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How Much Gluten For A 17 Month Old To Make Sure We Don't Get A False Neg


beebs

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beebs Enthusiast

Sorry for all the questions!

I was told that an adult needs to eat either 4 slices of bread a day or 6 wheetbix when they are being glutened prior to their biopsy to avoid false negatives. But no one seems to be able to tell me how much to give my 17th month old. The problem is he seems to be really avoiding gluten. I think he knows it makes him sick? He won't eat bread, granola bars or cookies anymore. So I am kind of stuck and its quite hard to get him to eat anything with gluten let alone 4 slices of bread.

Anyone know how much he should be having a day? And how I am supposed to give it to him?

Thanks!!


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mommida Enthusiast

A gluten challenge is very risky with such a young one. My daughter ended up being hospitalized for dehydration at 16 months for the gluten challenge for testing. A Celiac can react to one micron of gluten.

I think everyone here is going to have a hard time telling you how much gluten to give your little one.

Yes. I believe you are right about a 17 month old knowing the cookies and bread things are making him sick. My daughter knew and it made the challenge harder. There are a lot of gluten candy that you might be able to slip in if you have to. i.e. red licoroice, Kit Kat, crunch bars, Rice krispie cereal (with the malt flavoring)

Good Luck! My thoughts and prayers are with you.

beebs Enthusiast

A gluten challenge is very risky with such a young one. My daughter ended up being hospitalized for dehydration at 16 months for the gluten challenge for testing. A Celiac can react to one micron of gluten.

I think everyone here is going to have a hard time telling you how much gluten to give your little one.

Yes. I believe you are right about a 17 month old knowing the cookies and bread things are making him sick. My daughter knew and it made the challenge harder. There are a lot of gluten candy that you might be able to slip in if you have to. i.e. red licoroice, Kit Kat, crunch bars, Rice krispie cereal (with the malt flavoring)

Good Luck! My thoughts and prayers are with you.

Holy cow - that is so scary.

His endo is booked for the 20th of Jan. And to be honest we are a family of autoimmune sufferers so its not just celiac they are looking for but IBD and crohn's etc.

Its not even a gluten challenge as such is it though? I'm just trying to get him to eat any at all. He won't even eat bread anymore and toast used to be his favourite....

Should I be trying to get him an earlier endo do you think?

cyberprof Enthusiast

Holy cow - that is so scary.

His endo is booked for the 20th of Jan. And to be honest we are a family of autoimmune sufferers so its not just celiac they are looking for but IBD and crohn's etc.

Its not even a gluten challenge as such is it though? I'm just trying to get him to eat any at all. He won't even eat bread anymore and toast used to be his favourite....

Should I be trying to get him an earlier endo do you think?

Earlier might be better.

How about oatmeal (not the special gluten-free oatmeal), cream of wheat? Creamed soups with flour thickener. Omelette with flour added to the batter. Breaded chicken strips. Oh, listen to me! I sound like a gluten-deprived addict. But since flour hides in a lot of places, I can think of lots of places to hide it! :lol: Good luck and take him gluten-free even if it's negative.

beebs Enthusiast

Earlier might be better.

How about oatmeal (not the special gluten-free oatmeal), cream of wheat? Creamed soups with flour thickener. Omelette with flour added to the batter. Breaded chicken strips. Oh, listen to me! I sound like a gluten-deprived addict. But since flour hides in a lot of places, I can think of lots of places to hide it! :lol: Good luck and take him gluten-free even if it's negative.

Some great ideas - thanks so much for that. Yeah - I'll start checking for intolerances if it comes back negative. Love the omelette idea - he loves stuff like that!

salexander421 Enthusiast

My 17 month old is the same way. We were going to hold off on challenging her but since her big sister is being challenged she was sneaking gluten foods from her so we decided to challenge both at the same time. My almost 3 year old gobbles every piece of bread, every cookie, etc. while our 17 month old resists most of it. We have found chicken nuggets to work, occasionally she will eat the toast if it has butter and jelly on it, and honey nut cheerios usually work. I don't like giving our girls a lot of sugar but they usually won't resist a cookie so if it's been a day where they've resisted bread etc then a cookie usually works. Oh yeah, my 17 month old LOVES spaghetti, gluten free or not, so that's another good way to sneak in some gluten.

beebs Enthusiast

I have since found out they need 2 slices of bread a day - not sure if my little one is getting anywhere near that. But he has never been gluten free- so maybe it won't matter that much?


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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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