Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First Menstrual Period gluten-free, Feeling Aweful!


possiblyglutensensitive

Recommended Posts

JBaby Enthusiast

I have been mostly gluten-free for over a year, had a glutting recently. My symptoms did increase for the worse however, in December I started taking Barleans fish oil liquid. It tastes like a smoothie. Well, the last 2 periods I had, I barely had symptoms both pre and during. Some, but no where as distressing. And I don't take it everyday. Maybe it will help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Missjess Newbie

So interesting to read all of these posts. I have been gluten free for six or seven weeks and I recently had my worst period ever! I am taking it as a positive sign. I have been struggling with infertility and colitis. I just tried gluten free because I still never felt quite right. U feel SO So much better avoiding gluten!,,

annegirl Explorer

Sorry! I know feeling sick on top of everything else sucks.

I've experienced that exact opposite. Gluten free for only 3 weeks and I had no problems with mine other than a tiny bit of fatigue which is normal for me. This is exciting to me as my PMS had gotten really bad the last couple of years. No cramps etc. It was awesome! (still some chest soreness...but that doesn't bother me much and I figure you can't win em all)

I hope it gets better!

Jungle Rookie

I am hoping that I skip those extra side effects this month and the next few.

I have been using the Diva Cup for a year and all I can say is it is life changing. It makes it so that I barely even know I have my period. 2 times a day I "deal" with the mess. And one of those times I am in the shower so it is easy. As it is made of silicone there aren't the problems of what might be in it. I liked it so much that after the 2nd month (it takes a little bit to get the hang of it) I threw out all my pads and tampons as I knew I'd never use them again. There is also no risk of Toxic Shock Syndrome.

StacyA Enthusiast

Light or missing periods often goes with undiagnosed celiac disease, therefore it appears common for periods to get heavier (with worse symptoms) when women go gluten-free. I thought I was going through menopause when my celiac disease first got triggered because my periods suddenly got very light - but when I went gluten-free they got even heavier than before. All part of being a woman...

txplowgirl Enthusiast

Very interesting thread. I'm 46 and gluten free for 2 years now. Last months period and this one i'm currently on has been different. More pain, heavier bleeding and I still have cramps on the 4th day. Usually the first 2 days are the worse with heavy cramps and heavy bleeding then it eases off. But not these past 2 i'm 4 days in and it's still bad.

I have never been able to use tampons. Very painful, feels like I have something jammed up inside me hitting my cervix. Plus, I can't pull them out. They're like super glue, lol. I know, TMI.

I'm hoping it's just my age and my body's trying to go into menopause. I will be so glad when I get there.

  • 2 weeks later...
thleensd Enthusiast

I know that my hormones are still adjusting, and my periods suck... but I just figured out after using them for two years that:

Seventh Generation Pads contain wheat!

Here is the link to the ingredients: Open Original Shared Link

It says, "Chlorine-Free Ultra-thin Pads with Wings (and Maxi): The absorbent materials consist of chlorine free wood pulp, chlorine free airlaid fabric, and Lysorb, an absorbent gel. Lysorb, also known as SNAP (super absorbent natural polymer), is a polysaccharide derived from wheat."

Please let's not argue about whether or not you can get glutened from that. I'm not putting wheat next to any mucous membrane.

It says their tampons are 100% cotton.

By the way... I've been on a VERY strict gluten-free diet for 2 years, and I'm still too weak to work. Just changed these out last month, so we'll see if it makes a difference. Interestingly enough I've made more progress with better energy over the last month or so. Coincidence? <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Strawberry-Jam Enthusiast

two words: menstrual cups. (see menstrualcups.org)

My period's never been the same since I started using my Yuuki. And it's probably coincidence, but I swear my cramps have also gotten better since I started using it.

Also reusable cotton pads are gluten-free and good for the environment. :)

AzizaRivers Apprentice

two words: Open Original Shared Link. (< click link!)

My period's never been the same since I started using my Yuuki. And it's probably coincidence, but I swear my cramps have also gotten better since I started using it.

