Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Having Major Problems

Kimeran

By Kimeran
in Coping with Celiac Disease

Recommended Posts

Kimeran Newbie
Kimeran
Posted

hey all. just got back from my honeymoon where i was sick for most of the trip regardless of avoiding dairy and gluten.

today i am still feeling extrememly sick with severe stomach pain and nausea and i have not had any gluten or dairy.

all i had today was a scrambled egg with some leftover steak for breakfast. I am 100% positive that this had no CC as i do not even keep gluten in the house.

I also had some hot tea as I have a soar throat. THIS and the splenda used to sweeten it was double checked to make sure there was no gluten.

THE only other thing that could be a problem is the throat drops for my soar throat. THIS Was also double checked to have no gluten.

I have not idea what it could be and I don't think this is normal. DOEs anyone have any suggestions?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lynnelise Apprentice
lynnelise
Posted

I have some Hall's sore throat drops and they are supposed to be gluten free. However, they do have glucose syrup in them which can be derived from wheat starch but supposedly has so little ppm of gluten that it isn't supposed to cause reactions. Nonetheless, I've heard people say they have reacted to glucose syrup so it could be the drops for your sore throat.

T.H. Community Regular
T.H.
Posted

So sorry for you!

Well, re: the gluten? Could be the splenda or the throat drops, because unfortunately 'gluten free' does not actually mean 'no gluten.' It just means less than a certain amount of gluten (and that amount is determined by country), and there are varying levels of sensitivity to gluten, so some people will still react to some products that are 'gluten free.'

In the studies that I've read, they've looked at some people, eating very gluten free, who have refractory celiac disease. A number of them improved when they lowered their gluten level even further.

Also, we've experienced something that I know a few others have, namely that our reactions get worse the longer we're off of gluten. Now, I don't know if you get more sensitive to gluten, too, sometimes, or if the reactions being worse just let you know that something is not good for you, but I DO know that both my daughter and I have foods now that we can't eat that we ate without noticing a problem a few months ago (we've only been gluten-free for a little over a year, now)

We try to eat them now, we get really sick. So...might want to try and drop the sweetener and cough drop and see how it goes. Couldn't hurt, anyway! :)

ksymonds84 Enthusiast
ksymonds84
Posted

Splenda gives me stomach cramps and other digestive problems

jerseyangel Proficient
jerseyangel
Posted

Splenda gives me stomach cramps and other digestive problems

It does to me also, plus migraine headaches.

GFinDC Veteran
GFinDC
Posted

I avoid any artificial sweetners now. I had problems with them also.

Marilyn R Community Regular
Marilyn R
Posted

What I've found, after being on a fairly restricted (but not total elimination diet) is that you have a reaction to food intolerances roughly 10-24 hours after injesting it, and the after effects last longer. Food allergy reactions occur quicker, are more immediately severe, but don't last as long. That's my body, not sure if anyone else is the same.

Some of the attacks sneak up on you, some of them pounce. It makes this all so confouunding at times.

I'm so very sorry that you were sick during your honeymoon, and wish you good health!

I'd try to eliminate soy before eggs, but you never know until you try! Good luck...and I wish you a long and happy marriage!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenFreeManna Rising Star
GlutenFreeManna
Posted

hey all. just got back from my honeymoon where i was sick for most of the trip regardless of avoiding dairy and gluten.

today i am still feeling extrememly sick with severe stomach pain and nausea and i have not had any gluten or dairy.

all i had today was a scrambled egg with some leftover steak for breakfast. I am 100% positive that this had no CC as i do not even keep gluten in the house.

I also had some hot tea as I have a soar throat. THIS and the splenda used to sweeten it was double checked to make sure there was no gluten.

THE only other thing that could be a problem is the throat drops for my soar throat. THIS Was also double checked to have no gluten.

I have not idea what it could be and I don't think this is normal. DOEs anyone have any suggestions?

Where did you go on your honeymoon and what did you eat? Any chance of food poisioning instead of gluten?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. McKinleyWY
      - McKinleyWY replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Accuracy of testing concerns

      I sure appreciate the information. I knew there had to be gluten consumption for the blood test, but I did not realize that also applied to biopsies. Thank you so much for that nugget of knowledge. I look forward to learning more as I dive into this website and the collective knowledge, experience, and wisdom from those who have gone before and/or those...
    2. Scott Adams
      - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in ...
    3. Scott Adams
      - Scott Adams replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Low iron and vitamin d

      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also ...
    4. Scott Adams
      - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Healthy Gluten Free Foods low sugar that you found?

      A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those...
    5. Scott Adams
      - Scott Adams replied to lizzie42's topic in Traveling with Celiac Disease
      1

      Trip to Anaheim/Disney

      This article is a few of years old, but my still be helpful.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,245
    • Most Online (within 30 mins)
      7,748
    Christine Ranalli
    Newest Member
    Christine Ranalli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      I sure appreciate the information. I knew there had to be gluten consumption for the blood test, but I did not realize that also applied to biopsies. Thank you so much for that nugget of knowledge. I look forward to learning more as I dive into this website and the collective knowledge, experience, and wisdom from those who have gone before and/or those who are just beginning the journey like me. Marilyn 
    • Scott Adams
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Scott Adams · Posted

      Thank you for sharing this — it’s really important. The FDA is actively seeking public input on improving gluten and ingredient labeling, which could directly impact how people with celiac disease and gluten sensitivity shop and stay safe. Clearer labeling would help reduce accidental gluten exposure and make it easier to identify hidden sources of gluten in foods. I encourage everyone here who is affected by celiac or gluten sensitivity to read the announcement and submit their own suggestions — real lived experience matters and can influence policy changes that benefit the whole community.
    • Scott Adams
      Low iron and vitamin d

      By Scott Adams · Posted

      A low tTG is great news, but it doesn’t always mean the small intestine has fully healed yet—iron and vitamin D absorption can lag behind for months or even years, especially in young children. Many kids need supplements for a period of time while the gut repairs itself, and that doesn’t necessarily mean it will be lifelong. Morning stomach pain is also commonly reported in celiac kids and can be related to slow healing, reflux, motility, or even low iron itself. It sounds like the supplements are clearly helping, which is reassuring, and ongoing monitoring with her doctor can help determine when (or if) doses can be reduced as absorption improves. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. This article has more info:    
    • Scott Adams
      Healthy Gluten Free Foods low sugar that you found?

      By Scott Adams · Posted

      A lot of gluten-free packaged foods do rely on extra sugar, starches, or sodium to replace texture and flavor, so focusing on simpler options makes sense. Many people do better with naturally gluten-free proteins like eggs, plain yogurt, nuts, seeds, hummus, beans, and minimally processed protein bars with lower added sugar and higher fiber. Pairing those with whole foods can help you feel more “normal” without triggering symptoms. Subscription boxes can be hit or miss, so checking labels carefully and using them as an occasional supplement—rather than a staple—often works best.
    • Scott Adams
      Trip to Anaheim/Disney

      By Scott Adams · Posted

      This article is a few of years old, but my still be helpful.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.