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Life

Jack V

By Jack V
in Coping with Celiac Disease

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Jack V Rookie
Jack V
Posted

I've been strictly off gluten, milk, and eggs for the past 2 months. As of three days ago knee pain that I've been cluelessly struggling with for two years is completely gone. Excessive mucuos for the most part is gone, and the last three days have been the best of my life. I'm happy, happier than ever before, literally crying through this remembering how hard I've struggled through high school because of social anxiety and depression. I feel like I've been "high" this whole weekend, and I hope I never have to go back to how it was....

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superfob Contributor
superfob
Posted

That sounds awesome. Hope you continue to be happy and healthy!

Could you describe the knee pain? My mom have has it for many, many years, I'm wondering if its food that affecting her.

Its crazy to hear about how food affects people so much...I wish everyone in this world could eat the appropriate foods - would eliminate a lot of mental and physical health issues.

mushroom Proficient
mushroom
Posted

It seems to me (just thinking late at night here Down Under) that when we were all in isolated areas of the world, each area devised a diet that worked perfectly well for them based on what was readily available in their immediate vicinity. It was only when ships started roaming the globe and itinerate travellers wandered thousands of miles through other countries, each bringing back foods and seeds from remote parts of the world, that we started eating things that caused us problems because we were eating things not devised for our digestive systems. The worldwide version of the Paleo diet. If you grew up with beans and tomatoes, eat those. If you grew up with rice and fermented soy (and there is a reason why they ferment it) eat that. If you grew up with meat and roots, eat that. But when you try mixing them all in together and expect to be able to tolerate everything, well, it just doesn't work for a lot of us - maybe we are less developed than those who tolerate all foods :unsure:

The problem today is that, probably, if everyone tried to eat the foods that were right for them, there would be a tremendous imbalance of supply and demand. How many of us would be able to obtain organic, grass-fed beef (which is the only beef I can eat?) How many of us would be able to eat fish that were not farm-raised? King salmon already costs the earth, blue cod which is my favorite fish is $21 lb where I live, animals that are not fed corn or soy are very hard to come by, and most of that corn and soy is genetically modified. So there doesn't seem to be any way of going back. Perhaps those of us who are sensitive to these new (and some of then frankly Franken-) foods will die out, and the omnivorous guts which will tolerate anything will inherit the earth :lol:

ravenwoodglass Mentor
ravenwoodglass
Posted

That's great. Isn't it wonderful to get your life back!!! So glad things are getting better for you. For some of us the gluten reaction creates inflammation in the joints and it sounds like that was what was going on with your knee.

mamaw Community Regular
mamaw
Posted

Kudos to you , hope you continue to find health with the gluten free lifestyle. Did you take yourself off gluten, dairy& so on or did a doctor ? Just curious...I wish more people would just listening to what their bodies are crying out for, help.....

Hope you have continued success & feeling like a high school kid again.....

mamaw

Financialman Newbie
Financialman
Posted

That's great that you are feeling so much better. There are a lot of interesting comments about different foods from many parts of the world. Frankly I don't believe it is entirely the food that is the problem but rather the processing and preserving of the food. The genetic alterations of such things as wheat and injecting animals with growth hormones for the sake of increasing profits is the real problem. Until something is done by all the world governments to monitor and control these alterations higher profit will rule and you and I and future generations will continue to suffer with autoimmune problems. :D

Jack V Rookie
Jack V
Posted
  • Author

That sounds awesome. Hope you continue to be happy and healthy!

Could you describe the knee pain? My mom have has it for many, many years, I'm wondering if its food that affecting her.

Its crazy to hear about how food affects people so much...I wish everyone in this world could eat the appropriate foods - would eliminate a lot of mental and physical health issues.

For myself it's a very odd pain. Nothing like an physical impact/injury. It just seems like your knees are brittle and aren't strong enough to support your weight. On days where the pain is very noticeable it's worse in the mornings, also on these "bad days" keeping my knee in the same position would be very uncomfortable, stretched out fully was the most comfortable position.

Kudos to you , hope you continue to find health with the gluten free lifestyle. Did you take yourself off gluten, dairy& so on or did a doctor ? Just curious...I wish more people would just listening to what their bodies are crying out for, help.....

Hope you have continued success & feeling like a high school kid again.....

mamaw

Well, self-diagnosed with the most contribution to my father. He diagnosed me with milk and tobacco allergy very young... Just 2 years ago in grade 10 I started feeling terrible, lethargic, knee pains, became anti-social(depession/anxiety became much more of a problem). He introduced the idea of celiac, didn't even know what it was. Some blood test confirmed it, with eggs which was a surprise. So long omelettes :'(. I never realised the seriousness of these allergies till about 6 months ago. Where I began a strict gluten diet, although I can only say I've been gluten free for two months as I wasn't yet a pro at decyphering what I could eat.

I just hope I can make the last 5 months of high school memorable, It's already been way better... It's been so different lately, and I love it.

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eatmeat4good Enthusiast
eatmeat4good
Posted

I am so happy for you!! It must be wonderful to finally feel like "yourself"...and just think...you get to feel that good for the rest of your life!

I'm 47, and just figured this out for myself. Then two months later figured it out for my son. He is 16 and is having the wonderful experience that you are. It is so thrilling for me to see him finally feeling good. So I can imagine you must be as "on top of the world" as he is right now.

Hey...I also gotta say....you have a really smart Dad!

With him in your corner and gluten out of your life....no telling how far you can go! :D

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    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

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    • knitty kitty
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      By knitty kitty · Posted

      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
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      By Clear2me · Posted

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    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

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