Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Having Major Problems


Kimeran

Recommended Posts

Kimeran Newbie

hey all. just got back from my honeymoon where i was sick for most of the trip regardless of avoiding dairy and gluten.

today i am still feeling extrememly sick with severe stomach pain and nausea and i have not had any gluten or dairy.

all i had today was a scrambled egg with some leftover steak for breakfast. I am 100% positive that this had no CC as i do not even keep gluten in the house.

I also had some hot tea as I have a soar throat. THIS and the splenda used to sweeten it was double checked to make sure there was no gluten.

THE only other thing that could be a problem is the throat drops for my soar throat. THIS Was also double checked to have no gluten.

I have not idea what it could be and I don't think this is normal. DOEs anyone have any suggestions?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lynnelise Apprentice

I have some Hall's sore throat drops and they are supposed to be gluten free. However, they do have glucose syrup in them which can be derived from wheat starch but supposedly has so little ppm of gluten that it isn't supposed to cause reactions. Nonetheless, I've heard people say they have reacted to glucose syrup so it could be the drops for your sore throat.

T.H. Community Regular

So sorry for you!

Well, re: the gluten? Could be the splenda or the throat drops, because unfortunately 'gluten free' does not actually mean 'no gluten.' It just means less than a certain amount of gluten (and that amount is determined by country), and there are varying levels of sensitivity to gluten, so some people will still react to some products that are 'gluten free.'

In the studies that I've read, they've looked at some people, eating very gluten free, who have refractory celiac disease. A number of them improved when they lowered their gluten level even further.

Also, we've experienced something that I know a few others have, namely that our reactions get worse the longer we're off of gluten. Now, I don't know if you get more sensitive to gluten, too, sometimes, or if the reactions being worse just let you know that something is not good for you, but I DO know that both my daughter and I have foods now that we can't eat that we ate without noticing a problem a few months ago (we've only been gluten-free for a little over a year, now)

We try to eat them now, we get really sick. So...might want to try and drop the sweetener and cough drop and see how it goes. Couldn't hurt, anyway! :)

ksymonds84 Enthusiast

Splenda gives me stomach cramps and other digestive problems

jerseyangel Proficient

Splenda gives me stomach cramps and other digestive problems

It does to me also, plus migraine headaches.

GFinDC Veteran

I avoid any artificial sweetners now. I had problems with them also.

Marilyn R Community Regular

What I've found, after being on a fairly restricted (but not total elimination diet) is that you have a reaction to food intolerances roughly 10-24 hours after injesting it, and the after effects last longer. Food allergy reactions occur quicker, are more immediately severe, but don't last as long. That's my body, not sure if anyone else is the same.

Some of the attacks sneak up on you, some of them pounce. It makes this all so confouunding at times.

I'm so very sorry that you were sick during your honeymoon, and wish you good health!

I'd try to eliminate soy before eggs, but you never know until you try! Good luck...and I wish you a long and happy marriage!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

hey all. just got back from my honeymoon where i was sick for most of the trip regardless of avoiding dairy and gluten.

today i am still feeling extrememly sick with severe stomach pain and nausea and i have not had any gluten or dairy.

all i had today was a scrambled egg with some leftover steak for breakfast. I am 100% positive that this had no CC as i do not even keep gluten in the house.

I also had some hot tea as I have a soar throat. THIS and the splenda used to sweeten it was double checked to make sure there was no gluten.

THE only other thing that could be a problem is the throat drops for my soar throat. THIS Was also double checked to have no gluten.

I have not idea what it could be and I don't think this is normal. DOEs anyone have any suggestions?

Where did you go on your honeymoon and what did you eat? Any chance of food poisioning instead of gluten?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,335
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.