Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Leaky Gut Diet


Salax

Recommended Posts

Salax Contributor

Hi Guys,

I am begining to suspect I have Leaky Gut. And I am trying to find accurate resources on diet information for this. Does any one have any really good sources on Leaky Gut and the Diet? Any personal experiences with De-toxing or not? I was thinking about going Paleo anyways, but I am not sure on the fruit side of things and the whole discussion on Quinoa and Rice, do I eat them or not. I like them, they seem ok for me...but not sure where to begin.

Thanks much! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



laura4669 Apprentice

Hi Guys,

I am begining to suspect I have Leaky Gut. And I am trying to find accurate resources on diet information for this. Does any one have any really good sources on Leaky Gut and the Diet? Any personal experiences with De-toxing or not? I was thinking about going Paleo anyways, but I am not sure on the fruit side of things and the whole discussion on Quinoa and Rice, do I eat them or not. I like them, they seem ok for me...but not sure where to begin.

Thanks much! :D

Hi,

I am in the same boat. I have been gluten-free since last October, but I am sure I have food intolerances. Tried to do elimination diet twice, but I just can't stick to it! I am strongly considering going Paleo, but a "modified" version. I ate Paleo for several days last week, but was starving without a small amount of rice or white potatoes. Been looking at Robb Wolf's web site, and it is very informative on the Paleo lifestyle. Best of luck to you!

cahill Collaborator

I am watching this thread in hopes of getting some ideas/information.

I am currently doing an elimination diet,,, and the way things are looking I am going to be pretty much eating Paleo wither I want to or not

mushroom Proficient

You may find this article on leaky gut syndrome helpful: Open Original Shared Link

LivesIntheSun Apprentice

Me too :-(

As if being gluen-free wasn't enough hard work I need to heal my gut and I'm fed up, especially because I have to study it and do it all by myself, I feel like I'm climbing a mountain.

If anyone wants to study the issue or work together PM me.

Salax Contributor

Thanks for the responses guys. I guess this is my next adventure challenge. B)

Jestgar Rising Star

Thanks for the responses guys. I guess this is my next adventure challenge. B)

Why don't you choose skydiving, or something less challenging next time.......


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

As if being gluen-free wasn't enough hard work I need to heal my gut... especially because I have to study it and do it all by myself, I feel like I'm climbing a mountain.

AMEN! I'm with you on that!

I've been on this elimination/challenge diet with a list of food allergies I tested pos. to for one year now. Got some back but gained new allergies in the process and lost some. It's a revolving door, although the gains outweigh the losses,...I think. I'm going to give it one more year with the new allergies and trying to ditch some of the repeat offenders for a longer time period and see if I can ditch them. Then I may have to come up with a new plan. I'm SO tired of thinking about EVERY thing I put in my mouth EVERY meal, EVERY day. I do feel so much better still overall so not complaining about my symptoms anymore, but it's just hard work as you said and too many restrictions.

missy'smom Collaborator

Why don't you choose skydiving, or something less challenging next time.......

LOL! :lol: Skydiving would actually be easier!, even for those of us who are afraid of heights!

cahill Collaborator

LOL! :lol: Skydiving would actually be easier!, even for those of us who are afraid of heights!

:lol:

I agree Skydiving would be easier!!!

cahill Collaborator

I'm SO tired of thinking about EVERY thing I put in my mouth EVERY meal, EVERY day. I do feel so much better still overall so not complaining about my symptoms anymore, but it's just hard work as you said and too many restrictions.

I am right there with you

mushroom Proficient

:lol:

I agree Skydiving would be easier!!!

And a lot more thrilling :lol:

Salax Contributor

Why don't you choose skydiving, or something less challenging next time.......

I know right. Except I hate heights LOL, so no. :P Hehe.

  • 2 months later...
Mother of a Celiac Rookie

Hi,

I am in the same boat. I have been gluten-free since last October, but I am sure I have food intolerances. Tried to do elimination diet twice, but I just can't stick to it! I am strongly considering going Paleo, but a "modified" version. I ate Paleo for several days last week, but was starving without a small amount of rice or white potatoes. Been looking at Robb Wolf's web site, and it is very informative on the Paleo lifestyle. Best of luck to you!

I am halfway thru the Paleo Solution book by Robb Wolf. It is one of the most eye opening books I've ever read. I started reading it because my daughter has Celiac and her symptoms have returned after being gluten free and symptom free for a year. Our whole family is now going Paleo. It is hard and is taking some time to get used to, but I'm hoping it is the answer to healing.

eatmeat4good Enthusiast

I wanna do Paleo, but I wanna keep chocolate too. ;)

  • 4 months later...
GottaSki Mentor

Hi All-

Bumping this back to the top as I have just started full elimination diet. I was dx'd Celiac in March 2009 - was very slow to get better, but did finally improve a great deal - felt healthy for the first time in years!

Unfortunately good health only lasted about 8 months - my digestive symptoms stayed at bay for a long time with mainly fibromyalgia symptoms worsening. Over the past six months I have become very sick again - muscle/joint pain, foggy is an understatement - my brain has been mush - severe memory problems and more. During the past few months my digestive symptoms have gotten nearly as bad as they were when I was dx'd Celiac and that was pretty darn bad.

