Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened...but By What?

K8ling

By K8ling
in Coping with Celiac Disease

Recommended Posts

K8ling Enthusiast
K8ling
Posted

Ok guys, I am thoroughly confused. Last night I had a major Gluten reaction- severe cramping, D and nausea- and I had barely eaten all day. My son brought home RSV and I caught it IMMEDIATELY (Toddlers just LOVE to share!) so I have been down sick for about 4 days. Yesterday I had gluten-free chicken potato soup that my husband made from scratch, and toast, some gluten-free crackers...and Tylenol PM. That's it.

So I am a little confused. My food choices have been limited to soup, crackers and ginger ale for the past 4 days.

I am also 6 weeks pregnant...is it possible that my body just freaked out?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

K8 have you talked to an OB yet?

Are you drinking lots and lots of water or Gatorade or Koolaid? You could be dehydrated.

Take care of yourself and that gluten-free bun in the oven.

K8ling Enthusiast
K8ling
Posted
  • Author

Water, I called my OB and just got a call back from my normal doctor who can't treat me with really anything antibiotic wise, because they are worried about the risk of miscarriage. I guess it is possible I am dehydrated, I just felt like it was a gluten reaction. I dunno maybe it's not. Being pregnant is very weird LOL.

I am being put on a nebulizer, inhalers and nasal spray and my husband is watching me to see if I get hypoxic.

tarnalberry Community Regular
tarnalberry
Posted

especially the first few weeks of pregnancy, you can't really say if it's gluten or hormones. hormones can cause all of those things - and it can be all the worse if you haven't eaten much. try to get some more food, and keep an eye on the cramping. some is normal, but if there's too much, you may want to check in with your doc to make sure your hormone levels are such that they can maintain a pregnancy. (sometimes, they can help with that, depending on the exact issue.)

K8ling Enthusiast
K8ling
Posted
  • Author

especially the first few weeks of pregnancy, you can't really say if it's gluten or hormones. hormones can cause all of those things - and it can be all the worse if you haven't eaten much. try to get some more food, and keep an eye on the cramping. some is normal, but if there's too much, you may want to check in with your doc to make sure your hormone levels are such that they can maintain a pregnancy. (sometimes, they can help with that, depending on the exact issue.)

Thanks, I've been getting blood tests every week to monitor my HCG levels. I tend to lose babies between 6 and 11 weeks so we are in the danger zone right now. I did call the OB and he's pretty sure it wasn't the baby. My normal doctor just called in some breathing stuff and told me to take it as easy as I can.

I'm not sure WHATS going on but I DO know I feel awful.

Thank you ALL for the input, I am really worried.

tarnalberry Community Regular
tarnalberry
Posted

Thanks, I've been getting blood tests every week to monitor my HCG levels. I tend to lose babies between 6 and 11 weeks so we are in the danger zone right now. I did call the OB and he's pretty sure it wasn't the baby. My normal doctor just called in some breathing stuff and told me to take it as easy as I can.

I'm not sure WHATS going on but I DO know I feel awful.

Thank you ALL for the input, I am really worried.

Correct me if I'm wrong, but I think low progesterone levels can also prevent you from carrying a baby to term, and they can supplement progesterone. Is this the same OB you've been seeing for the repeated miscarriages?

T.H. Community Regular
T.H.
Posted

Oh goodness! Here is wishing the baby lots of good, healthy vibes.

If gluten is the culprit...might be good to chuck the gluten-free crackers and toast for a bit and stick with carbs like unprocessed stuff like whole grains, potatoes, and sweet potatoes. Almost all gluten free food has a little gluten in it (below 20ppm) but perhaps during your pregnancy you are more sensitive to it? Or, if that's all you're eating, it could be that the low amounts of gluten are building up so you're ending up with over 20ppm. The gingerale can be an issue with gluten cc, too.

You can make a little gluten-free ginger tea by getting a 2 inch peeled piece of ginger, boil it in 4 cups of water for 15-20 min. and strain it. And a little sweetener added to it, fruit juice or honey. It might calm your stomach, and it would be more gluten free than the soda, yeah?

Also, the soup...did your hubby do it completely from scratch with a raw chicken, making his own broth, or did he use a pre-made chicken broth or bouillion? Or a flavor packet? If he used those but didn't get gluten free versions, maybe that was it. My kids have been glutened from all of those before.

The tylenol I suppose could be a problem, but I would think that would be more a morning sickness issue, not so much the D and cramping.

EDIT:

And I just came across this on the celiac.com site after I responded to you:

xanthan sensitivity

Essentially, talking about having a xanthan gum sensitivity and how it can make it hard to distinguish form glutening. It can cause gut problems, the big D, cramping - it might be worth looking at, especially because it almost definitely would be in the crackers and toast.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shopgirl Contributor
shopgirl
Posted

There was a Tylenol recall announced this week but I don't know if the pills could actually make someone sick. I think there was a cleaning issue at the plant.

Seems like a long shot but just throwing it out there.

cassP Contributor
cassP
Posted

what's RSV???

and i know Docs say Tylenol is safe... but i would try not to take anything.

i hope u feel better!!!!

