Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety...anyone Else?

glutenfreeinminnesota

Recommended Posts

glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted

Sorry this is long...but I have Celiacs...I have heard it can cause anxiety, but eventually goes away after being on a gluten-free diet? I have had a stupid fear of throwing up in public for at least ten years...I actually never have thrown up in public...I am not afraid to throw up...just worried about doing it in public, when bathrooms or exits aren't close by, so much that I make myself sick in public just thinking about it! My heart starts racing and I start to sweat...then I get queezy. The stupid thing is I never have even done it in public! I know it's all in my mind, and I have had really good moments where I force myself to go into public and just deal with it, and I have always gotten through it. We have Viking season tix (bathroom lines are SOOOOO long!)...but I had to request aisle tix. I love flying and going places, but hate taking off and landing because I can't get out of my seat. Anyways...I used to worry about D in public, and not being close to a bathroom, but now I hardly have D since I know what's wrong :D so that's not an issue anymore...but now the fear of throwing up in public seems to remain. Would anti-anxiety pills help this? Or will anxiety about this eventually go away maybe, as my intestine continue to heal? I can handle it sometimes...but also avoid situations where I know I will be stuck sitting in a place with lots of people..and no bathrooms nearby. I don't have great health insurance, so can't afford a psych of any kind...anyways...any thoughts!!?? Anyone else out there even have this problem?? Thanks!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sahm-i-am Apprentice
sahm-i-am
Posted

Now that I think about it, I did have crazy anxiety when I was on gluten. I would lie awake at night and think up scary situations that my family and I "might" get into one day, and what would I do about it. Or I would listen for every little sound in the house and think a burglar was trying to break in. Or I would over-analyze something my daughter said and blow it out of proportion and worry. Oh yeah, gluten can do 'wonders' to a person. I have been gluten free for 5 months and don't do that anymore. I also have calmed down about my claustrophobia although I don't think I'll go spelunking anytime soon!

How long have you been gluten-free? I would think it should ease up soon. I mean, so many people have brain fog with gluten, so why not heightened anxiety? It makes sense.

I have been thinking about putting my dog on a gluten free diet to see if I can ween him off his puppy-Prozac. He is highly anxious without and and impossible to live with. And gluten free dog food has to be cheaper than his pills! ;)

Lisa Mentor
Lisa
Posted

Anxiety is very natural, especially in public places. Be diligent with your diet and you symptoms should subside. But, it's common that neurological symptoms recover lastly.

Take a vitamin supplement. I take Healthy Accents Prenatal Vitamins (my baby years are long done, but I like what they offer).

And don't forget that a "normal" life can be had. And it might be just around the corner. Be careful what you eat, trust in yourself, live by your "gut" (literally).

Be patient with yourself and pamper yourself once in a while. There is a very healthy, productive, fun life out there - even with Celiac Disease.

glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted
  • Author

I have been on the diet for almost 11 months...I am hoping it goes away! I know it's stupid..and I constantly tell myself that but sometimes my mind just gets away from me...Thanks for the replies!! I will just keep telling myself I won't puke in public :) and since I never have...probably never will!! I will look into the prenatal vits too..thanks!!

glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted
  • Author

Now that I think about it, I did have crazy anxiety when I was on gluten. I would lie awake at night and think up scary situations that my family and I "might" get into one day, and what would I do about it. Or I would listen for every little sound in the house and think a burglar was trying to break in. Or I would over-analyze something my daughter said and blow it out of proportion and worry. Oh yeah, gluten can do 'wonders' to a person. I have been gluten free for 5 months and don't do that anymore. I also have calmed down about my claustrophobia although I don't think I'll go spelunking anytime soon!

How long have you been gluten-free? I would think it should ease up soon. I mean, so many people have brain fog with gluten, so why not heightened anxiety? It makes sense.

I have been thinking about putting my dog on a gluten free diet to see if I can ween him off his puppy-Prozac. He is highly anxious without and and impossible to live with. And gluten free dog food has to be cheaper than his pills! ;)

My dog eats "Natural Balance Limited Ingredients Diet"...it's gluten free and I didn't even know it, until I researched it after getting diagnosed. It's about $40 a bag for the biggest bag, thought I would share!! Their website is not working...but if you just google "Natural Balance Dog Food" something should come up about it :)

JAMR Newbie
JAMR
Posted

I have/had anxiety with my celiac. Research indicates that it is a known symptom. I would imagine that being unwell makes someone anxious and there is supposed to be some direct pathology on the neuro systems. Be positive, at least you have identified a culpprit for the way you feel, it takes time to address and you must always be vigilant. Your systems will normalise in time (I am gluten-free for 2 years and anxiety has dropped in most situations), do not be comlpacent with diet or the possibility that you react to other foods. Exercise has helped me as wel as meditation to improve my general mood but the biggest boost is knowing that I am dealing with and being able to address it. Good luck with it, you are on the way up.

Dixiebell Contributor
Dixiebell
Posted

Fish oil and b complex have helped me along with eating gluten free. I was on anti depressants on and off for many years and was able to taper off 3 mo. ago. I have always had terrible anxiety since high school, sweating, upset stomach and just a fear of the unknown. I don't have that anymore.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lucia Enthusiast
lucia
Posted

I had sudden and disabling anxiety for about a year and some before my GI symptoms started. It was bad enough that my doctor put me on an anti-depressant. As soon as I was gluten free for 3 months, I went off of the anti-depressant, and the anxiety has not resurfaced. The connection is very clear to me.

Lisa Mentor
Lisa
Posted

I had sudden and disabling anxiety for about a year and some before my GI symptoms started. It was bad enough that my doctor put me on an anti-depressant. As soon as I was gluten free for 3 months, I went off of the anti-depressant, and the anxiety has not resurfaced. The connection is very clear to me.

I understand and felt the same. I think due to vitamin and mineral deficiencies. With the lack of B-12, I had difficulty walking. Sentences began, but never completed. Forgetting where I was driving also a grave concern. And I would have cold sweats while walking on a dock or driving over bridges.

I still hate bridges, but everything has returned to normal.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rejoicephd
      - Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders
      5

      Basic metabolic panel results - more flags

      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources. I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    2. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

      You're right, doctors usually only test Vitamin D and B12. Both are really important, but they're not good indicators of deficiencies in the other B vitamins. Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer. The other B vitamins can only be stored for much shorter periods of time. Pyridoxine B 6 can...
    3. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron. I wondered how it was possible that I had celiac disease...
    4. knitty kitty
      - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment. The cow's body builds that Casein protein. It doesn't come from wheat. Casein can trigger the same reaction as being exposed to gluten in some people. This is not a dairy allergy (IGE mediated response). It is not lactose intolerance...
    5. trents
      - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,371
    • Most Online (within 30 mins)
      7,748
    Susan Blodgett
    Newest Member
    Susan Blodgett
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Basic metabolic panel results - more flags

      By Rejoicephd · Posted

      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.