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Help!

shezatrip

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shezatrip Apprentice
shezatrip
Posted

HELP! I need some encouragement or advice. I have ordered a test, biocard..and should be getting it twelve days from now. I am supposed to Gluten up.

However, Not sure what allergy (gluten, milk, etc..)

But, I am so Ill (nausea) that I hardly want to eat anything.

I am so tired of the fullness, bloating, pain..that It is taking all i can

to go one step further! I could almost stop eating all together. seriously.

I know i should take this test, however I just want to only eat healthy/mild

foods....but, I can't for 12 more days :(

How many of you gave up on your diagnosis, and just changed your diet?

Is there hope? I am so sick of being sick/along with Fibro that I am losing steam...

Any advice appreciated, I am in tears from being sick for 20 years,

but now it has got to the point I just don't really want to eat at all....

Thank you!!

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ravenwoodglass Mentor
ravenwoodglass
Posted

If you think you can stay strict and compliant with the diet without a diagnosis then start the diet. If you need a diagnosis wait. Do know that if you go gluten free before testing and then decide you want a diagnosis you will need to go back on gluten for 3 months or so to have any chance of a accurate result. Even then there is a chance of a false negative.

shezatrip Apprentice
shezatrip
Posted
  • Author

If you think you can stay strict and compliant with the diet without a diagnosis then start the diet. If you need a diagnosis wait. Do know that if you go gluten free before testing and then decide you want a diagnosis you will need to go back on gluten for 3 months or so to have any chance of a accurate result. Even then there is a chance of a false negative.

I agree..that is what happened. I stopped for 3 weeks and then had to gluten

all back up :(

I need to keep my eyes on the prize (this test) but feel so bad..

just want to eat really healthy. ARGH...

I don't look forward to pizza and bread.

cassP Contributor
cassP
Posted

im so sorry- and i feel your pain.

to answer your question about giving up- i probably would have if the doc had actually put me on a proper gluten challenge. when i did mine- my GI put me on a 2 week/4 slices a day challenge (which i am assuming now is not adequated enough). my gut cramping & bloating was ruff- but manageable. my ANXIETY however was NOT MANAGEABLE. by my blood draw appt after 2 weeks- i had HAD IT and was never more eager to have my blood taken in my life- i practically bit my doc's head off- saying "i dont care what you or the results say- i am DONE with gluten".

if he had prescribed me longer than 2 weeks, it's quite possible i would have quit. so i sympathize with your frustration.

ps- if you can hang on i would. i ended up going back on and off gluten, untill i got a gene test & self diagnosed, and then got DH. i needed some kind of dx to adhere to the diet. ??

Skylark Collaborator
Skylark
Posted

If you think you can stay strict and compliant with the diet without a diagnosis then start the diet. If you need a diagnosis wait. Do know that if you go gluten free before testing and then decide you want a diagnosis you will need to go back on gluten for 3 months or so to have any chance of a accurate result. Even then there is a chance of a false negative.

Exactly. I'm sorry you're so sick. It does sound terrible. :( If a diagnosis is important, hang in there. Otherwise you can stop, but you have to assume you're celiac.

shezatrip Apprentice
shezatrip
Posted
  • Author

im so sorry- and i feel your pain.

to answer your question about giving up- i probably would have if the doc had actually put me on a proper gluten challenge. when i did mine- my GI put me on a 2 week/4 slices a day challenge (which i am assuming now is not adequated enough). my gut cramping & bloating was ruff- but manageable. my ANXIETY however was NOT MANAGEABLE. by my blood draw appt after 2 weeks- i had HAD IT and was never more eager to have my blood taken in my life- i practically bit my doc's head off- saying "i dont care what you or the results say- i am DONE with gluten".

if he had prescribed me longer than 2 weeks, it's quite possible i would have quit. so i sympathize with your frustration.

ps- if you can hang on i would. i ended up going back on and off gluten, untill i got a gene test & self diagnosed, and then got DH. i needed some kind of dx to adhere to the diet. ??

TY for your kind response and support!!..It sure helps.

Today is better :-) They just said they shipped my biocard, so 10 more days to go to load up.

Even if it says negative, I will back waaay off gluten~ and eat clean.

Thx again!

shezatrip Apprentice
shezatrip
Posted
  • Author

Exactly. I'm sorry you're so sick. It does sound terrible. :( If a diagnosis is important, hang in there. Otherwise you can stop, but you have to assume you're celiac.

Ty, Ty!! appreciate the advice :-) still hanging' in there....

will let you all know :-)

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cap6 Enthusiast
cap6
Posted

You've come this far - try to hang in there. I feel for you. I wasn't gluten-free before my test as I quite eating. I would look at food and think which was worse, eating & pain or not eating & hungry. I went for the not eating & hungry so understand where you are at. If this is important then keep going. When you wake up in the morning it will only be 9 days left! I'll be thinking about you.

salexander421 Enthusiast
salexander421
Posted

Personally since you've already started with gluten I would just hang in there! We're doing a 3 month gluten challenge and I have thought many times about just giving up and forgetting about it but, we're 1 month in already and I feel like if we bailed now the last month would be such a waste. Knowing that we ate all that gluten for nothing would make me crazy :P

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