Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Need An Intact Blister?

dilettantesteph

By dilettantesteph
in Dermatitis Herpetiformis

Recommended Posts

dilettantesteph Collaborator
dilettantesteph
Posted

I thought that the biopsy was supposed to be adjacent to a blister. Why should it matter whether or not the blister is intact? It is really hard not to scratch so that it stays intact. Plus, the doctor said that it is the blister which is biopsied until I said that I thought it was next to the blister where you were supposed to biopsy. Does she know what she is doing?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

I thought that the biopsy was supposed to be adjacent to a blister. Why should it matter whether or not the blister is intact? It is really hard not to scratch so that it stays intact. Plus, the doctor said that it is the blister which is biopsied until I said that I thought it was next to the blister where you were supposed to biopsy. Does she know what she is doing?

The doctor is wrong, Steph--the biopsy needs to be done on skin adjacent to the blister, not the blister itself.

kareng Grand Master
kareng
Posted

Trying showing the derm this from the Univ of Chicago Celiac Center.

Open Original Shared Link

dilettantesteph Collaborator
dilettantesteph
Posted
  • Author

Is it possible that you need an intact blister even if you biopsy next to it? It is this doctor or wait until I move to a new area. She is one of those doctors who already knows everything and is unwilling to listen. When asked a question she didn't know she just answered with a bunch of stuff she did know.

Hopeful1950 Explorer
Hopeful1950
Posted

The blisters of DH tend to be fragile and I have rarely seen one for the reasons you have described. I feel the itch and rub or scratch and they're gone. All she needs is an active lesion to biopsy next to. You'll have to point her to the active lesion if she needs a blister to find it....ha, ha. She made need a blister to biopsy for other things, but not for DH. If she biopsies on a blister/lesion, she won't find any antibodies because they will be gone. Be persistent and take your medical research with you to show her. I hope she will be receptive.

mushroom Proficient
mushroom
Posted

I could not find anything that requires the blister to be intact.

Open Original Shared Link

Diagnosis is through immunofluorescence staining on a skin biopsy taken near a group of blisters, not from the blister itself. In patients with DH, the test will show IgA antibodies in the skin. Open Original Shared Link

dilettantesteph Collaborator
dilettantesteph
Posted
  • Author

Shoot. She is supposed to be the best in the area. I knew it wasn't looking good when she recommended oatmeal baths.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Shoot. She is supposed to be the best in the area. I knew it wasn't looking good when she recommended oatmeal baths.

:unsure:

:(

eatmeat4good Enthusiast
eatmeat4good
Posted

I've never seen an intact blister either.

That's part of the reason it went undiagnosed for so long.

Definitely not blistered looking.

They rub off or scratch off as soon as they form.

I hope you get a result, but if not, you can be gluten free anyway.

I couldn't believe how bad the iodine reation was.

I hope you heal fast.

dilettantesteph Collaborator
dilettantesteph
Posted
  • Author

I hope you get a result, but if not, you can be gluten free anyway.

I couldn't believe how bad the iodine reation was.

I hope you heal fast.

I've been gluten free for over 3 years. The biopsy was just for conformation, which it looks like I won't be getting any time soon. Tell me about the iodine reaction.

eatmeat4good Enthusiast
eatmeat4good
Posted

It was just as if I had eaten gluten. Sores that had healed reopened. Some filled with fluid and hurt hurt hurt.

Itch, burn, sting, hurt.

It has taken me two weeks to get them healed after eating crawfish.

Shellfish have iodine. Also table salt. If your antibodies are still in the skin you can have a very bad reaction.

Iodine reactivates the antibodies.

I'm starting Dapsone because I am soooo sensitive to iodine now with no end in sight.

The antibodies remain in your skin for up to 10 years and the sores can take up to 6 months to 2 years to heal.

dilettantesteph Collaborator
dilettantesteph
Posted
  • Author

It was just as if I had eaten gluten. Sores that had healed reopened. Some filled with fluid and hurt hurt hurt.

Itch, burn, sting, hurt.

It has taken me two weeks to get them healed after eating crawfish.

Shellfish have iodine. Also table salt. If your antibodies are still in the skin you can have a very bad reaction.

Iodine reactivates the antibodies.

I'm starting Dapsone because I am soooo sensitive to iodine now with no end in sight.

The antibodies remain in your skin for up to 10 years and the sores can take up to 6 months to 2 years to heal.

I am sorry that you have been suffering like that. How long have you been gluten free?

eatmeat4good Enthusiast
eatmeat4good
Posted

Only 4 months.

Just started taking Dapsone.

Seems to be working well.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,892
    • Most Online (within 30 mins)
      7,748
    RyanDunn
    Newest Member
    RyanDunn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JulieRe
      Oral thrush question

      By JulieRe · Posted

      Hi Everyone,  I do appreciate your replies to my original post.   Here is where I am now in this journey.  I am currently seeing a Naturopath.  One thing I did not post before is that I take Esomeprazole for GERD.  My Naturopath believes that the decrease in the gastric acid has allowed the yeast to grow.    She has put me on some digestive enzymes.  She also put me on Zinc, Selenium, B 12, as she felt that I was not absorbing my vitamins. I am about 5 weeks into this treatment, and I am feeling better. I did not have any trouble taking the Fluconazole.  
    • Ceekay
      Gluten free beer ?

      By Ceekay · Posted

      I'm sure it's chemically perfect. Most of them taste lousy!        
    • Rejoicephd
      Oral thrush question

      By Rejoicephd · Posted

      Hi @JulieRe.  I just found your post.  It seems that I am also experiencing thrush, and my doctor believes that I have fungal overgrowth in my gut, which is most likely candida.  I'm seeing my GI doctor next week, so I'm hoping she can diagnose and confirm this and then give me an antifungal treatment.  In the meantime, I have been working with a functional medicine doctor, doing a candida cleanse and taking vitamins. It's already helping to make me feel better (with some ups and downs, of course), so I do think the yeast is definitely a problem for me on top of my celiac disease and I'm hoping my GI doctor can look into this a bit further.  So, how about you?  Did the candida come back, or is it still gone following your fluconazole treatment?  Also, was it awful to take fluconazole?  I understand that taking an antifungal can cause a reaction that sometimes makes people feel sick while they're taking it.  I hope you're doing better still !
    • Scott Adams
      Advice while waiting for testing

      By Scott Adams · Posted

      I'm so sorry you're going through this—the "gluten challenge" is notoriously brutal, and it's awful to deliberately make yourself sick when you've already found the answer. For the joint pain, many people find that over-the-counter anti-inflammatories like ibuprofen can help take the edge off, and using heating pads or warm baths can provide some direct relief for the aches. For the digestive misery, stick to simple, easy-to-digest foods (like plain rice, bananas, and bone broth) and drink plenty of water and electrolytes to stay hydrated. It feels like the longest month ever, but you are doing the right thing to get a clear diagnosis, which can be crucial for your long-term health and getting the proper care. Hang in there; you can get through this! This article, and the comments below it, may be helpful:    
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      Daura Damm (a sponsor here) uses AN-PEP enzymes and filtering in their brewing process to reduce/remove gluten, and it actually tests below 10ppm (I've see a document where they claim 5ppm). 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.