Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety...anyone Else?

glutenfreeinminnesota

Recommended Posts

glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted

Sorry this is long...but I have Celiacs...I have heard it can cause anxiety, but eventually goes away after being on a gluten-free diet? I have had a stupid fear of throwing up in public for at least ten years...I actually never have thrown up in public...I am not afraid to throw up...just worried about doing it in public, when bathrooms or exits aren't close by, so much that I make myself sick in public just thinking about it! My heart starts racing and I start to sweat...then I get queezy. The stupid thing is I never have even done it in public! I know it's all in my mind, and I have had really good moments where I force myself to go into public and just deal with it, and I have always gotten through it. We have Viking season tix (bathroom lines are SOOOOO long!)...but I had to request aisle tix. I love flying and going places, but hate taking off and landing because I can't get out of my seat. Anyways...I used to worry about D in public, and not being close to a bathroom, but now I hardly have D since I know what's wrong :D so that's not an issue anymore...but now the fear of throwing up in public seems to remain. Would anti-anxiety pills help this? Or will anxiety about this eventually go away maybe, as my intestine continue to heal? I can handle it sometimes...but also avoid situations where I know I will be stuck sitting in a place with lots of people..and no bathrooms nearby. I don't have great health insurance, so can't afford a psych of any kind...anyways...any thoughts!!?? Anyone else out there even have this problem?? Thanks!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sahm-i-am Apprentice
sahm-i-am
Posted

Now that I think about it, I did have crazy anxiety when I was on gluten. I would lie awake at night and think up scary situations that my family and I "might" get into one day, and what would I do about it. Or I would listen for every little sound in the house and think a burglar was trying to break in. Or I would over-analyze something my daughter said and blow it out of proportion and worry. Oh yeah, gluten can do 'wonders' to a person. I have been gluten free for 5 months and don't do that anymore. I also have calmed down about my claustrophobia although I don't think I'll go spelunking anytime soon!

How long have you been gluten-free? I would think it should ease up soon. I mean, so many people have brain fog with gluten, so why not heightened anxiety? It makes sense.

I have been thinking about putting my dog on a gluten free diet to see if I can ween him off his puppy-Prozac. He is highly anxious without and and impossible to live with. And gluten free dog food has to be cheaper than his pills! ;)

Lisa Mentor
Lisa
Posted

Anxiety is very natural, especially in public places. Be diligent with your diet and you symptoms should subside. But, it's common that neurological symptoms recover lastly.

Take a vitamin supplement. I take Healthy Accents Prenatal Vitamins (my baby years are long done, but I like what they offer).

And don't forget that a "normal" life can be had. And it might be just around the corner. Be careful what you eat, trust in yourself, live by your "gut" (literally).

Be patient with yourself and pamper yourself once in a while. There is a very healthy, productive, fun life out there - even with Celiac Disease.

glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted
  • Author

I have been on the diet for almost 11 months...I am hoping it goes away! I know it's stupid..and I constantly tell myself that but sometimes my mind just gets away from me...Thanks for the replies!! I will just keep telling myself I won't puke in public :) and since I never have...probably never will!! I will look into the prenatal vits too..thanks!!

glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted
  • Author

Now that I think about it, I did have crazy anxiety when I was on gluten. I would lie awake at night and think up scary situations that my family and I "might" get into one day, and what would I do about it. Or I would listen for every little sound in the house and think a burglar was trying to break in. Or I would over-analyze something my daughter said and blow it out of proportion and worry. Oh yeah, gluten can do 'wonders' to a person. I have been gluten free for 5 months and don't do that anymore. I also have calmed down about my claustrophobia although I don't think I'll go spelunking anytime soon!

How long have you been gluten-free? I would think it should ease up soon. I mean, so many people have brain fog with gluten, so why not heightened anxiety? It makes sense.

