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Anxiety...anyone Else?

glutenfreeinminnesota

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glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted

Sorry this is long...but I have Celiacs...I have heard it can cause anxiety, but eventually goes away after being on a gluten-free diet? I have had a stupid fear of throwing up in public for at least ten years...I actually never have thrown up in public...I am not afraid to throw up...just worried about doing it in public, when bathrooms or exits aren't close by, so much that I make myself sick in public just thinking about it! My heart starts racing and I start to sweat...then I get queezy. The stupid thing is I never have even done it in public! I know it's all in my mind, and I have had really good moments where I force myself to go into public and just deal with it, and I have always gotten through it. We have Viking season tix (bathroom lines are SOOOOO long!)...but I had to request aisle tix. I love flying and going places, but hate taking off and landing because I can't get out of my seat. Anyways...I used to worry about D in public, and not being close to a bathroom, but now I hardly have D since I know what's wrong :D so that's not an issue anymore...but now the fear of throwing up in public seems to remain. Would anti-anxiety pills help this? Or will anxiety about this eventually go away maybe, as my intestine continue to heal? I can handle it sometimes...but also avoid situations where I know I will be stuck sitting in a place with lots of people..and no bathrooms nearby. I don't have great health insurance, so can't afford a psych of any kind...anyways...any thoughts!!?? Anyone else out there even have this problem?? Thanks!!

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sahm-i-am Apprentice
sahm-i-am
Posted

Now that I think about it, I did have crazy anxiety when I was on gluten. I would lie awake at night and think up scary situations that my family and I "might" get into one day, and what would I do about it. Or I would listen for every little sound in the house and think a burglar was trying to break in. Or I would over-analyze something my daughter said and blow it out of proportion and worry. Oh yeah, gluten can do 'wonders' to a person. I have been gluten free for 5 months and don't do that anymore. I also have calmed down about my claustrophobia although I don't think I'll go spelunking anytime soon!

How long have you been gluten-free? I would think it should ease up soon. I mean, so many people have brain fog with gluten, so why not heightened anxiety? It makes sense.

I have been thinking about putting my dog on a gluten free diet to see if I can ween him off his puppy-Prozac. He is highly anxious without and and impossible to live with. And gluten free dog food has to be cheaper than his pills! ;)

Lisa Mentor
Lisa
Posted

Anxiety is very natural, especially in public places. Be diligent with your diet and you symptoms should subside. But, it's common that neurological symptoms recover lastly.

Take a vitamin supplement. I take Healthy Accents Prenatal Vitamins (my baby years are long done, but I like what they offer).

And don't forget that a "normal" life can be had. And it might be just around the corner. Be careful what you eat, trust in yourself, live by your "gut" (literally).

Be patient with yourself and pamper yourself once in a while. There is a very healthy, productive, fun life out there - even with Celiac Disease.

glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted
  • Author

I have been on the diet for almost 11 months...I am hoping it goes away! I know it's stupid..and I constantly tell myself that but sometimes my mind just gets away from me...Thanks for the replies!! I will just keep telling myself I won't puke in public :) and since I never have...probably never will!! I will look into the prenatal vits too..thanks!!

glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted
  • Author

Now that I think about it, I did have crazy anxiety when I was on gluten. I would lie awake at night and think up scary situations that my family and I "might" get into one day, and what would I do about it. Or I would listen for every little sound in the house and think a burglar was trying to break in. Or I would over-analyze something my daughter said and blow it out of proportion and worry. Oh yeah, gluten can do 'wonders' to a person. I have been gluten free for 5 months and don't do that anymore. I also have calmed down about my claustrophobia although I don't think I'll go spelunking anytime soon!

How long have you been gluten-free? I would think it should ease up soon. I mean, so many people have brain fog with gluten, so why not heightened anxiety? It makes sense.

I have been thinking about putting my dog on a gluten free diet to see if I can ween him off his puppy-Prozac. He is highly anxious without and and impossible to live with. And gluten free dog food has to be cheaper than his pills! ;)

My dog eats "Natural Balance Limited Ingredients Diet"...it's gluten free and I didn't even know it, until I researched it after getting diagnosed. It's about $40 a bag for the biggest bag, thought I would share!! Their website is not working...but if you just google "Natural Balance Dog Food" something should come up about it :)

JAMR Newbie
JAMR
Posted

I have/had anxiety with my celiac. Research indicates that it is a known symptom. I would imagine that being unwell makes someone anxious and there is supposed to be some direct pathology on the neuro systems. Be positive, at least you have identified a culpprit for the way you feel, it takes time to address and you must always be vigilant. Your systems will normalise in time (I am gluten-free for 2 years and anxiety has dropped in most situations), do not be comlpacent with diet or the possibility that you react to other foods. Exercise has helped me as wel as meditation to improve my general mood but the biggest boost is knowing that I am dealing with and being able to address it. Good luck with it, you are on the way up.

Dixiebell Contributor
Dixiebell
Posted

Fish oil and b complex have helped me along with eating gluten free. I was on anti depressants on and off for many years and was able to taper off 3 mo. ago. I have always had terrible anxiety since high school, sweating, upset stomach and just a fear of the unknown. I don't have that anymore.

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lucia Enthusiast
lucia
Posted

I had sudden and disabling anxiety for about a year and some before my GI symptoms started. It was bad enough that my doctor put me on an anti-depressant. As soon as I was gluten free for 3 months, I went off of the anti-depressant, and the anxiety has not resurfaced. The connection is very clear to me.

Lisa Mentor
Lisa
Posted

I had sudden and disabling anxiety for about a year and some before my GI symptoms started. It was bad enough that my doctor put me on an anti-depressant. As soon as I was gluten free for 3 months, I went off of the anti-depressant, and the anxiety has not resurfaced. The connection is very clear to me.

I understand and felt the same. I think due to vitamin and mineral deficiencies. With the lack of B-12, I had difficulty walking. Sentences began, but never completed. Forgetting where I was driving also a grave concern. And I would have cold sweats while walking on a dock or driving over bridges.

I still hate bridges, but everything has returned to normal.

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    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
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