Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Fertility?


K8ling

Recommended Posts

K8ling Enthusiast

Well, it's happened again, guys. My husband got back from the desert a few weeks ago and I am 3 weeks late. I went to a new OB today who said my fertility issues could be related to

CELIAC!!

I had no idea it could affect it to this extent! Hopefully I AM pregnant but if I am not, I am going to start on shots to kind of reset my body.

Can any of you help me out with this? Have any of you had fertility issues stemming from Celiac?

I am so confused.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Did they do a pregnancy test?

Skylark Collaborator

*fingers crossed*

Yes, lots of people around here have suddenly gotten pregnant when they went gluten-free. You're pretty new to the diet so you might want to give it a little more time before you start getting shots and whatnot. I'd say to go at least a year gluten-free first.

srall Contributor

I cannot say for certain, but my opinion is that my unexplained secondary infertility was because of my gluten intolerance.

twinkle-toez Apprentice

While I've never tried to actually conceive children, my menstrual cycles have been irregular since, well since I started menstruating 13 years ago. I was diagnosed in the summer of 2009 with polycystic ovarian syndrome, a shock to everyone as I am NOT the typical phenotype (I"m very slim, heavily involved in athletics, normal glucose tolerance and not insulin resistant, no hirutism, only mild acne, etc). Anyway, when I wasn't on the pill I'd average a period once every 4-6 months.

I eliminated gluten from my diet in July, and aside from two accidental glutening since then, I have been totally gluten free. My period in October came only one week late, and my period in November was exactly on time at the four week mark.

While I know that PCOS isn't exactly unexplained infertility per se, it certainly does not make sense in my case that I should have the syndrome, and I personally believe that for me, the PCOS is linked to gluten consumption.

Philippa Rookie

Oops, my computer is acting up.

I meant to say, I believe I have had issues with celiac and fertility. I had 7 miscarriages over 10 years. Many tests were done and no cause was found. I had one successful pregnancy during that time. Oddly enough I was on prednisone during that pregnancy (treatment for unexplained miscarriage). I don't know if it was just a fluke, or if it was the prednisone. Given that celiac is an autoimmune disease it does make me go hmmm.

Now my family doctor says maybe the celiac caused the miscarriages But who can say for sure. The other thing that was different with that pregnancy is that I was taking a lot of vitamins. I'd seen a naturopath.

Hopefully you are pregnant and everything is good! Have you had trouble getting pregnant? I have heard that celiac can cause infertility as well as miscarriages.

SheaLynne Newbie

I also do not have definite proof, but believe that secondary infertility issues have been related to gluten. I started menstruating at age 14, and had light and often skipped periods until I was in college. By my late 20s when dh and I were trying to conceive, it took about 6 months for us to conceive (not too unusual, so thought nothing of it other than that my sister gets pg if she thinks about it!). Then we started trying for a 2nd 2.5 years after that one was born, and it took over 2 years. By then I was showing possible short luteal phase (so cycles tended to be short). Since that birth almost 6 years ago, we have not prevented anything, but have not opted for any fertility treatments and nothing has happened.

When I went gluten free for the first time nearly a year ago, I immediately skipped two periods. Since then (fully gluten-free for the past 6 months) I have been more regular than I have in years. There's no doubt that it has affected my menstrual cycle in some ways. I'm not pregnant, but I'm 40, so that may be pretty low odds by now any which way.

I hope you get the results you want and have no issues from celiac and infertility/miscarriage. I'm very fortunate to be able to be a mother, and I am ever grateful for it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



K8ling Enthusiast

Thanks for all the support guys. I went today and the urine test was negative. The thing is, it would have been HUGELY off cycle...My husband returned 11/3 and my period was supposed to start 11/6. So I am SO confused. She said I would be 6 weeks but thats not fair to measure from October because Sean wasn't even home until 11/3!!!! Gah.

