Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Having Major Problems

Kimeran

By Kimeran
in Coping with Celiac Disease

Recommended Posts

Kimeran Newbie
Kimeran
Posted

hey all. just got back from my honeymoon where i was sick for most of the trip regardless of avoiding dairy and gluten.

today i am still feeling extrememly sick with severe stomach pain and nausea and i have not had any gluten or dairy.

all i had today was a scrambled egg with some leftover steak for breakfast. I am 100% positive that this had no CC as i do not even keep gluten in the house.

I also had some hot tea as I have a soar throat. THIS and the splenda used to sweeten it was double checked to make sure there was no gluten.

THE only other thing that could be a problem is the throat drops for my soar throat. THIS Was also double checked to have no gluten.

I have not idea what it could be and I don't think this is normal. DOEs anyone have any suggestions?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lynnelise Apprentice
lynnelise
Posted

I have some Hall's sore throat drops and they are supposed to be gluten free. However, they do have glucose syrup in them which can be derived from wheat starch but supposedly has so little ppm of gluten that it isn't supposed to cause reactions. Nonetheless, I've heard people say they have reacted to glucose syrup so it could be the drops for your sore throat.

T.H. Community Regular
T.H.
Posted

So sorry for you!

Well, re: the gluten? Could be the splenda or the throat drops, because unfortunately 'gluten free' does not actually mean 'no gluten.' It just means less than a certain amount of gluten (and that amount is determined by country), and there are varying levels of sensitivity to gluten, so some people will still react to some products that are 'gluten free.'

In the studies that I've read, they've looked at some people, eating very gluten free, who have refractory celiac disease. A number of them improved when they lowered their gluten level even further.

Also, we've experienced something that I know a few others have, namely that our reactions get worse the longer we're off of gluten. Now, I don't know if you get more sensitive to gluten, too, sometimes, or if the reactions being worse just let you know that something is not good for you, but I DO know that both my daughter and I have foods now that we can't eat that we ate without noticing a problem a few months ago (we've only been gluten-free for a little over a year, now)

We try to eat them now, we get really sick. So...might want to try and drop the sweetener and cough drop and see how it goes. Couldn't hurt, anyway! :)

ksymonds84 Enthusiast
ksymonds84
Posted

Splenda gives me stomach cramps and other digestive problems

jerseyangel Proficient
jerseyangel
Posted

Splenda gives me stomach cramps and other digestive problems

It does to me also, plus migraine headaches.

GFinDC Veteran
GFinDC
Posted

I avoid any artificial sweetners now. I had problems with them also.

Marilyn R Community Regular
Marilyn R
Posted

What I've found, after being on a fairly restricted (but not total elimination diet) is that you have a reaction to food intolerances roughly 10-24 hours after injesting it, and the after effects last longer. Food allergy reactions occur quicker, are more immediately severe, but don't last as long. That's my body, not sure if anyone else is the same.

Some of the attacks sneak up on you, some of them pounce. It makes this all so confouunding at times.

I'm so very sorry that you were sick during your honeymoon, and wish you good health!

I'd try to eliminate soy before eggs, but you never know until you try! Good luck...and I wish you a long and happy marriage!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenFreeManna Rising Star
GlutenFreeManna
Posted

hey all. just got back from my honeymoon where i was sick for most of the trip regardless of avoiding dairy and gluten.

today i am still feeling extrememly sick with severe stomach pain and nausea and i have not had any gluten or dairy.

all i had today was a scrambled egg with some leftover steak for breakfast. I am 100% positive that this had no CC as i do not even keep gluten in the house.

I also had some hot tea as I have a soar throat. THIS and the splenda used to sweeten it was double checked to make sure there was no gluten.

THE only other thing that could be a problem is the throat drops for my soar throat. THIS Was also double checked to have no gluten.

I have not idea what it could be and I don't think this is normal. DOEs anyone have any suggestions?

Where did you go on your honeymoon and what did you eat? Any chance of food poisioning instead of gluten?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,993
    • Most Online (within 30 mins)
      7,748
    Kelly C
    Newest Member
    Kelly C
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.