Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Few Questions I Have


rockectman

Recommended Posts

rockectman Rookie

I am either a full blown celiac or highly gluten sensitive and also have Meniere's disease. Both are autoimmune diseases.

Do you think they might be somehow connected? Also, I cheat quite often on my diet and pay the price. But lately my whole insides feel like I have been hit by a truck, very sore? Is this normal? If I continue to eat gluten, can this develop into cancer? And finally, is there any pill in the works that one can take before eating gluten foods to absorb the gluten? Probiotics helps me a little. Thanks....Derrick


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lynnelise Apprentice

I think a lot of autoimmune conditions are connected but I don't have specifics about Meniere's. What I really wanted to say was PLEASE don't cheat! Yes it could be causing you to feel sore all over. My whole body hurts when I eat gluten. Also there is absolutely nothing you can take that will stop your body from attacking the gluten. The only thing that will make you well is to 100% eliminate all traces of gluten from your life. Sorry, I know it's hard but it's worth it!!!

lynnelise Apprentice

Forgot to add, yes if you keep ingesting gluten you are more likely to get cancer of the small intestines and also at increased risk for a certain type of lymphoma.

Skylark Collaborator

I'll just confirm what lynnelise has already said. Yes, autoimmune diseases can be connected. Yes, you can get some fairly nasty intestinal lymphomas if you are celiac and continue to consume gluten. No, there is nothing you can do to make gluten in foods safe to consume. There is an enzyme mix in clinical trials but it is not available to the public. The "gluten defense" style enzymes are scams and will not protect you. You feel sore and in pain because your body is systematically destroying itself. If you get strict with the diet you will feel much better.

rockectman Rookie

Forgot to add, yes if you keep ingesting gluten you are more likely to get cancer of the small intestines and also at increased risk for a certain type of lymphoma.

Thanks for the replies, I will try to refrain from the gluten, but it is hard when you eat out alot, better like tacos

and salads I guess, even then the grill can be contaminated. Even the gluten free beer upsets my system, I dont drink often with menieres, I am dizzy enough, but once in a while is nice. That Lymphnoma looks rather scary.

MelindaLee Contributor

Thanks for the replies, I will try to refrain from the gluten, but it is hard when you eat out alot, better like tacos

and salads I guess, even then the grill can be contaminated. Even the gluten free beer upsets my system, I dont drink often with menieres, I am dizzy enough, but once in a while is nice. That Lymphnoma looks rather scary.

I don't know much about they symptoms of menieres, but you mentioned dizziness. My worst symptoms have been dizziness, migraines, tingling in arms and legs when I have gluten. I was diagnosed in a odd way, as I didn't have GI issues. I had chalked all my other sypmtoms up to arthritis and old age. Now, 2 months after being gluten-free, I don't have the symptoms. Being strick with a gluten-free diet is worth it! (And believe me, I was the worse carb-aholic there is!) Many restaurants have gluten-free menu's so it's worth asking.

rockectman Rookie

I don't know much about they symptoms of menieres, but you mentioned dizziness. My worst symptoms have been dizziness, migraines, tingling in arms and legs when I have gluten. I was diagnosed in a odd way, as I didn't have GI issues. I had chalked all my other sypmtoms up to arthritis and old age. Now, 2 months after being gluten-free, I don't have the symptoms. Being strick with a gluten-free diet is worth it! (And believe me, I was the worse carb-aholic there is!) Many restaurants have gluten-free menu's so it's worth asking.

Thanks MelindaLee, its too bad gluten-free foods taste like crap and are very expensive, beside the naturally gluten-free foods like rice, cheese, meats etc. Meniere's symptoms have are vertigo, inner ear pain, nausea, irritability, fatigue, headaches, blurred vision, brain fog, and more. Alot of those fall under Celiac. I hope alot of my symptoms disappear after 2 mos. TKS!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rdunbar Explorer

Thanks MelindaLee, its too bad gluten-free foods taste like crap and are very expensive,

I don't eat any "gluten free" products, just veggies, fruit, and meat, really, if it wasnt picked, dug up out of the ground, or butchered, I don't eat it. Its been over 6 months, and I'm really enjoying it, and I'm feeling much better; I've had these symptoms as well, tingling, achy joints, brain fog, anxiety and depression, blurry vision, loss of balance , and it's been improving. Once you get used to it, it's great,; of course there is more planning and preparation.

A lot of " gluten free" products have been known to be tainted with trace amounts of gluten from shared lines. I see products like gluten free cookies, where you read the fine print and it says "made in a facility that contains wheat", so it's always going to have a certain trace amount of gluten in it. I got tired of taking my chances with processed food, and feel like I'm finally getting some results. Going gluten lite didn't work for me.

No matter how bad it does or doesn't make you feel when you cheat, you are still being damaged by your immune systems reaction to the presence of gluten. just from one exposure the inflammation can linger up to 6 months! So please be careful, you are suffering more than just some discomfort from the symptoms. When you consider that the tissue in your body is being damaged, this is real damage, and if you have neuro symptoms, this is damage to your brain and nervous system!

gluten, and other protiens in wheat, have an opiating effect, so once you go long enough without it, you don't want it at all , in fact, now it totally grosses me out, and makes me nauseous to smell it.

You don't need it at all, veggies and fruit are carbs, too; and much better ones.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

    2. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748

    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.