Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamin D Deficiency


glutengal

Recommended Posts

glutengal Contributor

My daughter has been gluten free for a year and a half now. She tested negative for celiac by blood and biopsy. Being gluten free has helped tremendously with the headache and stomach pains however, she was diagnosed 3 months ago with eosinophilic esophagitis. Her GI has said to eliminate the eight major food allergens (gluten/wheat,dairy, soy, eggs, peanuts/tree nuts, fish/shellfish) and has put her on Flovent. My questions is how does she get the proper amount of Vitamin D in her diet when she can't eat eggs, dairy or fish? I have asked the Dr. but don't get any answer but supplements and am not sure how much to even give her. Are supplements the only option? She is 26 years old. She is hypothyroid and has a history of brain tumor.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eeyore Collaborator

Supplements do work (I know because I was extremely deficient in Vitamin D and now I'm in the lower-normal range), but spending time in the sunshine helps produce Vitamin D as well. One problem you may have is that most if not all Vitamin D supplements are made from fish oil, so I think that her best option is spending time outside. Hope this helps!

BRUMI1968 Collaborator

Hi. Most vitamin D does not come from food for us, it comes from the sun. I don't know where you live but I assume it's in the northern hemisphere, which means we're getting out of the sunny season.

Supplements are practically mandatory for everyone in North America - and D2 is the supplement you want, NOT D3. It is also important to have Vit. A to absorb properly the Vit. D.

When sunshine comes back, don't use sunscreen for at least part of the day, and get at least enough sun to get your skin barely pink. Once your skin is pink, you are no longer absorbing the D.

D is so important - they actually say it is not really a vitamin but a hormone. Anyway, I would definitely supplement with Vitamin D2. Check out mercola.com about Vitamin D. He has a lot to say about it. You certainly don't have to buy his Vitamin D supplement, but there's lots of good info on Vitamin D on his site.

Good luck.

glutengal Contributor

Hi. Most vitamin D does not come from food for us, it comes from the sun. I don't know where you live but I assume it's in the northern hemisphere, which means we're getting out of the sunny season.

Supplements are practically mandatory for everyone in North America - and D2 is the supplement you want, NOT D3. It is also important to have Vit. A to absorb properly the Vit. D.

When sunshine comes back, don't use sunscreen for at least part of the day, and get at least enough sun to get your skin barely pink. Once your skin is pink, you are no longer absorbing the D.

D is so important - they actually say it is not really a vitamin but a hormone. Anyway, I would definitely supplement with Vitamin D2. Check out mercola.com about Vitamin D. He has a lot to say about it. You certainly don't have to buy his Vitamin D supplement, but there's lots of good info on Vitamin D on his site.

Good luck.

Why is it vitamin d2 and not d3. Both of my parents are deficient and were told by their doctor to supplement with d3. What is the difference?

ravenwoodglass Mentor

Supplements are practically mandatory for everyone in North America - and D2 is the supplement you want, NOT D3. It is also important to have Vit. A to absorb properly the Vit. D.

Good luck.

D2 is made in a lab while D3 is a natural form often derived from fish oil. I have to respectfully disagree with 'Dr Mercola' that D2 is preferred. Perhaps it is his preference because that is the form he sells. D3 is the one that is most advised for us to take.

ravenwoodglass Mentor

Why is it vitamin d2 and not d3. Both of my parents are deficient and were told by their doctor to supplement with d3. What is the difference?

IMHO your doctor was giving you the right advice. Go with the natural D3 he advised rather than the lab made D2.

RiceGuy Collaborator

There's research showing that exposing certain types of mushrooms to just seconds of UV light magnifies the amount of vitamin D quite a lot. I agree that D3 is the one most often recommended. It does not have to come from fish however. Some use sheep's lanolin.

Here's a video on the subject of vitamin D, which I think has a lot of good info, including which test to ask for, as not all vitamin D deficiency tests are accurate:

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BRUMI1968 Collaborator

IMHO your doctor was giving you the right advice. Go with the natural D3 he advised rather than the lab made D2.

OH MY GOSH I'M SO SORRY ..DYSLEXIA ATTACK. It is D3 that is the natural one that is the better one to take. I'm so sorry. That is also the one Dr. Mercola talks about - and why you should choose it over D2.

Good luck.

ravenwoodglass Mentor

OH MY GOSH I'M SO SORRY ..DYSLEXIA ATTACK. It is D3 that is the natural one that is the better one to take. I'm so sorry. That is also the one Dr. Mercola talks about - and why you should choose it over D2.

Good luck.

I get those also, I call them brain farts. :D

glutengal Contributor

I get those also, I call them brain farts. :D

Thanks so much to all of you who replied. Is all D3 supplements derived from fish oil as my DD cannot have fish. thought the one i bought her at whole foods said no fish ingredients. She does not live at home with me so I will have to check the bottle next time I go see her. She cannot read so I can't have her check it. Hope the one I bought is ok.

RiceGuy Collaborator

There are vegetarian forms of D3. NOW Foods makes some, and there are a few others too, in varying potencies. Some combined with vitamin K2 or other nutrients as well.

missy'smom Collaborator

I didn't read the whole thread from the beginning but Carlson's makes a D3 supplement that is liquid drops. No fish. It is extracted from lanolin-sheep skin/wool. I couldn't do fish so called the manufacturer to verify. It is available in 1,000 or 2,000 units per drop so you can adjust depending on your needs. I've also used Healthy Origins D3 in a 2,400 IU softgel that is derived from olive oil.

missy'smom Collaborator

OK, I read back to the beginning. I was concerned about D so got tested through my primary care Doc. I am dairy-free due to allergy and mostly egg-free, very rarely get any egg and am free of most sources of D. I do eat salmon but have had to avoid many other fish for a year now. Anyway, labs came back with good circulating D but stores getting low so Doc recommended 2,000 IU D3. I had been supplementing with that much through the winter but stopped with warm weather and got 15 min unprotected sun per day as often as I could. Got labs done mid-summer. Hope that helps with perspective.

glutengal Contributor

I didn't read the whole thread from the beginning but Carlson's makes a D3 supplement that is liquid drops. No fish. It is extracted from lanolin-sheep skin/wool. I couldn't do fish so called the manufacturer to verify. It is available in 1,000 or 2,000 units per drop so you can adjust depending on your needs. I've also used Healthy Origins D3 in a 2,400 IU softgel that is derived from olive oil.

Thank you I will check into these.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    2. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    4. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    5. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.