Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Miss The Convenience


The Glutenator

Recommended Posts

The Glutenator Contributor

I just went for a follow-up biopsy yesterday to see if the gluten-free diet is working at fixing up any damage (since my Ab levels are still through the roof after diligently being gluten-free). I had a very early appointment and, in my groggy state on the way home from the hospital, all I wanted was to stop at a coffee shop or bakery for a fresh muffin. Most of the time I am perfectly content with the gluten-free lifestyle, but sometimes I just REALLY REALLY wish I could pick up something fresh (usually sweet) easily. The feeling is worse when I am grumpy or sick and crave a fresh bun, or sometimes just want...for example...a muffin.

Needed a bit of a rant to those who understand.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



crimsonviolet Apprentice

I totally get you. Yesterday I was grocery shopping and I was just so worn out by the whole reading labels, checking for hidden gluten, etc. I caved 2 days ago and ate some fast food that I knew had gluten, and sure enough I reacted. Both my kids and hubby are currently reacting to hidden cross contamination from eating Snickers (mfg in a plant that uses malt.)

It's hard, but it's so worth it when we feel good instead of crappy.

srall Contributor

Totally understand.

missy'smom Collaborator

I get it. I honestly don't miss the individual foods most of the time. Most of the time it's the convenience and not having to think about everything I put in my mouth. I had a rare melt down in the car and cried on the way home from the grocery store tonight because I was feeling that there's so little I can eat and so tired of the same things and tired of seeing label after label that has ingredients in it that I can't have. I've been to 3 stores in 2 days, while out running errands and couldn't even find a plain iced tea that didn't have sugar! DH ran to the store afterwards today and bought me individual bottles in bulk and put them in the extra fridge so that I can take my own along next time I'm out and about on a hot day!

Food Allergy Therapist Newbie

I think it's totally normal to have moments where you just wish things were different and you could just have whatever you wanted, whenever you wanted. Changing your diet so drastically and giving up once beloved foods is really challenging and there really is a grieving process you have to go through. After awhile, you may feel like you have it all down, but there may still be moments when it gets the best of you. Important to ackowledge this and not fight it...it's just part of the grieving process. What gets me are Starbucks muffins...I don't know why...but I used to love their muffins and pastries...and when I get a craving, it's often for that. Then I remember how much better it feels not to get glutened.

The Glutenator Contributor

Yeah, I agree. I think for the rest of my life there will sometimes be moments when I say "damn!", but unfortunately that is just how life is. At least celiac disease is manageable and it could be a lot worse!

SaraKat Contributor

Going out to eat is a real nightmare so far. No one knows what celiac or gluten is unless I am in NYC.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BcG3987 Rookie

Comepletely understand!! I am at work right now and am staring down at a huge delicious looking pizza from my favorite place with all of my favorite toppings and honestly considered just taking a bite. I have only been doing this a month this time and this past weekend i have tried to convice myself i would be ok with just a bite, but luckily have had the willpower to talk myself out of it. I miss easy food too!!

Aphreal Contributor

yea, sometimes I really want a sandwhich on some soft bread or have rye toast with apple butter. Alas, we refrain.

Aphreal Contributor

Going out to eat is a real nightmare so far. No one knows what celiac or gluten is unless I am in NYC.

Do some research and find out what places have gluten-free items. There are maybe 3 places I go that I have their gluten-free menu memorized. Pretty much gave up on eating out other than that.

bridgetm Enthusiast

The only "fast-food" I'll eat is Noodles & Company (Pad thai's the only safe thing on their menu for me) or a bowl from Chipotle. It sucks because you can't find those off every freeway exit like McDonald's or Subway. I really miss impulse shopping. I could wander around Walmart with friends, not really needing anything, and walk out with $10 worth of junk food. Now I might grab some dark chocolate just because my friends are grabbing Pop Tarts and donuts to eat in the parking lot. In some cruel irony, the gluten-free aisle in the Mankato Walmart is located right next to the Pop Tarts :angry::o

Look at it this way... Not only are we more healthy than them, but we are also saving money. Those dollar menu stops add up.

mbrookes Community Regular

I understand!!! My idea of State Fair (starts here next week) is walking around with a lemonade and a corn dog. This year I'm making corn dogs and smuggling them in in my purse. I even have the little packets of mustard. Not like the real thing, but I can pretend!

Last year I cried all the way home because I couldn't have a corn dog. This time I'm ready!

lucia Enthusiast

I feel genuinely disabled sometimes, I feel so freakishly different than everybody else. The things they take for granted would make me sick for a week. :angry:

But other times, it's ok. I just remember to bring an avocado with me, or some nuts, whatever.

cap6 Enthusiast

We rv'd for 3 months this summer (just got home) and I got so tired of restaurants saying they had a gluten free menu only to get there and find out that their idea of gluten free was a choice of 3 different salads. I was really really tired of salads. lol Guess you have to call ahead and ask what is on the menu! What a learning precess.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,933
    • Most Online (within 30 mins)
      7,748

    Kazwal
    Newest Member
    Kazwal
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.