Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Want To Share This Glorious Moment


revenant

Recommended Posts

revenant Enthusiast

Hello :)

This morning I caught a show called "The Incurables". It was about a girl retelling her struggles with bipolar disorder, psychotic episodes and major depression. She was very suicidal. In the end, she discovered she was dairy and soy intolerant and was able to go off of all of her meds after removing these foods. Very good show!

I recorded it and watched it with my mom. My mom, who often does not believe that I am gluten, soy or lactose intolerant, or that it has much mental effect. It was too large an idea for her to comprehend. She watched it because my younger sister has bipolar disorder, aggression, depression, and psychotic episodes exactly like the girl in The Incurables. And, at the end of the episode, I took a chance and said "Remember how I used to have crying episodes and hyperactive episodes? Remember how I would overreact to everything you said to me? I haven't done that for months now".. And..she said "You might be onto something here" !!! SHE BELIEVES ME!!

Even better... It just so happens that today she was having a reaction to something (she is... carelessly gluten free, IE eating hamburgers off of the bun type of gluten free) and could relate all too well with the person in the show... And she said, that she wants to try doing this right because she has never felt completely relieved of her symptoms (she is heavily ADD, depressed, anxious, OCD, and her very high dosages of meds are no longer working). She now has high blood pressure, and her mental illnesses are ntot being controlled by the meds anymore.. So she is considering going dairy free!! (Because both her mother and all 3 of her children are lactose/casein? intolerant)

We had a huge talk about how it feels to have a reaction, get glutened or lactosed. And she actually listened to me when I described things like serotonin depletion, and how all of her symptoms are common, and what food intolerances can do, and such! It was also very nice for her to come clean to me about her own thoughts, how she feels in such detail, and I just love to listen and support her. This is a breakthrough! I finally feel understood!

(I can't garuantee that she will still think this way tomorrow, because these kinds of breakthroughs never last through to the next day with her, but it was a moment that I needed to have...)

So for all out there who wish their family would try a gluten or lactose free diet... Be an example. Be healthy and happy, and they will want to follow. Also make sure it is THEIR idea... show them something, an article, or a show...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Oh sweetie, I am so happy for you :D :D This is indeed a major breakthrough moment, a validation of your suffering, and of your self-diagnosis. I do hope she still recalls it tomorrow, and the next day, and the day after that! :) Make sure that show is saved, and if she forgets, show it to her again. :rolleyes:

Be thoughtful and helpful with her, help her to do it right without being reproachful or preachy and you two may be able to once again establish a normal mother/daughter relationship. I must add that I think you show a remarkable maturity and understanding beyond your 17 years on this earth, and if anyone can do it, you can!!! Good luck. :)

eatmeat4good Enthusiast

That is wonderful! I am so amazed when young people figure this out! And you really are wise to know how to approach others too. I am trying not to be preachy with my sister but I want her to feel better too. Your perseverence paid off with your mom. I'm gonna take your advice on how to approach this by making it their idea. Brilliant! And I am only 30 years older than you! ;)

kareng Grand Master

Yeah!!!!!!!! Happy Dance!!!!

Hope she still feels this way in a say or two. Keep the recorded show. Maybe she would like to re-watch important parts.

txplowgirl Enthusiast

I'm happy for you Revenant, :D I pray your mother will be easier on you and your sister now. Keep up the good work and perhaps show that show to your sister too. Maybe it will help her also realize that she can get better. I'm keeping all of you and your family in my prayers.

wheeleezdryver Community Regular

That IS a glorious moment!! YAY!! hopefully things will continue in such a positive manner!

revenant Enthusiast

Haha thanks for the replies and support :) You are all so amazing.

Unfortunately it was a one-day kind of thing... I was again taken to see a social worker and again my mother said that I had an eating disorder because I do not eat dairy gluten or soy, she was once again oddly hysterical about it... They partially believed her too. The social worker said that I am not eating these foods because "my life is so out of control that I am trying to control my life through my food". SIGH. At least I had a moment!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gutsy Girl Rookie

I must add that I think you show a remarkable maturity and understanding beyond your 17 years on this earth, and if anyone can do it, you can!!! Good luck. :)

Wow, you're only 17 and you're able to handle this peacefully?! GOOD FOR YOU!!!! I was NOT at this point until I was about 24 or 25 years old (26 now). :) (Don't let me puff up your head, now. LOL.) *HUGS!*

I'm happy for you and hope that over time, things will improve in your relationship with your Mom.

For the first time, my Mom is starting to see that it's not all in my head. My Mom got diagnosed with breast cancer this year and she's been going through a whole heck of a lot with that, including lots of pain now that she's never had before. Living my whole life with chronic pain, I was surprised when my Mom asked me almost a year ago "How do you deal with the pain on a daily basis?" I nearly fell over and knocked my teeth out! Her cancer has brought us closer together as I've been able to support her and show her my love through this struggle. She's grown personally as well. (My personal two cents in my own situation is that God has been changing our hearts and causing us to really LOVE each other more than ourselves, which is a miracle, as three years ago we couldn't stay in the same house for more than three days without killing each other.)

Best wishes!!

Gutsy Girl Rookie

The social worker said that I am not eating these foods because "my life is so out of control that I am trying to control my life through my food". SIGH. At least I had a moment!

I have always hated that stupid phrase "when life gives you a lemon, make lemonade". Seriously...I hate that quote!!

But if you look at the social worker's statement POSITIVELY, you can say, "Yes, my life is out of control, I feel like *fill in the blank* and I want to live more normally. I believe that certain foods cause this discomfort (whatever your symptoms are) and that if I avoid the offending foods, I may feel better and feel more in-control of my life. This is a good thing, as I am taking responsibility for my health and wellbeing unlike many people twice my age, and I choose to see it this way."

I wonder what she'd say to that! :P Hahaha.

HUGS!!

mushroom Proficient

Of course you are trying to control your life through your food - for those who are food intolerant that is the only way that life can be controlled. Can't you give this so-called social worker some references for reading on the foods your are intolerant of which might help her understand why you avoid those foods?? Only a fool eats things which cause them harm - and you can tell her that from me :ph34r::blink:

I am so sorry that you mom's moment of lucidity was only temporary :( Maybe the moment will occur when you can watch the tape together again. Is there any way you can surreptitiously cook her gluten free food so that she can see that she is not confining herself to a life of misery, but lifting herself out of a life of misery?

Or maybe you can take HER to the social worker and say "My mom is making me sick by trying to make me eat things which cause me harm?" :D Not so far out :lol:

However it works out, my ghostly friend, stay strong and know we love and support you. :wub:

plumbago Experienced

Can you tell us more about The Incurables? Is there a web site? How can we access the particular program you reference?

Thanks.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

    3. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

    4. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,844
    • Most Online (within 30 mins)
      7,748

    donnawebb265
    Newest Member
    donnawebb265
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.