Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

gluten-free, But Now Also Dairy, Soy, Egg, Caffeine Free?!

GFshay

By GFshay
in Coping with Celiac Disease

Recommended Posts

GFshay Apprentice
GFshay
Posted

So I finally sucked it up and started taking common problem foods out of my already-gluten free diet about 3 weeks ago. I cut out dairy, soy, and sort of by accident realized I needed to stop eggs and coffee (and now black tea too!!?). I've been making most of my food and having plenty of meat, nuts, veggies (cooked, mostly, since raw can be too tough on me), rice and corn. But I'm dying to eat some chocolate candy for the holidays, or to even just have a nice cup of coffee on a rainy day.

I'm feeling TONS better, so it's been worth it for me. But recently, every time I try a bit of one of my no-no foods, I pay for it for a few hours or even days. I feel like my food options are narrowing rapidly and I'm a bit worried that going too simple might make me get hyper-sensitive. I do have a good nutritionist and hope she might have suggestions next time I see her.

So for you experts out there who also went through lots of sensitivities, did you find they got any better over time? I keep telling myself "it's temporary" to have to cut out the additional foods beyond gluten, but I worry about what timeline I'm looking at. Should I just keep at it like this for 6 months, or should I keep testing myself?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


burdee Enthusiast
burdee
Posted

So I finally sucked it up and started taking common problem foods out of my already-gluten free diet about 3 weeks ago. I cut out dairy, soy, and sort of by accident realized I needed to stop eggs and coffee (and now black tea too!!?). I've been making most of my food and having plenty of meat, nuts, veggies (cooked, mostly, since raw can be too tough on me), rice and corn. But I'm dying to eat some chocolate candy for the holidays, or to even just have a nice cup of coffee on a rainy day.

I'm feeling TONS better, so it's been worth it for me. But recently, every time I try a bit of one of my no-no foods, I pay for it for a few hours or even days. I feel like my food options are narrowing rapidly and I'm a bit worried that going too simple might make me get hyper-sensitive. I do have a good nutritionist and hope she might have suggestions next time I see her.

So for you experts out there who also went through lots of sensitivities, did you find they got any better over time? I keep telling myself "it's temporary" to have to cut out the additional foods beyond gluten, but I worry about what timeline I'm looking at. Should I just keep at it like this for 6 months, or should I keep testing myself?

My 7 food restrictions weren't 'sensitivities' that improved with time. I had IgG and IgA mediated reaction diagnosed (by ELISA test) allergies (or intolerances if you're in that camp), in addition to gluten intolerance. I noticed with every diagnosed allergen, that the longer I abstained from that food (or ingredient) the more intense and longer lasting my reactions to accidental consumption are. Obviously my body does NOT forget how to make antibodies to those foods, when I stop eating those. So, for me, abstaining from those foods/ingredients is a lifelong commitment.

However, I no longer have that excruciating gut pain, gas and bloating, which I experienced after eating those allergens. Although I had to resolve many more gut and immunological related problems (like 8 gastro infections in 4 years, Hashimoto's thyroiditis, anemia, hypochloridia and low white blood cells), I finally feel great after eating meals and all day long. So abstaining from my diagnosed allergens was just the first step in a long journey back to health.

Takala Enthusiast
Takala
Posted

Since you just started this gluten free routine, relatively speaking, you may be just okay with cutting out the gluten and soy in the future. And maybe the eggs.

I was really strict at first (like grainless ) and was able to add in a lot of things as I healed up, but it took a while.

Sometimes I read a list, and think to myself, "Oh My I Could Never Stand That," and then realize it's less restrictive than what I do already.

GFinDC Veteran
GFinDC
Posted

I used to have a worse reaction to dairy than I do now. But I still react to it so I don't eat it. My other intolerances haven't changed that I know of. Not really sure at this point if they ever will. I have read posts from other people that their intolerances reduced over time though, or even went away. So it just shows that we are all individuals and our results are individual also. You could be like me or you could be like them or you could be like you. Being like you is what you need to learn about. So, perhaps try one of them after 6 months to a year and see if it has changed? Since it is a time related change it would be good to write down your symptoms now and then when you try the food again so you can compare notes. It's sort of like spying on yourself, to find out what you are really like, food intolerance wise. :)

julandjo Explorer
julandjo
Posted

So I finally sucked it up and started taking common problem foods out of my already-gluten free diet about 3 weeks ago. I cut out dairy, soy, and sort of by accident realized I needed to stop eggs and coffee (and now black tea too!!?). I've been making most of my food and having plenty of meat, nuts, veggies (cooked, mostly, since raw can be too tough on me), rice and corn. But I'm dying to eat some chocolate candy for the holidays, or to even just have a nice cup of coffee on a rainy day.

I'm feeling TONS better, so it's been worth it for me. But recently, every time I try a bit of one of my no-no foods, I pay for it for a few hours or even days. I feel like my food options are narrowing rapidly and I'm a bit worried that going too simple might make me get hyper-sensitive. I do have a good nutritionist and hope she might have suggestions next time I see her.

So for you experts out there who also went through lots of sensitivities, did you find they got any better over time? I keep telling myself "it's temporary" to have to cut out the additional foods beyond gluten, but I worry about what timeline I'm looking at. Should I just keep at it like this for 6 months, or should I keep testing myself?

This is the question burning in my mind 24/7. If you look at my signature, you'll see that I'm extremely restricted. If I'm even CC'd by one of my no-no foods I pay for it, sometimes for days. I've been on this level of restriction for 5 months now. I do feel much better physically, but emotionally I'm getting worn down. This diet will not be sustainable long-term (or at least that's what I'm letting myself believe right now). I pray that with more time I'll heal enough and I'll get some of these foods back.

The only allergy testing I've had done was the skin prick test, which was negative for anything. So my hope is that it's just an overly damaged gut reacting to almost anything I put in it. Who knows if that's what's really going on, but it's what I have to believe to stay sane! So I have no answers for you, but I can absolutely commiserate with your situation. (((hugs)))

jenngolightly Contributor
jenngolightly
Posted

I feel for you. I cut out sugar, dairy, soy, corn, all grains, and starchy veggies on May 20th. It's been 7 months and I'm giving myself 1 year before I start adding things back in. I've never felt so good in my whole life so I'm not really looking forward to adding things in - I'm afraid I'll feel like crap again. :-)

But, this diet is so restrictive. I'm also allergic to nuts, so it's hard to find "snack" food.

I follow the Specific Carbohydrate Diet and there's lots of info on the Internet if you do a search. It helped me because there's a plan and support network available for people who want to do this extreme elimination diet. Again - I feel fantastic, but pretty deprived. I can't wait to eat chocolate again.

I keep telling myself "1 year. 1 year. 1 year"

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    3. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
    4. trents
      - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      6

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      What kind of practitioner did the blood test? Was this a medical doctor, a naturopathic doctor, a GI doc? I would certainly follow up with them and ask why they advised you not to eat red meat. I mean, it could be something like they, themselves, are a vegetarian and give that advice to everyone. Have you had an endoscopy with biopsy of the small bowel...
    5. knitty kitty
      - knitty kitty replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      2

      Dizziness after eating green beans?

      @EndlessSummer, You said you had an allergy to trees. People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits. Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease. Switching to a low histamine diet for a while can give your body time to rid itself of...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,689
    • Most Online (within 30 mins)
      7,748
    EndlessSummer
    Newest Member
    EndlessSummer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      Issues before diagnosis

      By sha1091a · Posted

      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
    • trents
      Dizziness after eating green beans?

      By trents · Posted

      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.