Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Crazy?


divamomma

Recommended Posts

divamomma Enthusiast

My daughter had the scope/biopsy yesterday. Everything looked normal to the eye but we are awaiting biopsy results. We have decided to go gluten free regardless of the outcome. A positive blood test plus many symptoms are enough for me to try her gluten-free. So is it crazy to think that one day of gluten-free would be enough to provide some relief? I swear I have a different kid today. She seemed more energetic, did not complain once of being tired or having tired arms/legs (which she ususally does all day long) She was WAY less irritable. Our super irritable time is after my older daughter gets home (3:30-5ish) and she was so good and happy! She also did not whine today (which she usually does allllll day). Some of her symptoms like constipation, itchy skin, dark circles are still there. But overall I think either

1) I am crazy and looking for anything to prove it works or

2) it actually IS helping!

Thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

It could be both. :) Kids have been known to drive one crazy. Look at me!

I actually felt better in 1-2 days. A lot of the gloating and that kind of pain was gone. From what I have seen on here, it seems to affect kids moods. But just having less pain can make you feel happier.

T.H. Community Regular

I had a noticeable change in my health within 2 days, so I don't think it's impossible.

My daughter had the dark circles, too, and those took a bit to disappear, but they did. Her reactions are much more noticeable now when she gets gluten, though, so you might see that in the future, too. Or reacting to lower amounts of gluten, the longer she's off of it.

Another thing - sometimes I notice with my kids (both went gluten free), they had this period of time where they needed much more sleep for a while. I've always assumed that was their body needing time to heal itself, ya know?

Loobiej Rookie

Hi

We started my daughter on a wheat/gluten free diet in December and we noticed a change within 3 days mainly by her not going to the toilet as much and having more energy, we are now 4/5 weeks into the diet and shes much better still only going to the toilet twice a day + has much more energy, she has however had a bad week where she went back down hill and we dont know why but apparently this does happens to some. Shes still doing very well.

The way i looked at it was that to see such a big improvement in a few days just shows how upset her stomach is, but be prepared for her to still have an few off days.

Thanks x

srall Contributor

I'm guessing it's working already. Don't be bummed if she still has some off days though. I still see it with my daughter and she's been doing this about 3 months.

missy'smom Collaborator

You're not crazy. I felt dramatically better right away and I wasn't even free of all gluten. I just cut out what I knew to be gluten-pasta, bread, anything with flour etc. until I learned more. My distended abdomen went back to being flat again pretty quickly. That being said, it did take a long while overall to feel back to what I thought I should feel like. Seemed like every 4-6 mos. I would reach anothre level of improvement. Plenty of fatigue and naps along the way, with the learning curve and healing time.

Glad you're seeing new life in your kiddo :)

Marlie Apprentice

My daughter had the scope/biopsy yesterday. Everything looked normal to the eye but we are awaiting biopsy results. We have decided to go gluten free regardless of the outcome. A positive blood test plus many symptoms are enough for me to try her gluten-free. So is it crazy to think that one day of gluten-free would be enough to provide some relief? I swear I have a different kid today. She seemed more energetic, did not complain once of being tired or having tired arms/legs (which she ususally does all day long) She was WAY less irritable. Our super irritable time is after my older daughter gets home (3:30-5ish) and she was so good and happy! She also did not whine today (which she usually does allllll day). Some of her symptoms like constipation, itchy skin, dark circles are still there. But overall I think either

1) I am crazy and looking for anything to prove it works or

2) it actually IS helping!

Thoughts?

My daughter had her biopsy 10 days again and we started gluten free immediately and she started feeling better within 24 hours. Everyday I see improvement. Even her acne (if that was what was all over her face for several years) is subsiding. The doctor told me during the biopsy she saw no damage but the lab results of the biopsy were positive. You are not crazy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,351
    • Most Online (within 30 mins)
      7,748

    giuseppe gamerra
    Newest Member
    giuseppe gamerra
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.