before testing and whether additional evaluation is needed.
    • Aretaeus Cappadocia
      I agree with your post and have had similar experiences. I'm commenting to add the suggestion of also using nutritional yeast as a supplement. It's a rich source of B vitamins and other nutrients, and some brands are further supplemented with additional B12. I sprinkle a modest amount in a variety of savory recipes.
    • ainsleydale1700
      Hi, could someone help me understand the result of my gene test? DQ2 (DQA1 0501/0505,DQB1 02XX): Negative DQ8 (DQA1 03XX,DQB1 0302): Negative The patient is positive for DQB1*02, one half of the DQ2 heterodimer.  The doctor said I don't have Celiac genes.  I asked him to clarify about my positive DQB1*02, and he said it's a gene unrelated to Celiac.  I have all the symptoms and my bloodwork is positive for antibodies, despite being on a gluten-free diet for the past 4 years.  He also did a biopsy but told me to continue a gluten-free diet and not eat gluten before the biopsy.  Based on the gene test and biopsy (which came back negative) he ruled out Celiac, leaving me very confused.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.