Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lopsided Bloated Abdomen?

sahm-i-am

By sahm-i-am
in Coping with Celiac Disease

Recommended Posts

sahm-i-am Apprentice
sahm-i-am
Posted

I have been gluten-free for 5 months now and symptoms are getting worse. Bloating and tiredness and my edema in my feet is coming back like before diagnosis. I am not getting CC or eating gluten. My GI dr. doesn't want to do the follow up MRI or antibodies blood test check to see if my lymph nodes and left intestinal wall thickening has gone down. ????? I am getting another opinion on that, but wanted to ask others: is it normal for your abdomen to swell more on the left side than the right? Do you think it relates to the left side intestinal wall thickening? Just wondering if bloating is always symmetrical! ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cassP Contributor
cassP
Posted

i really dont know??? but if you had issues in your descending colon- that could make your left side swell more than the rest of the abdomen.

but idk. make sure your doc is ruling out everything and checking you're ok :) ?? ask him if you should have a colonoscopy to check the area...

idk, best of luck to you:)

ravenwoodglass Mentor
ravenwoodglass
Posted

If your GI doctor is not doing follow up bloodwork go to your GP for it. You may have gluten sneaking in somewhere you don't expect. Look at what may have changed when you started getting symptoms again. Are you on any generic meds? They can change binders at will and should be checked with each refill. New cosmetic or toiletries? New arts and crafts or remodeling projects at home? Gluten can be sneaky and not all companies tell us about CC risk on the packages. One example is Lay's products, they do now tell us about CC risk on the website but it is not on the packages.

As to the one sided bloating if your GI doctor doesn't want to figure out if anything else could be wrong it might be time to look for a different GI doctor. Be aware that we can develop other intolerances also. Soy and dairy are the most common. I was fine with soy for quite some time but within a couple years I began to react to it.

For me the one sided more than the other bloat is from adhesions. An ultrasound showed that my intestines were pulled to that side. Since I have a history of adhesions they surmised that was the cause. It may of course not be the case for you.

aderifield Apprentice
aderifield
Posted

In recent years, I've always had this! At one point, it got even worse and turned out I had kidney stones and an infection on that side. After treatment, it went back down to its normal just slightly inflated elevation. I haven't had a endoscopy, yet, but am anxious to see what they have to say about this next month.

bluebonnet Explorer
bluebonnet
Posted

for me its my right side. at the beginning of the summer i had the colonscopy and endoscopy but it didnt reveal anything about being "lopsided" so hopefully it will be something that improves with time. my own theory is that maybe because i have mild scoliosis the slight curve naturally crunches everything together?? who knows ... but it kinda makes sense.

TrillumHunter Enthusiast
TrillumHunter
Posted

Adhesions from previous surgeries caused that for me.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,550
    • Most Online (within 30 mins)
      7,748
    TNV
    Newest Member
    TNV
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • MoniqueCham
      Celiac Disease, Lymphocytic colitis and Bowel rupture

      By MoniqueCham · Posted

      Thanks for your reply Scott! A long time ago I realized I didn’t fit neatly into uncomplicated celiac disease. Over the years I’ve been diagnosed and treated for SIBO, pancreatic insufficiency and diagnosed with Stage 2 liver fibrosis. I think all the complications occurred because of the refractory celiac disease. When I hit menopause my gut issues seemed to calm down and because I was stable I made the mistake of not following up with my gastroenterologist. Then other autoimmune problems flared and I tried the methotrexate. It worked like a charm for my skin condition… then my sigmoid colon ruptured. Strange but my autoimmune skin condition remains in remission after 6 months off the medication. We have a very long waiting list to get back into see my GI doctor… I was an emergency referral but am still waiting 6 months after the perforation. I need more surgery to fix a fistula that has formed and to reconnect my colon… I have a colostomy at present. I became a dietitian who specializes in bowel diseases but have never met anyone who’s had so many complications with celiac disease. I have a brother and son who also have been diagnosed. My mother had 4 autoimmune diseases including a vasculitis that eventually resulted in her death and it was my father who had the HLA DQ2 gene. Think I inherited some tendencies from each of them. Thanks again for your response… it feels a little lonely dealing with GI issues when I work so hard to remain gluten free.   
    • HelenH
      Malt vinegar

      By HelenH · Posted

      Thank.you both
    • Scott Adams
      Malt vinegar

      By Scott Adams · Posted

      Yes, unfortunately malt vinegar can definitely trigger a strong reaction in people with celiac disease. Malt vinegar is typically made from barley, which contains gluten, and unlike distilled white vinegar, it is not considered gluten-free. Even a small amount — especially if you’ve been strictly gluten-free for years — can cause a more intense reaction because your body is no longer accustomed to exposure. Many people report significant symptoms after accidental ingestion, including abdominal pain, diarrhea, fatigue, or flu-like feelings. You’re not alone in that experience. It may help to be especially cautious with salad dressings, chips, sauces, and restaurant foods, where malt vinegar is sometimes used.
    • Scott Adams
      Supplements for those Diagnosed with Celiac Disease

      By Scott Adams · Posted

      A diagnosis of Refractory Celiac Disease Type 2 is a lot to absorb, especially if you feel like the severity wasn’t clearly communicated earlier. It’s understandable to feel shocked and frustrated. RCD Type 2 does require close specialist care, often with a gastroenterologist who has experience managing complex celiac cases, and sometimes coordination with hematology because of the immune cell changes involved. Focusing on nutrition is absolutely important — many people benefit from working with a registered dietitian who specializes in celiac disease to help address malabsorption, weight loss, and vitamin or mineral deficiencies. You’re doing the right thing by seeking information and support. Make sure you feel comfortable asking your care team direct questions about your biopsy results, treatment plan, and monitoring strategy — you deserve clarity and a coordinated approach.
    • Scott Adams
      Celiac Disease, Lymphocytic colitis and Bowel rupture

      By Scott Adams · Posted

      I’m so sorry you’ve been through all of that — that’s an incredibly complex history. While methotrexate is widely used at low weekly doses for autoimmune conditions, it can, in rare cases, cause serious gastrointestinal side effects, including ulceration, mucosal injury, or even perforation. That said, a spontaneous sigmoid rupture from methotrexate at 15 mg weekly is extremely uncommon. In people with celiac disease — especially refractory celiac — there can already be underlying intestinal inflammation or altered mucosal integrity, which might theoretically increase vulnerability, but there isn’t strong published evidence clearly linking stable celiac disease to a markedly higher risk of methotrexate-related bowel perforation. Other factors such as concurrent inflammation, vascular compromise, infection, steroid use, or microscopic colitis may also contribute. It would be reasonable to review the case with a gastroenterologist familiar with refractory celiac and possibly a rheumatologist, and to report the event as a potential adverse drug reaction. I’d also be very interested to hear if others in the community have had similar experiences.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.