Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Explaining To Husbands Grandparents

K8ling

By K8ling
in Coping with Celiac Disease

Recommended Posts

K8ling Enthusiast
K8ling
Posted

My inlaws and husbands grandparents came to visit yesterday, and we started talking about the food issue. Husbands grandmother says "Oh! My sister has a gluten intolerance! When we have pizza she just takes the toppings off and eats them alone".

Oh goodness. I had to explain the difference between Celiac Disease and Gluten Intolerance....then how cross contamination can (and HAS) made me VERY sick.

We're going to their house for Christmas this year...um...this is going to be interesting!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MelindaLee Contributor
MelindaLee
Posted

My inlaws and husbands grandparents came to visit yesterday, and we started talking about the food issue. Husbands grandmother says "Oh! My sister has a gluten intolerance! When we have pizza she just takes the toppings off and eats them alone".

Oh goodness. I had to explain the difference between Celiac Disease and Gluten Intolerance....then how cross contamination can (and HAS) made me VERY sick.

We're going to their house for Christmas this year...um...this is going to be interesting!

I empathize with you. I have been fortunate as my family has been supportive, though need regular education. I have always been one to volunteer to bring food to family events, so I will plan to keep doing the same...except now it will be gluten-free. My DS has been gluten-free for a while, so he appreciates it as well. :D

anabananakins Explorer
anabananakins
Posted

Ohhh,she's giving gluten intolerance a bad name! I test negative to celiac but I get really sick if I get contaminated. I feel rotten right now and I can't even work out what got me :(

K8ling Enthusiast
K8ling
Posted
  • Author

yeah I almost fell over out of shock. No WAY I could eat the stuff the great Aunt does!!

srall Contributor
srall
Posted

Ohhh,she's giving gluten intolerance a bad name! I test negative to celiac but I get really sick if I get contaminated. I feel rotten right now and I can't even work out what got me :(

I guess technically I'm gluten intolerant since I'm self diagnosed. But I get sick very easily from cc or other offending foods. Ate out last night...paying today. I guess gluten intolerance is on a continuum. I could never take the meat off a sandwich and not get sick. And pizza topping is out of the question since I can't have dairy. I guess as long as your husband can control what goes in his body he doesn't have to worry too much about educating his family.

srall Contributor
srall
Posted

Oh and K8ling, I'd pack your own food when you go!

Rowena Rising Star
Rowena
Posted

Oh dear. This reminds me of day 3 of being gluten free when my mom tried to convince me pie was okay. My families are supportive of me in this diet, but yeah people certainly need to be educated about what celiac disease/ gluten intolerance is. It sounds to me like your great-aunt is doing a "gluten-free" diet as if doing the fad diet, if that. But not to judge. I think people just don't understand how serious it can be, and cc is a horrid thing even for a gluten-intolerant.

But I know now that my family needs to be HIGHLY trained in cc courses. Like for heaven's sake, if it touches something gluteny then I can't eat it. And besides, I'm sure that the pumpkin filling my mom uses has gluten in it or has a risk of CC. So even if it were possible for me to eat everything but the crust, it wouldn't work.

I say bring your own food to that Christmas party. I'm gonna have to do that for my family, that's for sure. *is suddenly reminded of something* Dang no rolling or eating my favorite canneloni! Or stollen. Those are my favorite parts of christmas.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MelindaLee Contributor
MelindaLee
Posted

*is suddenly reminded of something* Dang no rolling or eating my favorite canneloni! Or stollen. Those are my favorite parts of christmas.

It seems to me....when looking through gluten-free cook books yesterday....I saw a recipie for canneloni. I checked the book I bought, and it's not in there....maybe try googling a gluten-free recipie. :o

Rowena Rising Star
Rowena
Posted

It seems to me....when looking through gluten-free cook books yesterday....I saw a recipie for canneloni. I checked the book I bought, and it's not in there....maybe try googling a gluten-free recipie. :o

maybe I will do that, or I will still my mom's recipe and make it safe to eat. I am awesome with experimenting so I am sure I could come up with a good alternative. Did that very thing with my cookies today....

anabananakins Explorer
anabananakins
Posted

I guess technically I'm gluten intolerant since I'm self diagnosed. But I get sick very easily from cc or other offending foods. Ate out last night...paying today. I guess gluten intolerance is on a continuum. I could never take the meat off a sandwich and not get sick. And pizza topping is out of the question since I can't have dairy. I guess as long as your husband can control what goes in his body he doesn't have to worry too much about educating his family.

On a continuum is a good way of describing it. I couldn't do those things either, but apparently, I don't have it to the degree of it being an autoimmune disease. Though my balance has been shot lately, I'm getting glutened over and over on my trip so glluten intolerance is worse than just gastro stuff. So yes, a continuum!

lynnelise Apprentice
lynnelise
Posted

At my nephew's party they served Subway sandwiches and my mother-in-law was trying to get me to pick the meat and cheese off. She just couldn't understand that it still wasn't safe.

Maybe I'm wrong, but I always suspect that people like the great aunt are getting quite a bit more gluten than they think and that if they were to totally eliminate it for a bit and then try picking the toppings of the pizza they would react like you or I do.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop...
    2. tiffanygosci
      - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products...
    3. tiffanygosci
      - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache...
    4. trents
      - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women...
    5. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,980
    • Most Online (within 30 mins)
      7,748
    Susan Upchurch
    Newest Member
    Susan Upchurch
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By tiffanygosci · Posted

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      New Celiac Mama in My 30s

      By trents · Posted

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.