Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Just Don't Want To Even Eat


aedixon

Recommended Posts

aedixon Newbie

I'm headed into my 5th month since going gluten free now. It seems like the past few weeks every single time I eat something I feel bloated afterward. I've started eating such little bits at at time; a banana for dinner, yogurt and fruit for lunch, cereal as a snack, or maybe just some plain chicken and a veggie for dinner. Does this get better? I'm starting to enjoy a growly stomach because I don't feel bloated when I'm hungry.

I just ate some white rice and steamed sugar snap peas for dinner and it seems strange that I would feel bloated after just that!

*sigh* Any suggestions??

Before going gluten free I used to get teased by friends and boyfriends about how much I obviously loved food!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

Carbs may be hard on your system right now. Meat and vegetables are the only food you listed not high in carbs.

Banana and rice are high. I try to eat more protein than anything. Vegetables next and just a little rice to help get it down.

I know what you mean about not wanting to eat.

I'm at five months too.

Eating mostly nuts, meat and vegetables.

Some days better than others.

gf-soph Apprentice

I'm headed into my 5th month since going gluten free now. It seems like the past few weeks every single time I eat something I feel bloated afterward. I've started eating such little bits at at time; a banana for dinner, yogurt and fruit for lunch, cereal as a snack, or maybe just some plain chicken and a veggie for dinner. Does this get better? I'm starting to enjoy a growly stomach because I don't feel bloated when I'm hungry.

I just ate some white rice and steamed sugar snap peas for dinner and it seems strange that I would feel bloated after just that!

*sigh* Any suggestions??

Before going gluten free I used to get teased by friends and boyfriends about how much I obviously loved food!

I do know what it's like to feel bad after eating anything, for me it lasted more than 18 months after going gluten free before I found the right elimination diet that helped me. I used to say that if I had the choice to stop eating and stop the pain I would, as I had so much pain all the time. It can get better!

I would recommend keeping a food diary as you can have delayed reactions to foods, so you may blame it on one meal but it was caused by another. I also know that when I eat my 'safe' diet it can still take days for the bloating to go away, so it can be cumulative.

In the long run it's not good to eat so little, you are risking nutritional deficiencies and messing with your metabolism. Food is the fuel for your body, you can only run for so long on a minimal diet. Treat this like a scientific experiment - form a theory about what might work, and try it out. If that doesn't work, try the next idea until you hit the right combination. I know it's hard but there is likely to be some combination where you can eat a much fuller diet without the problems.

Good luck :)

RiceGuy Collaborator

One thing I can add to what has been said thus far is that you might try some digestive enzymes. The right ones can really help with digestion, and bloating too. NOW Foods makes a decent one called "Digest Platinum", and Doctor's Best also makes one which I've found to be effective. There are others which should work too, and depending on the particular cause for your symptoms, some may work better than others. But one thing I know to look for is that the enzymes should be derived from microbes, as these are the kind which can withstand the acidity of the stomach.

I agree with the statement about carbs not digesting well. I've found certain ones can really be tougher than my intestines are ready to handle. The resistive starch in bananas might be too difficult for your digestive system right now. If you desire a grain of some kind, try some others instead of rice, such as buckwheat or millet. Just do make certain they are tested for possible gluten contamination.

Tigercat17 Enthusiast

I'm headed into my 5th month since going gluten free now. It seems like the past few weeks every single time I eat something I feel bloated afterward. I've started eating such little bits at at time; a banana for dinner, yogurt and fruit for lunch, cereal as a snack, or maybe just some plain chicken and a veggie for dinner. Does this get better? I'm starting to enjoy a growly stomach because I don't feel bloated when I'm hungry.

I just ate some white rice and steamed sugar snap peas for dinner and it seems strange that I would feel bloated after just that!

*sigh* Any suggestions??

Before going gluten free I used to get teased by friends and boyfriends about how much I obviously loved food!

I would really make sure your not getting cross contamination from any vitamins, over the counter drugs, prescriptions or processed "gluten free" products. This happened to me & it took me so long to get better. Vitamins are the worse for stating that they are gluten free when they aren't completely free of gluten. Some can add Barley but remove the protein that causes us to react. But all of us react to this anyway. They can still place the gluten-free label right on them. I know...it's crazy. :blink:

And not all gluten free packaged food are completely free of gluten. There are some companies that are better than others, but just because something says "gluten free," doesn't always mean it's completely free of gluten. Everyone has different levels of sensitivity, so it might take you a while to figure out what your level is. And if you haven't already, eliminate all processed foods and eat fresh veggies, meats & fruit and keep a food journal. Once you role out all the processed foods & just eat fresh whole foods, than I would add in a processed food one at a time once a week to see if you have any reactions. This way you'll be able to track down any foods that you are reacting to and you'll start to see a pattern. I always react the next day, so this always helps me a lot.

