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Hypothyroid Follow Up W/ Gp Not Good... Help :(

cassP

By cassP
in Related Issues & Disorders

Recommended Posts

cassP Contributor
cassP
Posted

hi fellow Hypo friends...

i had my 1st follow up with GP today... and (she's very nice)- but she was not really following my integrative discussion about my symptoms. ive been on Synthroid 50mcg for 7 weeks now- and i can honestly tell everyone of you- that NONE of my Hypo symptoms have improved (and ive got a list of like 20). plus, on top of that-> ive had a new weird ache where my thyroid is, AND i feel like im on Amphetamines. i told her i dont like to Xanax everyday, but i have been because ive been so panicky-> well she wanted to put me on Antidepressants!! :angry: i tried to explain that i think im one of those people who will need some T3 in combo with my T4. i tried to explain that for the past 5 years, ive suffered from tremendous anxiety, have always been hypersensitive to heat, never cold, sinusitis, puffy eyes, etc..... she tried to say "well, i think there might be something else going on here"... and tried to push antidepressants again... and also asked me if i wanted to get in to an ENT ... i said NO and NO.

she sent me to an ENT years ago- and there was nothing wrong. she asked me if i had seasonal allergies- i said NO, my sinusitis is 24/7 /indoor/outdoor ALL THE TIME. she asked if i wanted medicine- i said NO- she already prescribed me antihistamines & a steroid spray- NONE of those worked.

i tried to explain again- that i think once we get my thyroid normalized on the right medication- that the cascade of all my ailments will fade. i asked her again if she could prescribe Cytomel, and she didnt respond. then i asked her for the antibodies test for hashi & graves.... she said "Maybe".... i said "Please"....

omg, why does this have to be such a struggle???? i cant tell u guys just how bad i have felt this past month!!! i am out of breath all day- i KNOW that im gonna need T3 and an Endocrinologist to reevaluate me and look into my adrenals and whatever else.

my doc DID agree and gave me a referral to an Endocrinologist, which i was very happy about and said thankyou.... then i go to checkout, and the nurse said i wont be able to get in until MARCH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! im sorry, but i cannot feel like this thru till March- there's no way- i feel like im on speed, i broke down right there- and told her i cant feel like this, and that i was going to look online and see what i can order to self medicate myself... yes- thats how bad i feel

i guess too, im so aggressively upset- because it's not like i JUST got my Hypo symptoms + Hyper symptoms... ive been feeling horrific for 5 years now.... my hemmohroids are so bad from sitting that im eligible for surgery... ive been in and out of therapy and on & off drugs for depression and anxiety. im now having to rely on muscle relaxers too because of my muscle spasms (ANOTHER symptom).... plus on top of that the last month ive felt like im on SPEED. so NO- i cant wait another 3 1/2 months :(

anyways, when i went to the lab for bloodwork, my GP's nurse came to tell me that my doc will email the Endo to see if i can get in sooner. that was very sweet of her, and i was very thankful... but im hoping it's in the next week or two. i feel like calling the nurse and asking if i can just go wait at the Endo's office all day for a cancellation... but i think i should wait for the bloodwork to come back tomorrow.

i seriously cannot feel like this for another month- i really dont want to be taking Xanax AND muscle relaxers on a daily basis. please pray for me that i can get into an Endo soon.

Also- do ANY of you have any experience in ordering drugs online from reputable sources (specifically Cytomel)?? i flat out told my GP that i feel SO CRACKED out that im tempted to cut my Synthroid pill in 1/2. that's how bad i feel.

help ????? :(

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Looking for answers Contributor
Looking for answers
Posted

Call you insurance company and tell them you fear permanent damage will be done if you aren't able to see a qualified doctor within the next few days that can get a handle on this for you. This can't be good for your heart or any other organ for that matter to be so unbalanced. Tell them if they can't make this happen that you will have to seek care outside of your network and they will be responsible for payment. I work in the HR department of a large company and this is the advice/tactic we suggest employees use. Otherwise, maybe a trip to the ER...?

I know you've been struggling for a long time, as I've read your posts on here. I'm so sorry you're going through this.

XO

cap6 Enthusiast
cap6
Posted

CassP - I'm so sorry about your struggle and how you find a resolution soon. Getting help can be so frustrating. Seems like it is always another wait for this and wait for that. We hurt. We need some help now - not 3 months from now! So sorry!

cassP Contributor
cassP
Posted
  • Author

thankyou you two for your support :)

im really hoping when they call tomorrow with bloodwork results- that i'll know more and maybe get an apt with an endo earlier.... ????

i did in fact order Cytomel from overseas.... should be in in 2 weeks... but hopefully i can see a specialist soon.

thankyou to everyone on here who listens to me, which helps so much when it seems like your doctor doesnt.

xoxo

cassP Contributor
cassP
Posted
  • Author

PRAISE GOD HALLELUJIAH!!!!!! i get to see the Endo tomorrow :) :) :) :) :)

thankyou so much for letting me VENT :) :) :)

Looking for answers Contributor
Looking for answers
Posted

WONDERFUL!!! Please post and tell us how it went.