K8ling Enthusiast
K8ling
Posted
  • Author

Guys, I feel terrible TERRIBLE. I had to take Tylenol or I couldn't function. Really.

Thank you for all the input! I called my OB this morning and she said that it may have been hormonal since that's how my body responds to hormone rushes- GI upset.

The soup was TOTALLY made from scratch. Organic chicken, no fillers, no broth, etc. no stock. Fresh chicken, carrots, celery, onions, and potatos. So good that we are making MORE tonight! It really seems to help!

I did put up the crackers and toast. I had a banana today and some bacon (I dunno, the baby liked it LOL) and am pushing fluids. Thank you for all the help guys!! Really!!

RSV is a common upper respiratory virus that little kids get during spring and winter. Highly contagious and dangerous to pregnant women and newborns or people with asthma (I have asthma and the baby LOL). My son is much better as is my husband... I just keep getting worse!! :(

Googles Community Regular
Googles
Posted

I don't have any suggestions to add. But I wanted to say that I hope you are feeling better soon.

AZGirl Rookie
AZGirl
Posted

No Advice; but am praying that you and the baby make a very speedy recovery.

Luddie Newbie
Luddie
Posted

Guys, I feel terrible TERRIBLE. I had to take Tylenol or I couldn't function. Really.

Thank you for all the input! I called my OB this morning and she said that it may have been hormonal since that's how my body responds to hormone rushes- GI upset.

The soup was TOTALLY made from scratch. Organic chicken, no fillers, no broth, etc. no stock. Fresh chicken, carrots, celery, onions, and potatos. So good that we are making MORE tonight! It really seems to help!

I did put up the crackers and toast. I had a banana today and some bacon (I dunno, the baby liked it LOL) and am pushing fluids. Thank you for all the help guys!! Really!!

RSV is a common upper respiratory virus that little kids get during spring and winter. Highly contagious and dangerous to pregnant women and newborns or people with asthma (I have asthma and the baby LOL). My son is much better as is my husband... I just keep getting worse!! :(

I, too, wish you all the best. Sounds like the old chicken soup is helping! I've found an anti-viral that has helped protect me from my grandkid's "starting school" colds, etc. It's an Elderberry based tonic called Sambucus. Tastes good too and it's gluten-free. The one I have is from Nature's Way.

I agree with putting away the crackers, toast and any other flours right now.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

I just wanted to say I hope you are feeling better soon! I have asthma too and get upper respiratory illnesses pretty easily, so I can imagine how miserable you are. Nothing's worse than the feeling of not being able to breath AND having to run back and forth to the bathroom. I drink lots of gatorade (I buy the powder canisters and mix in up a gallon at a time) and also those Emergen-C powder vitamin packets you mix with water to boost the immune system--check with you OBGYN of course to make sure the vitamin is safe for the baby.

jerseyangel Proficient
jerseyangel
Posted

Thinking about you, K8, and hope all is well :)

CarolinaKip Community Regular
CarolinaKip
Posted

Ok guys, I am thoroughly confused. Last night I had a major Gluten reaction- severe cramping, D and nausea- and I had barely eaten all day. My son brought home RSV and I caught it IMMEDIATELY (Toddlers just LOVE to share!) so I have been down sick for about 4 days. Yesterday I had gluten-free chicken potato soup that my husband made from scratch, and toast, some gluten-free crackers...and Tylenol PM. That's it.

So I am a little confused. My food choices have been limited to soup, crackers and ginger ale for the past 4 days.

I am also 6 weeks pregnant...is it possible that my body just freaked out?

Good thoughts your way for yo and baby!

K8ling Enthusiast
K8ling
Posted
  • Author

Hey guys! I checked with my doctor today and she is actually referring m to an ENT because my ears just aren't clearing. I have been sick every month since August with a sinus infection or an ear infection. I am on a prenatal vitamin and the OBGYN told me to take Sudafed (which surprised me but I guess they're worried about my eardrums bursting from the pressure) to relieve pressure. Right now, since I AM pregnant, basically it's just try the hardest I can to avoid ALL gluten and take the best care of myself I can. Unfortunately, the high school kids I am teaching are little germ factories (surprising, I know LOL) so LOADS of purell.

Thanks for all the help! I REALLY appreciate it!!

jerseyangel Proficient
jerseyangel
Posted

Have you ever tried a neti-pot? I find it very helpful with my sinuses--you just use warm salt water so no fear for the baby.

K8ling Enthusiast
K8ling
Posted
  • Author

Have you ever tried a neti-pot? I find it very helpful with my sinuses--you just use warm salt water so no fear for the baby.

Yes, unfortunately my ears don't drain properly, and I end u with ear infections. They're considering putting tubes in :(

lynnelise Apprentice
lynnelise
Posted

Hope you feel better soon! I know my doctor told me Sudaphed was okay when I was preggo but that was 16 yrs ago. At any rate I did fine with it!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,566
    • Most Online (within 30 mins)
      7,748
    Rrenee2990
    Newest Member
    Rrenee2990
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      Roommate search

      By ckeyser88 · Posted

      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.