Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Fertility?


K8ling

Recommended Posts

K8ling Enthusiast

Well, it's happened again, guys. My husband got back from the desert a few weeks ago and I am 3 weeks late. I went to a new OB today who said my fertility issues could be related to

CELIAC!!

I had no idea it could affect it to this extent! Hopefully I AM pregnant but if I am not, I am going to start on shots to kind of reset my body.

Can any of you help me out with this? Have any of you had fertility issues stemming from Celiac?

I am so confused.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Did they do a pregnancy test?

Skylark Collaborator

*fingers crossed*

Yes, lots of people around here have suddenly gotten pregnant when they went gluten-free. You're pretty new to the diet so you might want to give it a little more time before you start getting shots and whatnot. I'd say to go at least a year gluten-free first.

srall Contributor

I cannot say for certain, but my opinion is that my unexplained secondary infertility was because of my gluten intolerance.

twinkle-toez Apprentice

While I've never tried to actually conceive children, my menstrual cycles have been irregular since, well since I started menstruating 13 years ago. I was diagnosed in the summer of 2009 with polycystic ovarian syndrome, a shock to everyone as I am NOT the typical phenotype (I"m very slim, heavily involved in athletics, normal glucose tolerance and not insulin resistant, no hirutism, only mild acne, etc). Anyway, when I wasn't on the pill I'd average a period once every 4-6 months.

I eliminated gluten from my diet in July, and aside from two accidental glutening since then, I have been totally gluten free. My period in October came only one week late, and my period in November was exactly on time at the four week mark.

While I know that PCOS isn't exactly unexplained infertility per se, it certainly does not make sense in my case that I should have the syndrome, and I personally believe that for me, the PCOS is linked to gluten consumption.

Philippa Rookie

Oops, my computer is acting up.

I meant to say, I believe I have had issues with celiac and fertility. I had 7 miscarriages over 10 years. Many tests were done and no cause was found. I had one successful pregnancy during that time. Oddly enough I was on prednisone during that pregnancy (treatment for unexplained miscarriage). I don't know if it was just a fluke, or if it was the prednisone. Given that celiac is an autoimmune disease it does make me go hmmm.

Now my family doctor says maybe the celiac caused the miscarriages But who can say for sure. The other thing that was different with that pregnancy is that I was taking a lot of vitamins. I'd seen a naturopath.

Hopefully you are pregnant and everything is good! Have you had trouble getting pregnant? I have heard that celiac can cause infertility as well as miscarriages.

SheaLynne Newbie

I also do not have definite proof, but believe that secondary infertility issues have been related to gluten. I started menstruating at age 14, and had light and often skipped periods until I was in college. By my late 20s when dh and I were trying to conceive, it took about 6 months for us to conceive (not too unusual, so thought nothing of it other than that my sister gets pg if she thinks about it!). Then we started trying for a 2nd 2.5 years after that one was born, and it took over 2 years. By then I was showing possible short luteal phase (so cycles tended to be short). Since that birth almost 6 years ago, we have not prevented anything, but have not opted for any fertility treatments and nothing has happened.

When I went gluten free for the first time nearly a year ago, I immediately skipped two periods. Since then (fully gluten-free for the past 6 months) I have been more regular than I have in years. There's no doubt that it has affected my menstrual cycle in some ways. I'm not pregnant, but I'm 40, so that may be pretty low odds by now any which way.

I hope you get the results you want and have no issues from celiac and infertility/miscarriage. I'm very fortunate to be able to be a mother, and I am ever grateful for it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



K8ling Enthusiast

Thanks for all the support guys. I went today and the urine test was negative. The thing is, it would have been HUGELY off cycle...My husband returned 11/3 and my period was supposed to start 11/6. So I am SO confused. She said I would be 6 weeks but thats not fair to measure from October because Sean wasn't even home until 11/3!!!! Gah.