I have been thinking about putting my dog on a gluten free diet to see if I can ween him off his puppy-Prozac. He is highly anxious without and and impossible to live with. And gluten free dog food has to be cheaper than his pills! ;)

My dog eats "Natural Balance Limited Ingredients Diet"...it's gluten free and I didn't even know it, until I researched it after getting diagnosed. It's about $40 a bag for the biggest bag, thought I would share!! Their website is not working...but if you just google "Natural Balance Dog Food" something should come up about it :)

JAMR Newbie
JAMR
Posted

I have/had anxiety with my celiac. Research indicates that it is a known symptom. I would imagine that being unwell makes someone anxious and there is supposed to be some direct pathology on the neuro systems. Be positive, at least you have identified a culpprit for the way you feel, it takes time to address and you must always be vigilant. Your systems will normalise in time (I am gluten-free for 2 years and anxiety has dropped in most situations), do not be comlpacent with diet or the possibility that you react to other foods. Exercise has helped me as wel as meditation to improve my general mood but the biggest boost is knowing that I am dealing with and being able to address it. Good luck with it, you are on the way up.

Dixiebell Contributor
Dixiebell
Posted

Fish oil and b complex have helped me along with eating gluten free. I was on anti depressants on and off for many years and was able to taper off 3 mo. ago. I have always had terrible anxiety since high school, sweating, upset stomach and just a fear of the unknown. I don't have that anymore.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lucia Enthusiast
lucia
Posted

I had sudden and disabling anxiety for about a year and some before my GI symptoms started. It was bad enough that my doctor put me on an anti-depressant. As soon as I was gluten free for 3 months, I went off of the anti-depressant, and the anxiety has not resurfaced. The connection is very clear to me.

Lisa Mentor
Lisa
Posted

I had sudden and disabling anxiety for about a year and some before my GI symptoms started. It was bad enough that my doctor put me on an anti-depressant. As soon as I was gluten free for 3 months, I went off of the anti-depressant, and the anxiety has not resurfaced. The connection is very clear to me.

I understand and felt the same. I think due to vitamin and mineral deficiencies. With the lack of B-12, I had difficulty walking. Sentences began, but never completed. Forgetting where I was driving also a grave concern. And I would have cold sweats while walking on a dock or driving over bridges.

I still hate bridges, but everything has returned to normal.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jordan Carlson
      - Jordan Carlson posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fruits & Veggies

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine...
    2. wellthatsfun
      - wellthatsfun posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      heaps of hope!

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free...
    3. knitty kitty
      - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

      That test is saying that your daughter is not making normal amounts of any IGA antibodies. She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses. She is deficient in total IGA, so the test for antigliadin antibodies is not valid. The test was a failure. The test only works if all different kinds of antibodies...
    4. knitty kitty
      0

      Vitamins I Take

    5. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

      @hjayne19, So glad you found the information helpful. I know how difficult my struggle with anxiety has been. I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex. It contains the easily activated forms of B vitamins needed by people with the MTHFR...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,996
    • Most Online (within 30 mins)
      7,748
    Gail Schoeninger
    Newest Member
    Gail Schoeninger
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jordan Carlson
      Fruits & Veggies

      By Jordan Carlson · Posted

      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
    • wellthatsfun
      heaps of hope!

      By wellthatsfun · Posted

      i know i've been rather cynical and sad about being fully diagnosed in june 2025, but my boyfriend has been consistently showing me the wonderful world that is gluten free cooking and baking. in the past couple of days he's made me a gluten free rice paper-wrapped spanakopita "pastry", plus a wonderful mac and cheese bechamel-ish sauce with gluten free pasta (san remo brand if you're in australia/if you can get your hands on it wherever you are).  those meals are notably gluten free, but mainly he's been making me easy gluten free meals - chili mince with white rice and sour cream, chicken soup with homemade stock from the chicken remains, and roast chickens with rice flour gravy and roast veggies. i'm a bit too thankful and grateful lol. how lucky could i possibly be? and, of course, for those who don't have someone to cook for them, it's quite easy to learn to cook for yourself. i've been making a lot of meals for us too. honestly, cooking is pretty darn fun! knowing basic knife skills and sanitary practices are all you really need. experimenting with spices will help you get on track to creating some really flavourful and yummy dishes. coeliac is a pain, but you can use it to your advantage. healthier eating and having fun in the kitchen are major upsides. much luck to all of you! let's be healthy!
    • knitty kitty
      Help understand results

      By knitty kitty · Posted

      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Positive biopsy

      By trents · Posted

      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.