Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Memory Problems

imvein

Recommended Posts

imvein Newbie
imvein
Posted

Hi everyone! I an new here and have been secretly wondering what is happening to my memory? I have always prided myself on being "quick" and remembering everything and LATELY...I am in a FOG! What has happened? I have been struggling for 7 years with multiple symptoms including: nausea, vomiting, bloating, abdominal pain, migraines, Raynauds, constipation...it goes on and on, with no real diagnosis. I have always wondered about celiac or gluten intolerance, but have been told that since I do not have diarrhea, it can't be celiac disease. BUT, I went gluten free about 3 weeks ago and I FEEL BETTER! (Except the memory!). So, I am sticking with this..I mean, what do I have to lose? (already have lost my mind LOL), Just wondering if the memory loss could be part of celiac? Not sure what to think. Any responses would be great!

Have a terrific day (well, nite!)

Jill

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


salexander421 Enthusiast
salexander421
Posted

I'm not diagnosed celiac (still undergoing testing)but I definitely know that gluten affects my memory. I'm only 28 so I can't blame it on old age :P I definitely noticed a huge change in my overall mental clarity when I was gluten free. To me it's more of a recall thing than a memory thing though. Sometimes someone will ask me something and I can't think of it right away but 10 min later I'll remember it. It feels like I'm in a fog all day.

dilettantesteph Collaborator
dilettantesteph
Posted

My memory improved greatly on the gluten free diet, but it took awhile. I think that memory problems fall under the "brain fog" category.

IrishHeart Veteran
IrishHeart
Posted
  On 2/8/2011 at 4:30 AM, imvein said:

Hi everyone! I an new here and have been secretly wondering what is happening to my memory? I have always prided myself on being "quick" and remembering everything and LATELY...I am in a FOG! What has happened? I have been struggling for 7 years with multiple symptoms including: nausea, vomiting, bloating, abdominal pain, migraines, Raynauds, constipation...it goes on and on, with no real diagnosis. I have always wondered about celiac or gluten intolerance, but have been told that since I do not have diarrhea, it can't be celiac disease. BUT, I went gluten free about 3 weeks ago and I FEEL BETTER! (Except the memory!). So, I am sticking with this..I mean, what do I have to lose? (already have lost my mind LOL), Just wondering if the memory loss could be part of celiac? Not sure what to think. Any responses would be great!

Have a terrific day (well, nite!)

Jill

Many people with celiac do NOT have GI issues like diarrhea.!! Some have constipation and bloating. This is a mistake on the part of medical "professionals" who think that's the main symptom. Fatigue and neurological symptoms manifest first in many people. Or thyroid disease. Some have NO symptoms--it's called silent celiac.

Of all the many bizarre and debilitating symptoms I have with this disease, the short term memory loss bothers me most. Well, that and feeling like I am in a fog. I call it "vaseline head". I used to be able to read 3 books at a time, had quick recall, could multi-task easily....not the last 3 years! I stopped driving because I felt too slow and out of it. I was very upset by that!!!

In the last 5 weeks of being gluten-free, I do not feel so "foggy" and spaced-out. It's not all gone, but much better, so I am happy. Many people on here say this improved for them after being gluten-free.

Hope it happens for you and me as well! :)

  • 2 weeks later...
MsCurious Enthusiast
MsCurious
Posted

Yikes, that would be me! Used to be REALLY quick... now I can't recall things. I'll search for a word I know as well as my own name... and can't come up with it. It's more a recall thing with me, too.... not memory loss... and its SOOOO annoying! It's been noticable for about the last 3 months or so.

modiddly16 Enthusiast
modiddly16
Posted

It might also be worth getting your B12 levels checked. I just had to start getting shots because mine were way low and I was always a bit "off" so to speak with my memory. Celiacs are like 20% more likely to have a B12 deficiancy because of our difficulty to absorb things...I wish I would've known that 6 years ago :)

Honestly, I feel ridiculously better after just one shot. However, you don't have to be a celiac to have a gluten free diet help that brain fog...as mentioned a lot of people have gluten intolerences or other intolerances that cause those very symptoms. Not everyone has dirarreha!

AerinA Rookie
AerinA
Posted

Yep, this happened to me. It got way worse after I had my thyroid out, they called it mixedema mania I think, a symptom of low thyroid that mimics dementia. Well, they're getting my thyroid back on track and it's still a problem, in fact it was getting worse. I feel somewhat better after being gluten free for a month, I hope it keeps getting better but sometimes I worry I won't ever be as sharp as I used to be. Going gluten free has at least stopped the downward spiral and given some improvement. I'm trying to be patient. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,708
    • Most Online (within 30 mins)
      7,748
    coachnitro
    Newest Member
    coachnitro
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Still unsure.....

      By knitty kitty · Posted

      @badastronaut, I'm so glad you got your folate and zinc up! I'm a big fan of Benfotiamine.  It's a form of thiamine that promotes intestinal healing.  I take 250 mg Benfotiamine with the first two meals of the day along with a B 50 Complex.  The B vitamins all work together so taking a B Complex with Benfotiamine is great.  I also take a form of thiamine called TTFD (tetrahydrofurfuryl disulfide) which helps immensely with brain function, anxiety and depression.  Start off with small doses (50 mg) and increase doses as long as you see improvement.     https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/#:~:text=Benfotiamine (Fig.,]%2C [62]].
    • knitty kitty
      Help needed

      By knitty kitty · Posted

      @nanny marley, I had great improvement by supplementing with a B Complex and extra thiamine in the form Benfotiamine which promotes intestinal healing.  I followed the AutoImmune Protocol Diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  The AIP diet removes everything from the diet that can be irritating or hard to digest.  After a period of time to heal, other foods are slowly added back into the diet if tolerated.   For more stories of my journey, read my blogs by clicking on my name and choosing activities in the dropdown menu.
    • cristiana
      SSRI stopped working after gluten free diet due to Celiac diag

      By cristiana · Posted

      Hi @Redlima My anxiety hit before diagnosis, and in fact it was anxiety which led me to see a doctor who put me on the road of various blood tests which revealed iron deficiency, raised globulin levels and borderline B12.  At first my GP suspected a type of cancer, and didn't really know what else to make of it until about six months down the road when I started to get diarrhea and was losing weight.  That then led another GP to do more tests and coeliac disease was the culprit. Clinical anxiety can be very scary indeed and I suffered with a horrible, irrational phobia at that time, too.  I could hardly think straight.  My GP put me onto citalopram but also, thankfully, I found a couple of books that...
    • badastronaut
      Still unsure.....

      By badastronaut · Posted

      So after  a long time in which I got my zinc and folic acid levels back on track I will now start with taking Thiamine to see if that does anything. According to my blood levels I'm not low on Thiamine but, if I understand correctly, blood works are not the best way to find out if there is a Thiamine shortage. How much Thiamine should I take to start with? 100 mg? 
    • Scott Adams
      Curious if I should quit my job

      By Scott Adams · Posted

      I'm in the "never reveal your plans to the enemy" camp on this one--it's none of their business if you're looking for another job, so I would leave that out of any conversation. Also, retaliation can be common with some employers, especially if you bring up the ADA and claim a disability because of celiac disease. I was a corporate paralegal for 5 years and handled employment claims against some major USA companies, and I've seen it all--even by huge companies that contract with the government and should know better. I say keep your cards close to your vest, wear an N95 mask if you handle wheat flour, and quietly look for another job if you feel you can't continue there.  Oh...
×
×
  • Create New...