So they took blood, and we'll go from there. As I type this I am nauseous, and I weigh the same but it seems like I have some extra padding at the front (I couldn't button my jeans this morning). I know it's not psychosomatic because after that many miscarriages you kind of tend to take everything with a grain of salt. I really expect the test to come back negative. I just want to know why I feel like this!! If I am pregnant, awesome. But if I am not? C'mon body! Work with me!

I am usually like clock work which is why it's a little odd that I am late at all. Gah.

ravenwoodglass Mentor

The stress of having your hubby home could throw off your periods. It isn't just bad stress that can do that good stress can also. Celiac can definately lead to fertility issues and miscarriages but the doctors don't really know why. At one time it was thought to be nutritional issues but research has shown that is not the case. It is still a medical mystery but they do know that many celiacs have a hard time concieving and carrying when they are still consuming gluten. In most cases things normalize after we have been gluten free for a while.

SGWhiskers Collaborator

I'm sorry you are going through this stress again. Raven's right. Stress can really affect your cycle. My periods will start on a weekend all but once or twice a year dispite being somewhat irregular (4-6 weeks). I know it is the stress of the work week that makes my body wait to ovulate until the weekend.

Unfortunately with celiac, our fertility really does get messed up quite badly. That stress isn't good for us either. Take care of yourself and when hubby comes home and you are ready to try again, consider seeing a reproductive endocrinologist who can do a little blood work to see if your body is ready. Stick to that diet and hugs to you and your son.

polarbearscooby Explorer

So I was gonna start a new topic, but this seems as good a place as any to ask....And it's kinda hard to ask because it's embarrassing.

I'm 20 years old, and I've had rough periods ever since I was 13 and had a cyst so huge rupture they thought it was my appendix, I was sick as a dog. The pill helped, but I've had to go off it for a few different reasons including money :P And now my periods are AWFUL again, especially since I got glutened right before this one. So I guess my question is, is this normal for someone with Celiac? Or is it unrelated? It seems every woman in my ENTIRE family has troubles like these.... Most of the women in my family have fertility issues too.....

Sorry for hyjacking.... :-/

K8ling Enthusiast

I had really horrible periods ON the pill. It also killed my sex drive. The only problem now is apparently I don't have ANY periods LOL

kareng Grand Master

So I was gonna start a new topic, but this seems as good a place as any to ask....And it's kinda hard to ask because it's embarrassing.

I'm 20 years old, and I've had rough periods ever since I was 13 and had a cyst so huge rupture they thought it was my appendix, I was sick as a dog. The pill helped, but I've had to go off it for a few different reasons including money :P And now my periods are AWFUL again, especially since I got glutened right before this one. So I guess my question is, is this normal for someone with Celiac? Or is it unrelated? It seems every woman in my ENTIRE family has troubles like these.... Most of the women in my family have fertility issues too.....

Sorry for hyjacking.... :-/

In case you want to go back on the pill:

Unless you are at a Catholic College, you might be able together the pill inexpensively at the Student Health Ct. If your college has a med school, usually discounts for students. Planned parenthood will do a basic exam and prescribe the pill inexpensively. County health services do this, too.

polarbearscooby Explorer

In case you want to go back on the pill:

Unless you are at a Catholic College, you might be able together the pill inexpensively at the Student Health Ct. If your college has a med school, usually discounts for students. Planned parenthood will do a basic exam and prescribe the pill inexpensively. County health services do this, too.

Thanks, I've got the RX for it from my doctor so now problem there, just had a bit of a tight budget lately... And since I've never been, um, active, It wasn't to high on my priority list until this month, I've never had a glutening and this at the same time.... I still wanna just crawl in a hole and possibly kill all males.. roflol

K8ling Enthusiast

I totally remember that feeling LOL. Feel better!!!

firefightersgal Apprentice

After two years of inexplicable secondary infertility and one miscarriage, my OB and I are certain that gluten intolerance has been the cause of my problems. He said that Celiac Disease can certainly lead to both issues.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.