I know it's a lot of work, but believe me it's so worth it! It took me a long time to figure it out & I'm still learning something new every day. Keep reading these forums. There is so much great information in here! The members on here are so much more knowledgeable than the any of the doctors and they are so helpful.

I hope you feel better! :)

healinginprogress Enthusiast

I'm only two weeks in and I feel the same way, I've said a few times "maybe I'll just stop eating". But I'm a person who really likes food, as well, my bf's in the past have always liked that I actually EAT!

Anyways, I didn't know that carbs could be difficult to digest when healing?

aedixon Newbie

Yeah, I know. I now have a new bf who's worried about my NOT eating! I'm like, "NOooooo! You don't understand! I WANT to eat!!!" ;) Thanks for all the suggestions. Just knowing I'm not alone is worth millions. I don't want this drama! It's not me!

I think I may write up a "stages of mourning" for the newly gluten-free. Stage one: Bursting into tears in a bakery. Stage two: Feeling a desire to starve rather than eat. Stage three: ?...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



healinginprogress Enthusiast

Yeah, I know. I now have a new bf who's worried about my NOT eating! I'm like, "NOooooo! You don't understand! I WANT to eat!!!" ;) Thanks for all the suggestions. Just knowing I'm not alone is worth millions. I don't want this drama! It's not me!

I think I may write up a "stages of mourning" for the newly gluten-free. Stage one: Bursting into tears in a bakery. Stage two: Feeling a desire to starve rather than eat. Stage three: ?...

Stage three: Not wanting to share gluten-free food.

LOL

Yeah, my fiance was with me through the worst, I ended up in the hospital twice, needing rehydration...I've lost weight from the disease, and I was so frail and weak that he told me he was going to fatten me up so that it would create a "fat buffer" so it's not so dangerous the next time I get sick LOL I'm still not asymptomatic (just two weeks in) but my appetite has returned for the most part, and he was very happy to see that!

horseshoe Newbie

I think I may write up a "stages of mourning" for the newly gluten-free. Stage one: Bursting into tears in a bakery. Stage two: Feeling a desire to starve rather than eat. Stage three: ?...

I like your stages of mourning idea. ;)

On the topic of your problem: I totally agree with the food journal idea. I've pretty much been eating the same things this month, adding in something new every now and again. I recently added in corn tortillas and though didn't feel bad immediately after eating one, did notice that I felt worse later on at my next meal where I was just eating things that didn't give me a problem. I know the tortillas are 100% guaranteed gluten free (a celiac friend of mine made them for me) but I think that they are too processed/have too much stuff in them for my digestion at the moment. Everything else I eat is very simple. It's stressful and depressing to not be able to eat some things right now, but I think it'll be worth it in the end.

Baby steps.

Jill0711 Rookie

I'm sorry that you are feeling this way. It is how I felt prior to my diagnosis and I did stop eating almost entirely (which is not a good thing).

I actually had a couple of followup questions about digestion in general. I would think that proteins and fibrous fruit would be harder to digest than carbs, but I'm certainly not a doctor. It just makes me think that I have been going about this the wrong way. If you had to pick 5-10 foods to eat at the start of the gluten-free journey to promote healing, what would you pick as the best things to start with? I think I'm ready to start a whole foods only trial, but I'm not sure what foods would be the best.

nuttmegs17 Apprentice

I'm new here but thought I'd throw my 2 cents in. I'm currently on an elimintation diet and in the process of being formly diagnosed(who knows with what).

One of my initial diagnois was/is IBS....my doc said surprisinly enough fruit/veggies are THE WORST for someone with IBS as the fiber is hard to break down etc. He suggested juices/smoothes to help break the roughage down. The body trying to break all that stuff down leads to excess gas/pain. I know...like what CAN we eat?! Geesh.

lexusca Rookie

;)I hear ya on the not wanting to eat thing. I thought it would be an instant fix stop eating gluten and poof feel better,but some very wise people here have mentioned other food intolerances that may or maynot rear their ugly head. I love food that is why I became a chef. Now I am looking at food as though it is the enemy. I know that this to shall pass and my guts will thankme for it. Feel better and know there are alot of us newbies out there probably feeling the same way

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Patiently Waiting to See Results

    2. - trents replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      75

      How Come Gluten Didnt Bother Me In Italy

    3. - Gigi2025 replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      75

      How Come Gluten Didnt Bother Me In Italy

    4. - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      7

      Oral thrush question

    5. - catsrlife posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Patiently Waiting to See Results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,897
    • Most Online (within 30 mins)
      7,748

