Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Modified Food Starch - Avoid?


Robin-E

Recommended Posts

Robin-E Newbie

I've read conflicting articles about modified food starch, so wanted to check with some of you to see what your experience is with it. I've been avoiding it completely. I was diagnosed in March, but it seems recently that it doesn't take much at all for me to get really sick, so I'm pretty cautious. I've read that modified food starch is usually corn unless specified, but I've seen labels that have both modified food starch and modified corn starch, so I'd assume that mfs is wheat?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



scarlett77 Apprentice

I've read conflicting articles about modified food starch, so wanted to check with some of you to see what your experience is with it. I've been avoiding it completely. I was diagnosed in March, but it seems recently that it doesn't take much at all for me to get really sick, so I'm pretty cautious. I've read that modified food starch is usually corn unless specified, but I've seen labels that have both modified food starch and modified corn starch, so I'd assume that mfs is wheat?

It SHOULD be corn based if it is in the US, however, to be 100% sure you should always check with the manufacturer.

Personally, if it is a main stream widely known US brand I tend to trust it. If it is some unknown small or local brand then I will call and check.

Skylark Collaborator

In the US, if the food starch is derived from wheat it must be declared a "wheat ingredient" on the label.

polarbearscooby Explorer

I find myself avoiding it too because I'm SUPER sensitive...

psawyer Proficient

In the US, as stated, if it is wheat that fact must be clearly disclosed. It is most commonly tapioca* or corn. It is never rye or barley, so in the US if it does not say wheat then it is gluten-free.

*Some people, including some celiacs, are sensitive to tapioca.

polarbearscooby Explorer

In the US, as stated, if it is wheat that fact must be clearly disclosed. It is most commonly tapioca* or corn. It is never rye or barley, so in the US if it does not say wheat then it is gluten-free.

*Some people, including some celiacs, are sensitive to tapioca.

I have a newly diagnosed friend who LOVES tapioca and has been experiencing some glutened symptoms recently...could it be related to the tapioca?

lovegrov Collaborator

It SHOULD be corn based if it is in the US, however, to be 100% sure you should always check with the manufacturer.

Personally, if it is a main stream widely known US brand I tend to trust it. If it is some unknown small or local brand then I will call and check.

As others have said, if it's from wheat It MUST say so. No need to call anybody.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I have a newly diagnosed friend who LOVES tapioca and has been experiencing some glutened symptoms recently...could it be related to the tapioca?

There are people on here who have said they have trouble with tapioca.

jerseyangel Proficient

I have a newly diagnosed friend who LOVES tapioca and has been experiencing some glutened symptoms recently...could it be related to the tapioca?

It's possible to be intolerant to tapioca--I am particularly sensitive to it. It's not related to gluten, but a separate sensitivity. I get a very dry mouth from the time I take a bite and later, stomach pain. It's different from my gluten reaction.

Your friend could try omitting tapioca for a week or so and then trying it alone and see how she feels. This approach is the best way to ferret out problem foods.

julandjo Explorer

There are people on here who have said they have trouble with tapioca.

My daughter and I both have major problems with tapioca.

  • 1 year later...
dustynbob Newbie

How can we be sure the item with the ingredient "modified food starch" is a made in America product? So much has some components made in another country.

psawyer Proficient

How can we be sure the item with the ingredient "modified food starch" is a made in America product? So much has some components made in another country.

You can't, but if it is sold in the US, it must conform to US label regulations, and wheat, if present, must be disclosed. I personally haven't encountered modified wheat starch in over a decade on the diet.

sandsurfgirl Collaborator

I've seen wheat starch a couple of times but clearly labeled.

Tapioca and I are not really friends. I don't get super sick from it but I do get minor issues sometimes. I'm sparing with it and I don't eat it often.

  • 8 months later...
Beth P. Newbie

I've been puzzled by the "modified food starch" for a long time also. Fanta orange pop (and other flavors) say that on the label. & I've always been wary of it. There is a high-end grocery store in my town that has another brand of pop for sale right next to the Fanta. It carries a Gluten-Free label, as if to suggest that the other brands are not. I don't know where Fanta is made, since I don't have a bottle in front of me, but I will stop worrying about it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    3. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    5. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,340
    • Most Online (within 30 mins)
      7,748

    Abbyyoung417
    Newest Member
    Abbyyoung417
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.