Research finally brought me to Lectin Intolerance & Leaky Gut Syndrome (which I had heard before, but I thought it was just other names for Celiac).

In the past I've tried removing nightshades and dairy, but not all the problem lectin groups at once.

I just finished two days of green smoothie detox. Today was day three - I woke up still sluggish, but a couple hours later I felt wired (like I'd had several cups of coffee). Was able to stay vertical the majority of the day and my brain is still fairly clear at 10PM!!! As of today I'm eating meat/vegies/fruit only. In a week or a month (depending on improvement) I'll start challenging each group: eggs, nightshades, nuts, dairy and grains (really hope I get rice, corn and quinoa back).

Guess I'm curious to hear from others that:

1) isolated their Lectin Intolerance with elimination diet - which groups of foods you lost or re-gained?

2) had significant healing - how long did it take?

Thanks!

mushroom Proficient

I am a major lectin intolerant. I am glad that I tolerate dairy lectins, because I do not tolerate corn, soy, legumes. nightshades, citrus and of course gluten. I don't believe I will ever regain soy or corn, but I have recently been eating occasional slices of Udi's bread (potato starch) without any problems, so I am going to continue testing potato. After quitting gluten I acquired lectin intolerance to nightshades, legumes and citrus. and also had problems with quinoa and amaranth during my leaky gut syndrome period. I must say I was a little slow in making the lectin connection but I fit the pattern so perfectly. The nightshades came first so they were the first ones for reintroduction testing, but I am doing it REAL slow :P - don't want to slip back again and still not confident about leaky gut 100%.

I am almost four years post gluten, but only made a determined leaky gut cure effort a year ago when I continued to come up with more lectin intolerances. Up till then I was still using digestive enzymes quite consistently. I consulted with a nutritionist (Krispin Sullivan - I am sure you have read her Lectin Report) last summer and followed her supplement recommendations and believe it has helped. All the other commercial breads are so awful and I had so wanted to try Udi's and have been limiting it to every 3-4 days. Next I will try it more frequently. :)

Bubba's Mom Enthusiast

I asked my GI Dr about leaky gut after seeing it mentioned here. She had never heard of it!

I read the article that was posted and it seems like so many things would be eliminated..I'm wondering what we COULD eat?

I wish there was a treatment center we could just go to where they'd give us our meals and and suppliments and we'd focus on doing nothing but healing! :blink:

mushroom Proficient

I found that it was the things I was eating too frequently that became a problem for me. A rotational diet where you don't keep eating the same things over and over seems to work best with a leaky gut.

GottaSki Mentor

Mushroom-

Thank you so much for sharing - it is very encouraging to hear that you have been able to add a few things back carefully after a year.

Today - Day 4 - I feel like I'm coming out of a year long sleepwalk! I rode my bike and cleaned my kitchen - can't tell you how bad our house got over the past several months. Trying not to get too excited, but I am VERY hopeful for the first time in a very long time.

Yes, I've read Krispin's report - I'll include the link along with another that I found helpful for others reading this entry:

Open Original Shared Link

Open Original Shared Link

Bubba's Mom-

I'm eating meat, fruit and vegies now and will for about a month depending on improvement before I challenge each lectin group: nightshades, nuts, dairy and grains. It has been easy for the past several days, especially because I'm already seeing improvement - I'm sure I'll have a panic attack soon without rice and quinoa! As long as I improve it will be worth it as for the past several months I've had no life (about an hour in the morning functional) and had major symptoms for the past year.

Doctors can be extremely frustrating (no words to say how frustrating) with our symptoms. I've had mild versions of my Celiac and Fibromyalgia symptoms since my early 20s - took 23 years of going to docs for the same symptoms before they found Celiac - by that time I had only about 5-6 functional hours per day with severe digestive problems along with a whole host of other problems...the only thing that was "normal" about me was my bloodwork for every flipping thyroid and autoimmune disease - except celiac of course. It does seem that western medicine is starting to come around to some links between food and autoimmune disease - yet it has a very, very long way to go and such a shame that so many of us have been suffering for so long with no where to turn for help.

At least there is this forum!

:)

Bubba's Mom Enthusiast

I think we had the holy grail of bad ingredients for supper last night? It was chile with kidney beans, tomatoes, bell pepper, over pasta which was corn/rice based. Hubby put cheese on his. :o

I noticed I burped it up, which I haven't been doing with other foods lately.

I'm going to do some experimenting.

GottaSki Mentor

I think we had the holy grail of bad ingredients for supper last night? It was chile with kidney beans, tomatoes, bell pepper, over pasta which was corn/rice based. Hubby put cheese on his. :o

I noticed I burped it up, which I haven't been doing with other foods lately.

I'm going to do some experimenting.

I used to love Chili - until I went gluten-free and it caused stomach upset - guess my gut was trying to tell me something about other lectins - my brain just took a bit longer to figure it out!

