Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Get Upper Back Spasms When Glutened?


Celiac15

Recommended Posts

Celiac15 Newbie

Hey there -

I am new to this site and it is so helpful. For years, I get upper back spasms when I am glutened and it lasts for about a week. It is so strange considering nobody else seems to have these symptoms. Of course, I get the headache, stomach bloating etc...but its the upper back spasms that are sometimes unbearable and make me so irritable. I use heat, ice, bengay, advil.

If anyone has this symptom, have you found anything that really works to alieve the symptoms? Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cypressmyst Explorer

I get all over back spasms. In fact its funny that you should ask because I'm having them now. <_<

Got glutened by soap that was mislabeled at a friends house tonight. Didn't eat anything or touch my mouth afterwards but I've got all the symptoms now, achy back spasms, foggy brain, headaches, cold hands. :( Within minutes of washing them too.

But you know...gluten can't get through the skin or anything... :rolleyes:

I've found that eating an apple sometimes helps alleviate some of the symptoms. Apples are detoxing fruits.

lcarter Contributor

Yes, I get spasms too, but more in the mid back area and usually after the bloating and diarrhea have subsided some. Interesting!

dilettantesteph Collaborator

I get them too. What helps me is to keep my back really strong with exercise. Also to keep it well supported by strong stomach muscles, also exercise, and limber, stretching exercises. I get lazy and stop doing all that and then go back to the back problems when glutened.

cap6 Enthusiast

and here I thought I was nuts! I get mid back pain so bad when glutened. That was one of my big 3 glutened symptoms.

Lesx2 Newbie

and here I thought I was nuts! I get mid back pain so bad when glutened. That was one of my big 3 glutened symptoms.

lower back for me... Massage, lots of water, and heating pad help me

twe0708 Community Regular

Hey there -

I am new to this site and it is so helpful. For years, I get upper back spasms when I am glutened and it lasts for about a week. It is so strange considering nobody else seems to have these symptoms. Of course, I get the headache, stomach bloating etc...but its the upper back spasms that are sometimes unbearable and make me so irritable. I use heat, ice, bengay, advil.

If anyone has this symptom, have you found anything that really works to alieve the symptoms? Thanks!

Not now but I used to before I went gluten-free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nadia2009 Enthusiast

I get muscle spasms too and mostly in the back. I used to wonder what it was when I was still eating gluten. My mom has a lot of spasm like that but she isn't excited to go for the test. I think I will end up paying the test for my whole family if I want them tested :)

  • 2 years later...
diva2000 Newbie

I had this happen to me really bad this week. I was getting back spasms for 3 days when I thought about taking an allergy pill. Just store brand chloriphenirine maleate, and it started relieving the spasms. I took it every 4 hours, and it got better and better. When I would forget, the back spasms would start up. After about 3 days of the allergy meds, it is getting to the point where I don't get the spasms when I forget a pill. Saved me big time! I thought I was going to have to go to the hospital.

  • 3 years later...
BeeGfree Newbie

I am newly diagnosed as celiac and have gotten mid back spasms 3x in 2 weeks. The 1st time I ingested something I knew was gluten my mid back actually locked.  That was one of the reasons I went to my GP for it in the first place. This week I went to my chiro twice for it.  When I asked him how it could be connected to celiac he told me your duodenum which is right below your esophagus in the front has nerve endings that go to the vertebrae in the middle of your shoulder blades.  That was how I found out that the 2 are connected.  Chiropractic helps with immediate relief every time...

  • 1 year later...
LiseJoy Newbie

Hello,

I am so relieved to be reading this post. I really thought I was losing my mind. I just had fried chicken from a take-out and pretty sure the batter had gluten. 5 minutes later I was in excruciating pain!! Still am:( 

I haven't been tested but amtrying to eat grain free as per recommendation of book: No Grain, No Pain.

Victoria1234 Experienced
2 hours ago, LiseJoy said:

Hello,

I am so relieved to be reading this post. I really thought I was losing my mind. I just had fried chicken from a take-out and pretty sure the batter had gluten. 5 minutes later I was in excruciating pain!! Still am:( 

I haven't been tested but amtrying to eat grain free as per recommendation of book: No Grain, No Pain.

Unless the fried chicken says it's gluten-free and you know they fried it in oil that's only had gluten-free foods in it, you can rest assured your fried chicken had gluten.

welcome to the board!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,643
    • Most Online (within 30 mins)
      7,748

    James W.
    Newest Member
    James W.
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I agree, there can be contamination at many points--milling is another possible source of contamination for any flours.
    • trents
      Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction in some people.
    • deanna1ynne
      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
    • Inkie
      Thanks for the replies. I already use a gluten-free brand of buckwheat flakes I occasionally get itchy bumps. I'm still reviewing all my food products. I occasionally eat prepackaged gluten-free crackers and cookies, so I'll stop using those. I use buckwheat flakes and Doves Farm flour as a base for baking. Would you recommend eliminating those as well? It's a constant search.
    • Wheatwacked
      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.