Also reusable cotton pads are gluten-free and good for the environment. :)

I second the cups. My debilitating cramps have gotten SO much better, I don't spend $15 a month on supplies, there's nothing to throw away, I don't have to empty it every 4-6 hours...the list goes on.

On another note, horrible periods were one of my symptoms. I had always had bad ones, but year before being diagnosed my 40-41 day cycle (long, I know) began to rapidly shrink and I would throw up anything I tried to eat for the first few days. At my worst it was 20 days long with spotting in between. Gradually as I got sicker, the stomach problems started spreading beyond my period, and that's when I finally started getting checked out. When I got diagnosed and started healing, the cycle started stretching out and the vomiting stopped at the next cycle. Now, 3.5 months post-gluten-free I'm back to 41 days and I'm not sick on it; with that plus my Mooncup (just switched from Divacup because I got angry with Diva while I was learning and maimed her with a hole puncher) I'm finally having manageable periods for the first time since puberty.

  • 4 months later...
cait Apprentice

Just searched and found this thread from earlier this year. I've been gluten-free since May and had gotten to a point where I was feeling better. Not 100%, but definitely headed in the right direction. Then we went to visit my mom for two weeks. After two weeks of low level glutenings here and there, I came back feeling pretty lousy. I thought I'd feel better after being home, but I haven't. My joint pain is back in action, I'm super tired, my stomach is all confused and cranky, and I'm low on patience and mental energy. I may have made some mistakes in the first few days back (we're still de-glutening the kitchen, but have hopefully finished that this week), but it's been hard to tell if I'm dealing with continued gluten exposure, carryover from the two weeks, or if there's some other intolerance I need to sort out. My period finally started today after days of (omgjuststartalready) leadup. I feel like hell. I kinda remember that last month I felt a little funky before my period and then after the first day was back to normal, but it wasn't nearly this bad. Could all of this be the combination of two weeks of gluten exposure and hormonal crap? If so, is there anything I can do to avoid this in the future? Obviously, avoid gluten exposure. But besides that?

aroche84 Rookie

I haven't had the pain like some of you are describing but one thing I have noticed is that it seems like I am bleeding almost 5 times more than normal. Does anyone else have this problem could it be where the anemia plays in?

Harpgirl Explorer

Thank you Cait for bring this thread up again! I'm not quite 2 months gluten-free and I've got my period for the first time since weening my youngest son. I've been enjoying being "period free" for almost 4 years (except for 1 cycle between pregnancies), but it seems to have returned with a vengance. For the first 2 days, I went through a tampon every 2 hours and standing up is agony. I feel like my insides are going to fall out. Not to mention I almost feel as though I've been glutened with all the cramping, tiredness and irritability. I'm glad to read that the strengthened symptoms could be from now being gluten-free and hopefully I won't have to endure this every month.

Medusa Newbie

If it's any consolation my periods are way better since I went gluten free. They are less painful, shorter and best of all I have so much less PMS beforehand - it used to be awful and last up to two weeks before my period started. I used to feel like my hormones ruled my life - in a very negative way! They are not very regular now, but that could be because of the stress of imminent emigration... ;)

I agree with the idea that cycles have a run in time of a couple of months - it may take a while to see positive changes, but yes, absolutely gluten issues affect hormones in the body - how about the effect on thyroid levels for an example?

Gluten/wheat derivatives turn up in the weirdest places. It really wouldn't surprise me if it was in sanitary products too.

melikamaui Explorer

I am very interested in this thread too. My period disappeared in March of 2010 and I've only had it once since. I would really like to have a regular cycle again because this honestly freaks me out. It just can't be normal not to have a period for this long! I'm hoping going gluten-free will help bring it back.

  • 3 weeks later...
ShawnieB Newbie

I am on birth control pills and i was only into my gluten-free diet for 3 days before starting my period and i still had one pill left in the pack. It came way early. Is this normal even if i just started the diet? Also, it seems stronger.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

    2. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

    5. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.