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Celiac disease when bread converts into poison - TopNews

Scott Adams

By Scott Adams
in Publications & Publicity

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Scott Adams Grand Master
Scott Adams
Posted

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TopNews

However, doctors state that due to ignorance and with the lack of awareness close to 97% of celiac disease remain unnoticed. If left untreated, the disease ...

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    • somethinglikeolivia
      Am I celiac or not?

      By somethinglikeolivia · Posted

      I get so confused constantly by what constitutes an official celiac diagnosis. I’ve been told blood work alone is enough to diagnose, because biopsies are inconsistent, and it can take years for the damage to be severe enough to show in that way. I’ve also been told an endoscopy is the only way to officially say. My sister was diagnosed with type 1 diabetes in 2018. I had T1D antibodies checked (I was negative) and a celiac panel done. Both she and I presented with the same two positive celiac tests - mine were as follows: deanimated gliadin antibody IgG - 28.2 (ref range <0.4-14.9 U/ml) TTG Antibodies IgA - 65.9 (ref range <0.5-14.9 U/ml)  The endocrinologist who ran these stated a biopsy was not necessary and to immediately go gluten-free (he even went so far as to tell me I needed to quit my job working in a biscuit restaurant). I did end up leaving that job for unrelated reasons and went gluten-free. A few months later I went vegan for ethical reasons (no longer the case but at the time it seemed right) and of course lost weight, cleared up my skin, and was the best I ever felt.  A marriage, two pregnancies, and a pandemic later, I had a ton of weight gain and lots of bad symptoms like joint pain, cold sores, exhaustion, brain fog, etc. Went ahead with a endoscopy in 2022 to finally see for sure, and was told I had no intestinal damage and therefore no celiac. I ended up being diagnosed with Rheumatoid Arthritis in 2023 based on a positive anti-CCP test and having the HLA-B27 gene w family history as well (negative RF).    All of this to say, I struggle with disordered eating, so between that and the chronic autoimmune stuff it’s been emotionally distressing to not know how careful I need to be about gluten, how much it should interfere with my diet, and whether or not it is actually present. Any advice or others experiences would be very helpful! Thanks! 
    • Scott Adams
      gluten-free in Wilmington, DE

      By Scott Adams · Posted

      Thanks for sharing this, I've never heard of Ted's Montana Bar and Grill.
    • NoGlutenCooties
      gluten-free in Wilmington, DE

      By NoGlutenCooties · Posted

      For anyone looking for a great place to eat near Wilmington, DE, I did not find anyplace in Wilmington that looked like they could do safe gluten free. I was also there on a Sunday and most places are closed on the weekends. However, I found a really great place in Newark, DE - just 20min away.  It's Ted's Montana Bar and Grill and it was absolutely amazing! They have a great gluten free menu and they really understand about keeping things from being cross contaminated. They had the best Bison burgers and hand-cut fries.  Yes, in a separate frier, of course. My friend got the gluten free bun and she said it was really good. Ted's Montana Bar and Grill is also a chain, with several locations across the country.  If you happen to be near one, I highly recommend them.
    • Mari
      Ocd making gluten fears unmanageable. Need advice

      By Mari · Posted

      I havesome of the replies to your post(which by the way is a gread piece of writing) and think that it will take lots of time and reading to decide what you are going to do. I would like to give you some practical suggestions. Your anxieties and OCD are a perfectly natural response when your body is sending signals that you have physical problems. The body does not use words it uses biochemistry and electric interactions. Celiac disease is not a killer disease so you are not going to die in the near future if you get glutened.  It can be a disabling problem unless you stay gluten free. For OCD attacks I have used spearmint or peppermint teas to relax. I also sitorlay down , relax as much as possible and review what I have been eating for the last few days and can usually identify that I have been eating too much of something and not enough of other foods that would balance my body. My body may have become too acid when it needs to be slightly alkaline. For me this means eating more vegetables and less starches and proteins. There are some websites that will list acid forming foods and alkaline forming food and many foods that are in between. Just admit that you are anxious about gluten being present in foods and anything that is used to prepare foods or even in your environment. When you eat anything that makes you anxious take a capsule of an anti-gliadin enzyme. I use a brand called GliadinX. It works in the stomach and will break down small amounts of gluten. Look up online the amount of plain water your body height and weight needs every day. Two years ago I was 5' 4" and weighed 100 lbs and needed 48 oz. every day.  Even if you can't drink the full amount if you just drink more water you will notice some improvement in your digestive system.  That's enough for tonight and it's way past my bedtime. Don't hesitate to ask more question or ask for more information.       
    • Scott Adams
      Canker sores

      By Scott Adams · Posted

      Canker sores can definitely be frustrating, especially when you're already managing a strict gluten-free lifestyle and have been diagnosed with celiac disease for so long. While these painful mouth ulcers aren’t exclusive to celiac disease, they can be linked to nutritional deficiencies—particularly of iron, folate, or vitamin B12 (as @trents mentioned )—which are common in people with celiac, even those who are very careful with their diet. Ongoing fatigue and aches might also suggest that your body isn’t fully absorbing nutrients or that there’s some underlying inflammation. It could be helpful to get bloodwork done to check for these deficiencies, and possibly even a full nutritional panel. Sometimes, new sensitivities or hidden sources of gluten or additives like sodium lauryl sulfate (common in toothpaste) can trigger symptoms like canker sores too. Since your reactions are so severe and you're highly vigilant, it might also be worth considering whether any other autoimmune conditions could be involved, as they can develop over time and overlap with celiac. Consulting with your doctor or a celiac-informed dietitian may help pinpoint the cause and bring relief.
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