Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"pretty Much Normal"


canutillo

Recommended Posts

canutillo Rookie

My son's pediatricians office just called with the results of his celiac panel. In the nurse's words, "His results were all pretty much normal." Huh? I asked for the actual numbers and such and was told she could not give them over the phone. I then said I'll come by tomorrow to pick up a copy. She put me on hold, came back and told me there was no need- everything looked fine.

No need for a follow up or to talk to the doctor.

That really annoys me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

You are entitled to receive a oopy of the lab report. Insist on it.

Takala Enthusiast

I would go to the office tomorrow and tell them you are not leaving until you have, in hand, a written copy of the test results. For. The. Record.

I would also tell the nurse's boss if they ever pulled that stunt again, I'd be contacting the state attorney general's office and the insurance company.

You paid for the test via your deductible and/or copay and insurance. You own the results. They must give them to you, upon request.

My current doc's office is nice, they will send me copies if I ask, and they do that.

If you think I'm being a bit pushy, you haven't read what the previous ones did to me, withholding results. I also had another doctor tell me (after waiting 6 weeks for 1st appt, to which I had brought only partial records from a few years back) he could not begin to look at me until he had my complete medical records - when I went to the front desk to start the process, I get told that THAT will take another MONTH for them to send a request to the different office. Then my insurance charges for this, in spite of the fact that they are not supposed to. Good grief. I ended up needing surgery, (went to a different doc) and the surgeon consult was like Oh, My, they blew this off ? :blink:

Delay, deny, duplicate, delay, deny, start over. What a racket.

Oh, and the blood panels are not that perfectly accurate in children (nor adults). Maybe look at an over the counter genetic test and screening to see what's going on.

kareng Grand Master

Just call tomorrow and tell the main desk you need a copy. They will probably send your call to someone who takes care of that. Tell them you need to pick up a copy asap. If they ask why, tell them you need to run them by a Celiac expert/ another doctor or the school nurse. This should work. They may ask you to give them a day. That is reasonable.

Are you in the US? If this doesn't work for some reason, pm me. Medical info law was my best subject & I supervised this in several hospitals. I doubt you will need to get upset. Start out being nice.

ravenwoodglass Mentor

'Pretty much normal' says to me it may be a low positive. I could be wrong of course but do get a hard and complete copy of those tests. When all the tests are done do a trial of the diet no matter what the results.

Takala Enthusiast

LOL. Yeah, I'm pretty ferocious on the internet to motivate people, but I don't yell much in real life, because if you are stubborn enough and polite enough AND know your rights, you can usually get what you need.

But I continue to be amazed at how these people treat your information. When you go for any tests, you have to sign releases and disclaimers that the doctor and testing facility can give the information to almost anyone or anything that requests it, including local and Federal law enforcement, courts, insurance companies, collecting agencies. They do that to increase the chance of successfully suing you if you default on the payment of fees you just guaranteed, or if there is a mistake that results in injury or a lawsuit. You sign away your rights to privacy. But then the medical offices attempt to with hold that same testing result FROM YOU, the patient, by constantly pulling stunts like this.

I see no reason why the insurance companies should know your exact test results, and then be making financial decisions on your future treatment and level of coverage, while you are kept in the dark like a fungus and fed poop !

We won't get medical costs under control until there is more patient accountability. We are trying to do a good thing here, save ourselves illness by possible diet change. We are not here for further subsidizing the heartburn medication or anti depressant industry.

shopgirl Contributor

That's like telling someone they're "pretty much pregnant."

Demand clarification and copies of those reports.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Teaganwhowantsanexpltion posted a topic in Introduce Yourself / Share Stuff
      0

      A little about me and my celiac disease

    2. - trents commented on Scott Adams's article in Winter 2026 Issue
      2

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

    3. - Paulyw commented on Scott Adams's article in Winter 2026 Issue
      2

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

    4. - xxnonamexx posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Healthy Gluten Free Foods low sugar that you found?

    5. - Jmartes71 replied to Jmartes71's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Medications

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,231
    • Most Online (within 30 mins)
      7,748

    83Erik
    Newest Member
    83Erik
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Teaganwhowantsanexpltion
      I was diagnosed at 6 after having severe stomach pain after eating white bread or any kind of gluten my sister had one done aswell I was scared for the biopsy but thats bc the gas mask thing but now that I am a 14yr old female struggling with severe chronic pain making my body ache for no reason making it hard to sleep and do the things I love like playing spot which I love to do but I can sometimes not even be able to walk bc my knees hurt so bad I can or my hips or back the only think I wish for is to be a normal kid which I can't even be and I get accused of faking pain bc there is no physical things to notice especially at school when one day it will be so sore im limping the next im walking perfectly fine idk if its all from celiac disease but im the only one in my family that has this problem 
    • xxnonamexx
      I noticed eating gluten-free or CGF foods have higher sugar and sodium some. No added sugar protein bars I found better with plant fiber. I wanted to know what are you go to besides whole fruits/veggies that you find are healthy for you where you can feel eating normal without hurting yourself or health. I was looking into subscription based like Thrift to see if there is something that is healthier CGF that can make me feel normal. Thanks
    • Jmartes71
      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.