So they took blood, and we'll go from there. As I type this I am nauseous, and I weigh the same but it seems like I have some extra padding at the front (I couldn't button my jeans this morning). I know it's not psychosomatic because after that many miscarriages you kind of tend to take everything with a grain of salt. I really expect the test to come back negative. I just want to know why I feel like this!! If I am pregnant, awesome. But if I am not? C'mon body! Work with me!

I am usually like clock work which is why it's a little odd that I am late at all. Gah.

ravenwoodglass Mentor

The stress of having your hubby home could throw off your periods. It isn't just bad stress that can do that good stress can also. Celiac can definately lead to fertility issues and miscarriages but the doctors don't really know why. At one time it was thought to be nutritional issues but research has shown that is not the case. It is still a medical mystery but they do know that many celiacs have a hard time concieving and carrying when they are still consuming gluten. In most cases things normalize after we have been gluten free for a while.

SGWhiskers Collaborator

I'm sorry you are going through this stress again. Raven's right. Stress can really affect your cycle. My periods will start on a weekend all but once or twice a year dispite being somewhat irregular (4-6 weeks). I know it is the stress of the work week that makes my body wait to ovulate until the weekend.

Unfortunately with celiac, our fertility really does get messed up quite badly. That stress isn't good for us either. Take care of yourself and when hubby comes home and you are ready to try again, consider seeing a reproductive endocrinologist who can do a little blood work to see if your body is ready. Stick to that diet and hugs to you and your son.

polarbearscooby Explorer

So I was gonna start a new topic, but this seems as good a place as any to ask....And it's kinda hard to ask because it's embarrassing.

I'm 20 years old, and I've had rough periods ever since I was 13 and had a cyst so huge rupture they thought it was my appendix, I was sick as a dog. The pill helped, but I've had to go off it for a few different reasons including money :P And now my periods are AWFUL again, especially since I got glutened right before this one. So I guess my question is, is this normal for someone with Celiac? Or is it unrelated? It seems every woman in my ENTIRE family has troubles like these.... Most of the women in my family have fertility issues too.....

Sorry for hyjacking.... :-/

K8ling Enthusiast

I had really horrible periods ON the pill. It also killed my sex drive. The only problem now is apparently I don't have ANY periods LOL

kareng Grand Master

So I was gonna start a new topic, but this seems as good a place as any to ask....And it's kinda hard to ask because it's embarrassing.

I'm 20 years old, and I've had rough periods ever since I was 13 and had a cyst so huge rupture they thought it was my appendix, I was sick as a dog. The pill helped, but I've had to go off it for a few different reasons including money :P And now my periods are AWFUL again, especially since I got glutened right before this one. So I guess my question is, is this normal for someone with Celiac? Or is it unrelated? It seems every woman in my ENTIRE family has troubles like these.... Most of the women in my family have fertility issues too.....

Sorry for hyjacking.... :-/

In case you want to go back on the pill:

Unless you are at a Catholic College, you might be able together the pill inexpensively at the Student Health Ct. If your college has a med school, usually discounts for students. Planned parenthood will do a basic exam and prescribe the pill inexpensively. County health services do this, too.

polarbearscooby Explorer

In case you want to go back on the pill:

Unless you are at a Catholic College, you might be able together the pill inexpensively at the Student Health Ct. If your college has a med school, usually discounts for students. Planned parenthood will do a basic exam and prescribe the pill inexpensively. County health services do this, too.

Thanks, I've got the RX for it from my doctor so now problem there, just had a bit of a tight budget lately... And since I've never been, um, active, It wasn't to high on my priority list until this month, I've never had a glutening and this at the same time.... I still wanna just crawl in a hole and possibly kill all males.. roflol

K8ling Enthusiast

I totally remember that feeling LOL. Feel better!!!

firefightersgal Apprentice

After two years of inexplicable secondary infertility and one miscarriage, my OB and I are certain that gluten intolerance has been the cause of my problems. He said that Celiac Disease can certainly lead to both issues.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,540
    • Most Online (within 30 mins)
      7,748

    Nina J
    Newest Member
    Nina J
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.