burdee Enthusiast
burdee
Posted

i had my 1st follow up with GP today... and (she's very nice)- but she was not really following my integrative discussion about my symptoms. ive been on Synthroid 50mcg for 7 weeks now- and i can honestly tell everyone of you- that NONE of my Hypo symptoms have improved (and ive got a list of like 20). plus, on top of that-> ive had a new weird ache where my thyroid is, AND i feel like im on Amphetamines. i told her i dont like to Xanax everyday, but i have been because ive been so panicky-> well she wanted to put me on Antidepressants!! :angry: i tried to explain that i think im one of those people who will need some T3 in combo with my T4. i tried to explain that for the past 5 years, ive suffered from tremendous anxiety, have always been hypersensitive to heat, never cold, sinusitis, puffy eyes, etc..... she tried to say "well, i think there might be something else going on here"... and tried to push antidepressants again... and also asked me if i wanted to get in to an ENT ... i said NO and NO.

i guess too, im so aggressively upset- because it's not like i JUST got my Hypo symptoms + Hyper symptoms... ive been feeling horrific for 5 years now.... my hemmohroids are so bad from sitting that im eligible for surgery... ive been in and out of therapy and on & off drugs for depression and anxiety. im now having to rely on muscle relaxers too because of my muscle spasms (ANOTHER symptom).... plus on top of that the last month ive felt like im on SPEED. so NO- i cant wait another 3 1/2 months :(

Also- do ANY of you have any experience in ordering drugs online from reputable sources (specifically Cytomel)?? i flat out told my GP that i feel SO CRACKED out that im tempted to cut my Synthroid pill in 1/2. that's how bad i feel.

I had a similar experience with Levoxyl (T4 supplement). After taking that for almost 2 months I had no improvement in my hypothyroid symptoms (esp. feeling cold, low energy and constipation). So my doc told me to increase my dose from 50 to 75 mcg. Then I got hyperthyroid symptoms (palpitations, difficulty breathing and some diarrhea). My doc then told me to resume the 50mcg dose, but I returned to hypo symptoms.

So I requested another blood test for free T4, TSH, free T3, total T3 and TPOAb (Hashimoto's antibodies). That test showed my T4 had improved slightly, my TSH had decreased significantly, TPOAb was high end of normal, but my T3 results were very low. That proved to my doc that I was not converting T4 to T3. So I started generic (Paddock) Liothyronine (T3) along with the T4 and finally got relief of constipation, low energy and feeling cold symptoms.

The best way to prove you need T3 is to get the full panel of thyroid hormone levels (free T4, free T3, total T3, TSH and antibody tests like TPOab). Signs (like blood test results) speak louder than our spoken words describing symptoms speak to most docs. They are trained to value signs which they can see more than our reported symptoms.

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laura4669 Apprentice
laura4669
Posted

The best way to prove you need T3 is to get the full panel of thyroid hormone levels (free T4, free T3, total T3, TSH and antibody tests like TPOab). Signs (like blood test results) speak louder than our spoken words describing symptoms speak to most docs. They are trained to value signs which they can see more than our reported symptoms.

I totally agree with the above.

I am so sorry you are going through this, I had a similar experience!! NO doctor would listen to me, and they made me feel like I was nuts. But, when I found the right doctor (not easy to do), I was able to get on the correct T4/T3 combo and I am feeling so much better. My anxiety went from a 10 to a 2. I hope your appointment tomorrow goes well!! An endo should be much more qualified to work with you on thyroid issues than a GP, so hopefully he/she can get you on the right track.

cassP Contributor
cassP
Posted
  • Author

thankyou SO much everyone for all of your support :)

my Endo was really nice and you could tell she LOVED her job... she spent a long time with me- 30 or 40 minutes- and really enjoyed explaining how it all worked, i really really liked her a lot!!! she even prescribes Armour, which i presumed that none of my network docs would even consider. but i am on the same page with her- i think i would first explore the synthetic first- altho she did go over the T1 & T2 too that the Armour has... but anyways, she is very open to explore what will work for me :)

its definitely Hashimoto's- my antibodies were 518. tho, not a surprise after learning about it on here.

i start Cytomel tomorrow 5mcg with my 50mcg Synthroid. i go back in 5 weeks for retesting, CBC, vit. D, Graves antibodies.. and possible adrenal testing. she gave me some hope to hang on- because she said it can take 9-12 months for many symptoms to alleviate including swelling of the thyroid, etc...

i just hope the panic attacks subside soon... i took xanax almost every day this week... im ready to live my life- ive been a recluse really for most of the last 5 years.. only spending time with those close to me that are already used to my shortness of breath.

one more question-> Cytomel & Synthroid ARE Gluten Free right???? i thought they were as long as they were brand name- but i just spent a long time on the net, and im finding conflicting info. i will call tomorrow.

thankyou again friends :)

Roda Rising Star
Roda
Posted

Cytomel and the generic (liothyronine) from paddock is gluten free. I take the generic. I don't know about the brand synthroid as I take the generic of that too (levothyroxine). I take mylan and it is gluten free. I hope the T3 makes a big difference for you I know it did me and I am taking 10 mcg liothyronine and 112 mcg of levothroxine a day. Most GP's don't understand thyroid let alone T3 medications.

Looking for answers Contributor
Looking for answers
Posted

So glad to hear the news. I think you're finally on your road to recovery, and you most certainly deserve it!

cassP Contributor
cassP
Posted
  • Author

So glad to hear the news. I think you're finally on your road to recovery, and you most certainly deserve it!

thanku! xoxo

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