Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Infertility

Mandy M

By Mandy M
in Related Issues & Disorders

Recommended Posts

Mandy M Rookie
Mandy M
Posted

I was just "rediagnoised" last week with having Celiac disease. I had it as a child. I thought I out grew it so I went on my marry way eatting whatever I wanted. Well 17yrs later I find out that untreated Celiac disease can cause infertility. So I'm thinking that might be the reason I haven't gotten pregnant in the past 2yrs. So I was wondering did anyone else have this problem of infertility and if so how long did it take to reverse itself and you got pregnant? Its been along 2yrs and money wasted on fertility pills, and tests and I just want to know for sure if this is the reason i'm infertil for the time being! thank you for your time and efforts. :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nikelodeon79 Rookie
nikelodeon79
Posted

My husband and I tried for about a year without success and then a couple of weeks after I found out I had Celiac and switched my diet... I got pregnant. It may just be coincidence... I'm not sure.

BUT I would advise one thing: get a handle on your new diet before getting pregnant. I'm 8 weeks pregnant and feeling quite depressed/upset about all the things I can't eat. I'm still getting used to eating gluten-free, and having to be extra careful because of the baby. Very stressful!

Mandy M Rookie
Mandy M
Posted
  • Author

Thank you for writing back. I was on the diet before so I'm hopeing that it will just fall back into habit for me. The hardest part is the cost of things. Oh well lots of baking at home. I can't wait to get pregnant. Thank you for giving me hope! Good luck with your child. I read that if you breast feed theres a lesser chance of the child having celiac. Not sure if thats true or not.

SGWhiskers Collaborator
SGWhiskers
Posted

Well, no one can say for sure why you are having trouble conceiving. My husband and I tried for 8 years and went through climid, IUI's and when we went to try IVF, the doc's did blood tests that said I was in perimenopause at 31. They recommended an egg donor. We didn't have the money to persue it. 3 years later I was diagnosed with Celiac. (I'm sure I had it since about the time we started clomid. I suspect I had it since college and maybe since I was a kid). After 2 years on a gluten free diet, we conceived naturally. I'm certain that the gluten free eating was responsible for this baby.

I don't know if gluten free eating will be the answer for you, but being back on the gluten free diet will make you healthier, and if you do get pregnant, it will lower your miscarriage risk. Best wishes to you in your celiac recovery and in conceiving. I truly know how it breaks your heart every day waiting and wondering how and when your family will come.

Mandy M Rookie
Mandy M
Posted
  • Author

As long as I hear others stories of women with celiac getting pregnant I will keep my hopes up. I'm going to see a specialist in Nov. Hopefully I won't need too and be pregnant by then! Thank you again for you help everyone

Frances03 Enthusiast
Frances03
Posted

We had infertility for over a year, twice, and also had 3 miscarriages in a row ALL in the couple years before I was diagnosed. 8 months after being diagnosed, I became pregnant and am now 21 weeks along. No explanation was every found for all the miscarriages and infertility. I had lots of tests done. I am also 39, and this pregnancy is going GREAT. I had given up.

Mandy M Rookie
Mandy M
Posted
  • Author

Thats great! Congrats! I haven't had any misscariages. But just never getting pregnant. I'm on the diet now for two weeks and fingers crossed that it will soon happen.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


i-geek Rookie
i-geek
Posted

Thats great! Congrats! I haven't had any misscariages. But just never getting pregnant. I'm on the diet now for two weeks and fingers crossed that it will soon happen.

My husband's cousin is a naturopathic doctor and she says that on average, her infertile celiac patients return to fertility about 1.5 years after going gluten-free. I'm hanging my hopes on this. We've been trying (or at least not avoiding) for more than 6 years now. I've been gluten-free for 9 months, so maybe next summer it will happen.

  • 3 weeks later...
firefightersgal Apprentice
firefightersgal
Posted

I have been battling secondary infertility for two years in December. A year ago, we had a miscarriage and have not had a pregnancy since. I've been on Clomid many times (with breaks along the way). Everything appears to be working correctly, but I don't get pregnant. There was also no explanation for my miscarriage.

Someone posted an article on here a while back about gluten causing miscarriages in those with Celiac Disease. It said something to the effect that the antibodies that are formed when we (gluten-intolerant folks) eat gluten attack the placenta and destroy it. When I read that, it all made so much sense to me. We were able to conceive our four-year old daughter very easily and I had a fairly easy pregnancy. However, at my 40-week appointment, I was only measuring at 27-weeks. My doctor sent me over for a sonogram and it was found that my daughter did not have any amniotic fluid, so I was induced immediately. They examined the placenta after my daughter was born and it was found to not be functioning. I've read that adult-onset celiac disease requires some kind of physically or emotionally taxing event. Pregnancy certainly is hard on the body, so I suspect that my pregnancy with my daughter triggered my celiac disease.

I've only known about this since August, though, so I may still have a while before I'm able to get pregnant. I hope not, though!

  • 2 weeks later...
Mandy M Rookie
Mandy M
Posted
  • Author

I'm keeping my fingers crossed for you. I hope everything turns out good. I'm on my second month on the diet and sadly nothing yet. I know I know it takes a bit for the body to bounce back from being attacked by the gluten. I see a fertility specialist on weds so hopefully she will help!

  • 8 months later...
momna Newbie
momna
Posted

HI All,

I have just been diagnosed with Celiac in May 2011 and stopped gluten right there and then. I too am having problems with infertility. We didnt have problems with baby number 1 who is now 10 years old but now two years of IUIs, injectibles (we didnt do IVF) still no baby. My RE said I have the perfect eggs as when we did the injectibles, I was able to produce 15 eggs! but then none was fertilized. After reading all your post I cant help but be hopeful that this could be the answer to my unexplained fertility. I had my first positive ovulation kit three weeks ago and my period is a bit delayed so I am keeping my fingers crossed and toes intertwined too!

Please continue to post your pregnancy success stories! Thanks! ;)

  • 1 month later...
Mandy M Rookie
Mandy M
Posted
  • Author

I have my fingers crossed for you. Yeah Its frustrating hey. Congrats on having one child. I'm still trying for number 1

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    2. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    3. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    4. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    5. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748
    bigwave
    Newest Member
    bigwave
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.