Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Advice ~Son Is Allergic To Something, Not Sure What


smiles01

Recommended Posts

smiles01 Newbie

Hi everyone, I feel so overwhelmed I don't know where to begin. I am the mom of a 23 yr. old son and I think he might be allergic to wheat but it could be celiac too. I am just now figuring this out tonight, but I could be wrong. I will call an allergist Monday. Anyhow, he has had so many different issues that we (me and his grandmother) have really gotten confused over the years. When he was just a few years old, he was diagnosed with atopic dermatitis and that continued on through to the age of about 5 and then it went away and he hasn't had it since. Through his teen years he would have some allergies that usually benadryl would handle. It is only in the last few years that he has had some problems that have been very scary. One day he gets sick feeling like he has the flu and goes to the dr. and they diagnose asthmatic bronchitis, they give him an antibiotic, steroid (that he hated and would never take) and an inhaler. He get's better and several months later, same thing, to the dr., diagnosed with the same, same meds and he gets better again. This went on for probably a year and a half. I kept trying to tell my son to remind the durn drs. how many times he has been sick and is there another issue here but he alway's came home with the same diagnosis (asthmatic bronchitis) and the same meds except for one time they changed his antibiotic and later that night his throat closed and we had to rush him to the ER. The dr. there said he was allergic to the antibiotic (I want to say this was the Zpack but am not sure since he was on so many antibiotics) It even seems like there were 2 antibiotics that did this to him. I do know he does well on the sulfa drugs and can take stuff like amoxicillin.

Ok, so that is some back history. He has the two times with his throat closing up due to antibiotics and then there were two times that the Uvula in his throat got so enlarged that he felt like his throat was closing up. Back to the dr. This time he say's "it's his allergies." Have him take zyrtec and here is a script for albuterol. So, it seemed to work. My son takes the 1 pill per day Zyrtec and he will be fine except if he misses he can't breathe, nose running, sneezing, etc.

The latest - several nights ago, he goes to play cards with the guys and has a few beers. He rarely drinks and this was the first time in over a year. He wakes Weds. morning and say's his throat is closing, can't breathe, takes 4 ibuprophen and his zyrtec and a while later he feels better. He wouldn't go to the dr. like I wanted him too. (The reason I mention the beer is because of the wheat and barley) He hates wheat bread and thinking of his diet, he doesn't have alot of wheat per se, but of course I am finding out it is in everything.

Tonight, he tells me like he has before over the past few years that he has been having a miserable time with digestive issues, mainly he will go poop at least 5 times a day for about 4 or 5 days out of the week and then for the other 2 or 3 he will not go at all. He has some internal hemorrhoids and he had some rectal bleeding tonight. Most of the time he keeps all of this to his self because I guess he is embarrassed but it's getting to him so he really confided in me tonight. I had no idea that the digestive issues were this bad.

So, what to do I thought? I went and read up about hemorrhoids at one of the medical help places and there was a guy on the message board that mentioned allergies to wheat and that he had been diagnosed with celiac disease. I googled celiac and saw that celiac disease has the digestive issues too.

To sum it up, the throat closing, the constant asthmatic bronchitis (that did slow way down with the zyrtec and flu shots) the atopic dermatis as a child, the uvula in the throat swelling and the digestive issues. Do you all think this could be celiac or maybe just a wheat allergy? I guess what I am wondering is all these various problems, could they all be tied together and making my dear son miserable? Sorry this is so longwinded, just wanting to give as much information as possible.

Thanks in advance for any info!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dixiebell Contributor

Hi!

It seems anything is possible with celiac and gluten intolerance. Some people have an additional allergy to wheat as well.

The blood tests are pretty easy, so I would say to start with those.

Total Iga serum

Tissue Transglutamas Iga & Igg

Antigliadin Iga & Igg

Endomysial Antibodies

smiles01 Newbie

Hi!

It seems anything is possible with celiac and gluten intolerance. Some people have an additional allergy to wheat as well.

The blood tests are pretty easy, so I would say to start with those.

Total Iga serum

Tissue Transglutamas Iga & Igg

Antigliadin Iga & Igg

Endomysial Antibodies

Thank you for listing what to ask the allergist for Dixiebell, I really appreciate it. He has Blue Cross Blue Shield which pays 80%. Do you happen to know if the tests will be covered under his insurance? I am also wondering if what he would have to pay on this visit would be alot. Regardless, I have to find a way to figure out what is wrong. The main concern for me is his throat closing up. I am so afraid this could happen somewhere and if it got bad he couldn't get to the hospital if needed and obviously, there is something causing this. The Uvula swelling up is another big concern. If you open your mouth and look at the size of yours for example and then picture that triple the size covering most of the throat. In all my years, I had never heard of anyone having a problem with that so it is new to me.

Thanks for listening, K.

Dixiebell Contributor

We just have a co-pay and what ins. doesn't cover they usually just send us a bill, usually not very much. Since there are so many different ins. plans, I would have him call the Dr office and ask for the cost of the tests or they could at least lead him in the right direction.

These are not allergy test, so not sure the allergist would run them but it wouldn't hurt to ask.

He definately needs to find out about his throat. Hopefully the allergist will find the answer for that.

smiles01 Newbie

We just have a co-pay and what ins. doesn't cover they usually just send us a bill, usually not very much. Since there are so many different ins. plans, I would have him call the Dr office and ask for the cost of the tests or they could at least lead him in the right direction.

These are not allergy test, so not sure the allergist would run them but it wouldn't hurt to ask.

He definately needs to find out about his throat. Hopefully the allergist will find the answer for that.

Ok, will call allergist Monday and go from there. Will post back as I find out what's up. Thanks for the support! K :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    2. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

    3. - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    4. - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

    5. - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,832
    • Most Online (within 30 mins)
      7,748

    Jackie5577
    Newest Member
    Jackie5577
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.