    Sgp
    Newest Member
    Sgp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
    • Rejoicephd
      Thank you @JulieRe so much for sharing this extra information. I'm so glad to hear you're feeling better and I hope it keeps moving in that direction. I feel I'm having so many lightbulb moments on this forum just interacting with others who have this condition. I also was diagnosed with gastric reflux maybe about 10 years ago. I was prescribed ranitidine for it several years back, which was working to reduce my gastric reflux symptoms but then the FDA took ranitidine off the shelves so I stopped taking it. I had a lot of ups and downs healthwise in and around that time (I suddenly gained 20 pounds, blood pressure went up, depression got worse, and I was diagnosed with OSA). At the time I attributed my change in symptoms to me taking on a new stressful job and didn't think much else about it. They did give me a replacement gastric reflux drug since ranitidine was off the shelves, but when I went on the CPAP for my OSA, the CPAP seemed to correct the gastric reflux problem so I haven't been on any gastric reflux drug treatment for years although I still do have to use a CPAP for my OSA. Anyway that's a long story but just to say… I always feel like I've had a sensitive stomach and had migraines my whole life (which I'm now attributing to having celiac and not knowing it) but I feel my health took a turn for much worse around 2019-2020 (and this decline started before I caught covid for the first time). So I am now wondering based on what you said, if that ranitidine i took could have contributed to the yeast overgrowth, and that the problem has just been worsening ever since. I have distinctly felt that I am dealing with something more than just stress and battling a more fundamental disease process here. I've basically been in and out of different doctor specialties for the past 5 years trying to figure out what's wrong with me. Finally being diagnosed with celiac one year ago, I thought I finally had THE answer but now as I'm still sick, I think it's one of a few answers and that maybe yeast overgrowth is another answer. For me as well, my vitamin deficiencies have persisted even after I went gluten-free (and my TTG antibody levels came down to measurably below the detectable limit on my last blood test). So this issue of not absorbing vitamins well is also something our cases have in common. I'm now working with a nutritionist and taking lots of vitamins and supplements to try and remedy that issue. I hope that you continue to see improvements in working with your naturopath on this. Keep us posted!
    • catsrlife
      Back at the end of July I got this rash on both of my forearms. It started on my right and continued to the left. It was on the top and side. The rash has bumps that would pop with clear liquid if scratched. They would almost crystalize and scab up. They reminded me of chicken pox. They would scab for weeks and not heal much at all except for the blood clotting. If the scab was scratched off, it would bleed and bleed until it scabbed up again. The skin has lost its pigment where the scabs are. I figured it was probably either the plant I had trimmed around the 15th or some reaction to the magnesium complex I was taking or an allergic reaction to the asthma meds I was on. I stopped the asthma meds and the magnesium. The rash seemed to get better but when I took the asthma meds it flared up again so I went to the urgent care as my doctor was unavailable. The UC doctor said it probably wasn't the meds and asked about my diet. I said I was strict keto. I usually am, but there is a story around this. I feel amazing on keto. When I eat sugar, wheat, and starchy veggies I feel horrible. Blood sugar goes up, IBS type symptoms, brain fog, etc. But I have a horrible addiction to carbs so I blow it sometimes and after Mom died in 2023, I fell off the wagon. No rashes, just weight gain. I finally went back on keto and then around that time had a piece of pizza (or so, it's hard to stop the carb rush.) So I was strict keto, off and on. She ignored that and prescribed some allergy meds. It didn't go away.  What was happening by then was that the rash was now on my upper elbows, both of them, on the back of my arms. It starts with a very itchy bump, spreads around it and sometimes just burns like crazy and other times just itches. Then it started on the sides of my knees on the oustide, a little bit down the sides of the calves. It's not as bad there as it is on my arms even though it comes and goes (and so does wheat in my diet.) I then got three tiny blisters on each hand, 3 on the insdie of my index finger on the right hand and 3 on the inside of middle finger of my left hand. There is still a little scab there even though it was two weeks ago. No more have appeared on the fingers. But right now the back of the arms above my elbows are starting to itch. At some point I started to think mites from the possum that was sneaking into our house but it's been 3 months and they would be dead already. It wouldn't be from humans because I don't go near any humans although I did take an Uber to the doctor and the bus back. Plus, it's symmetrical. It starts on one side and is almost identical on the other.  I did my DNA with Ancestry and MyHeritage. I don't have the HLA-DQ2 or HLA-DQ8. I do have HLA-DQ2.2. I took the blood test but it was negative. Then again, I don't eat wheat every day. I rarely eat it except for lately when I've been preparing for the blood test if I have to take it again. I don't like to. It makes my joints hurt, gives me brain fog, stomach problems, I sleep in the middle of the day, etc. I have a doctor appointment tomorrow. I hope that she will be more serious about this than the UC doctor was.  So I have no idea. With my luck they'll magically disappear before the doctor appointment. That's what happens with everything.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.