This diet is extreme, but I woke up this morning (day 5) ready to get out bed and start doing things for the first time in over a year!

mushroom Proficient

. It does seem that western medicine is starting to come around to some links between food and autoimmune disease - yet it has a very, very long way to go and such a shame that so many of us have been suffering for so long with no where to turn for help.

At least there is this forum!

:)

I wouldn't go quite so far as to say that. I still get this chilly look like "You must be whacko" if I have the temerity to mention lectin intolerance to someone with M.D. after their name (with only one exception so far and she is my cardiologist).

I think we had the holy grail of bad ingredients for supper last night? It was chile with kidney beans, tomatoes, bell pepper, over pasta which was corn/rice based.

Sounds like the meal from h*ll - all those spices, legumes and nightshades :unsure:

I used to love Chili - until I went gluten-free and it caused stomach upset - guess my gut was trying to tell me something about other lectins - my brain just took a bit longer to figure it out!

This diet is extreme, but I woke up this morning (day 5) ready to get out bed and start doing things for the first time in over a year!

Way to go, GottaSki. Either legumes or nightshades gotcha ;). I used to love chili over a baked potato!!!

GottaSki Mentor

I wouldn't go quite so far as to say that. I still get this chilly look like "You must be whacko" if I have the temerity to mention lectin intolerance to someone with M.D. after their name (with only one exception so far and she is my cardiologist).

You are absolutely right - I've had the there is nothing physically wrong with you, so it must be mental look from doctors so many times over the years I don't think I count them. I think my thought this morning was more along the lines of docs starting (and I mean only starting) to understand that celiac isn't just a childhood illness anymore ;)

mushroom Proficient

I think my thought this morning was more along the lines of docs starting (and I mean only starting) to understand that celiac isn't just a childhood illness anymore ;)

Well, you're right of course -- we can't expect strides, only baby steps. And they don't have as much invested in the issue as we do

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      5

      Related issues

    2. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Going for upper endoscopy today

    3. - Russ H replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Guinness, can you drink it?

    4. - Scott Adams replied to Borky's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Gluten food test strips

    5. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Going for upper endoscopy today


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,270
    • Most Online (within 30 mins)
      7,748

    Hope2024
    Newest Member
    Hope2024
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Doterra literally has saved my life hands down.Nateral supplements that really are pure grade and does work organically with ones body. I had to stop all my nateral supplements to be a good puppet for medical so I can get the financial help that my body won't allow me to do more days than not these days, every day with menopause.....Not feeling well.Had to switch " medical team" because I was told I wasn't celiac though I am gluten-free since 1994! I am also positive HLA-DQ2. I think doctors down play it because on quest lab work it states " However 39% of the U.S  general population carry these HLA-DQ variants, as a consequence, the presence of HLA-DQ2 or  DQ8 or both variants is not perse diagnostic of celiac disease". Hintz the down playing of celiac disease......This needs to change because doctors seem to down playe it because when I showed the past 2nd and 3rd  doctors that I waisted my time on this year showed my that line and absolutely down played it.4th pcp this year.I live in Patterson California and would love for a few of us to go to mayors office and make this disease heard
    • Midwesteaglesfan
      Back home after the scope.  Dr said as soon as he got in there it was clear signs of celiacs.  Must be a decent amount of damage.  I don’t remember the post procedure conversation as the anesthesia was still wearing off but that’s what my wife says anyway.  Still the biopsy results to come back but pretty definitive and now I get to learn to live gluten free
    • Russ H
      There are several blogs where people test different beers using commercially available gluten testing kits. Guinness definitely tests positive for gluten. Something to be mindful of is that in some regions, foodstuffs containing less than 20 ppm gluten can be sold as 'gluten free'. However, due to the volume involved, a UK pint of beer at 19 ppm would contain more gluten than the generally accepted as safe daily limit of 10 mg. I have seen gluten-free beers testing at between "undetectable" and 5-10 ppm. I have also seen a report of a positive home test on Daura Damm, which is sold as gluten-free beer - the manufacturer did not respond to the tester's query.
    • Scott Adams
      Welcome to the forum! Do you mean this article, and if so, I don't think these are available yet.  
    • Scott Adams
      First of all, I want to wish you the very best of luck with your procedure today. It's completely understandable to feel a mix of apprehension and hope. Your proactiveness in researching and advocating for that endoscopy was incredibly smart; securing that formal diagnosis is crucial for both insurance and long-term health management. While it's natural to worry that those five gluten-free days could affect the results, your logic is spot-on—it's highly unlikely your intestines healed completely in that short time, and the fact that your joint pain and stomach issues have flared back up aggressively after reintroducing gluten is a very strong, and unfortunate, sign that the inflammation is indeed present and active. It's also very common for people to look back and connect dots, like your lifelong migraines, once a potential celiac diagnosis is on the table, as it's a systemic condition with many non-gastrointestinal symptoms. I truly hope this scope provides the clear answers you need to finally start on the right path to managing your health and finding lasting relief from the fatigue and pain. Safe travels for your drive, and here's hoping for a definitive answer and a brighter, healthier chapter ahead.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.