Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety...anyone Else?

glutenfreeinminnesota

Recommended Posts

glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted

Sorry this is long...but I have Celiacs...I have heard it can cause anxiety, but eventually goes away after being on a gluten-free diet? I have had a stupid fear of throwing up in public for at least ten years...I actually never have thrown up in public...I am not afraid to throw up...just worried about doing it in public, when bathrooms or exits aren't close by, so much that I make myself sick in public just thinking about it! My heart starts racing and I start to sweat...then I get queezy. The stupid thing is I never have even done it in public! I know it's all in my mind, and I have had really good moments where I force myself to go into public and just deal with it, and I have always gotten through it. We have Viking season tix (bathroom lines are SOOOOO long!)...but I had to request aisle tix. I love flying and going places, but hate taking off and landing because I can't get out of my seat. Anyways...I used to worry about D in public, and not being close to a bathroom, but now I hardly have D since I know what's wrong :D so that's not an issue anymore...but now the fear of throwing up in public seems to remain. Would anti-anxiety pills help this? Or will anxiety about this eventually go away maybe, as my intestine continue to heal? I can handle it sometimes...but also avoid situations where I know I will be stuck sitting in a place with lots of people..and no bathrooms nearby. I don't have great health insurance, so can't afford a psych of any kind...anyways...any thoughts!!?? Anyone else out there even have this problem?? Thanks!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sahm-i-am Apprentice
sahm-i-am
Posted

Now that I think about it, I did have crazy anxiety when I was on gluten. I would lie awake at night and think up scary situations that my family and I "might" get into one day, and what would I do about it. Or I would listen for every little sound in the house and think a burglar was trying to break in. Or I would over-analyze something my daughter said and blow it out of proportion and worry. Oh yeah, gluten can do 'wonders' to a person. I have been gluten free for 5 months and don't do that anymore. I also have calmed down about my claustrophobia although I don't think I'll go spelunking anytime soon!

How long have you been gluten-free? I would think it should ease up soon. I mean, so many people have brain fog with gluten, so why not heightened anxiety? It makes sense.

I have been thinking about putting my dog on a gluten free diet to see if I can ween him off his puppy-Prozac. He is highly anxious without and and impossible to live with. And gluten free dog food has to be cheaper than his pills! ;)

Lisa Mentor
Lisa
Posted

Anxiety is very natural, especially in public places. Be diligent with your diet and you symptoms should subside. But, it's common that neurological symptoms recover lastly.

Take a vitamin supplement. I take Healthy Accents Prenatal Vitamins (my baby years are long done, but I like what they offer).

And don't forget that a "normal" life can be had. And it might be just around the corner. Be careful what you eat, trust in yourself, live by your "gut" (literally).

Be patient with yourself and pamper yourself once in a while. There is a very healthy, productive, fun life out there - even with Celiac Disease.

glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted
  • Author

I have been on the diet for almost 11 months...I am hoping it goes away! I know it's stupid..and I constantly tell myself that but sometimes my mind just gets away from me...Thanks for the replies!! I will just keep telling myself I won't puke in public :) and since I never have...probably never will!! I will look into the prenatal vits too..thanks!!

glutenfreeinminnesota Contributor
glutenfreeinminnesota
Posted
  • Author

Now that I think about it, I did have crazy anxiety when I was on gluten. I would lie awake at night and think up scary situations that my family and I "might" get into one day, and what would I do about it. Or I would listen for every little sound in the house and think a burglar was trying to break in. Or I would over-analyze something my daughter said and blow it out of proportion and worry. Oh yeah, gluten can do 'wonders' to a person. I have been gluten free for 5 months and don't do that anymore. I also have calmed down about my claustrophobia although I don't think I'll go spelunking anytime soon!

How long have you been gluten-free? I would think it should ease up soon. I mean, so many people have brain fog with gluten, so why not heightened anxiety? It makes sense.

I have been thinking about putting my dog on a gluten free diet to see if I can ween him off his puppy-Prozac. He is highly anxious without and and impossible to live with. And gluten free dog food has to be cheaper than his pills! ;)

My dog eats "Natural Balance Limited Ingredients Diet"...it's gluten free and I didn't even know it, until I researched it after getting diagnosed. It's about $40 a bag for the biggest bag, thought I would share!! Their website is not working...but if you just google "Natural Balance Dog Food" something should come up about it :)

JAMR Newbie
JAMR
Posted

I have/had anxiety with my celiac. Research indicates that it is a known symptom. I would imagine that being unwell makes someone anxious and there is supposed to be some direct pathology on the neuro systems. Be positive, at least you have identified a culpprit for the way you feel, it takes time to address and you must always be vigilant. Your systems will normalise in time (I am gluten-free for 2 years and anxiety has dropped in most situations), do not be comlpacent with diet or the possibility that you react to other foods. Exercise has helped me as wel as meditation to improve my general mood but the biggest boost is knowing that I am dealing with and being able to address it. Good luck with it, you are on the way up.

Dixiebell Contributor
Dixiebell
Posted

Fish oil and b complex have helped me along with eating gluten free. I was on anti depressants on and off for many years and was able to taper off 3 mo. ago. I have always had terrible anxiety since high school, sweating, upset stomach and just a fear of the unknown. I don't have that anymore.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lucia Enthusiast
lucia
Posted

I had sudden and disabling anxiety for about a year and some before my GI symptoms started. It was bad enough that my doctor put me on an anti-depressant. As soon as I was gluten free for 3 months, I went off of the anti-depressant, and the anxiety has not resurfaced. The connection is very clear to me.

Lisa Mentor
Lisa
Posted

I had sudden and disabling anxiety for about a year and some before my GI symptoms started. It was bad enough that my doctor put me on an anti-depressant. As soon as I was gluten free for 3 months, I went off of the anti-depressant, and the anxiety has not resurfaced. The connection is very clear to me.

I understand and felt the same. I think due to vitamin and mineral deficiencies. With the lack of B-12, I had difficulty walking. Sentences began, but never completed. Forgetting where I was driving also a grave concern. And I would have cold sweats while walking on a dock or driving over bridges.

I still hate bridges, but everything has returned to normal.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will...
    2. Jacki Espo
      - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure.
    3. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

      Hi Tiffany. Thank you for writing your dituation and circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines. Way back when I was in my 2...
    4. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but...
    5. knitty kitty
      - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

      Fascinating.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,957
    • Most Online (within 30 mins)
      7,748
    Dogdad21
    Newest Member
    Dogdad21
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.