Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

About Ten Days In.... Yikes!


beatha

Recommended Posts

beatha Newbie

Hi there,

So I am newly gluten-free - do not have a firm Celiac diagnosis due to insurance issues, but long story short I am 100% certain that I am either a Celiac sufferer or gluten intolerant.

But here's the deal - the first week gluten-free, felt great, like this veil of crud was lifted. Made it through a road trip for an athletic event (in which I was a participant, no less!) by bringing snacks and getting creative with meals. But now, the last two days I have been DYING to eat wheat. I am even overeating on veggies, meat and such to stay full so as to not eat gluten-filled foods.

Probably doesn't help that I am the cookie mom for my daughter's troop and thus literally have boxes of Girl Scout cookies everywhere... but still! They have been in the house the whole time, why now?

Things were fine at first (I am about a week and a half in - started Monday before last)... it is just the last couple of days. I just finished a big bowl of gluten free corn cereal with agave nectar to sweeten, and it did not even sort of tame the beast.

PLEASE ADVISE... what is going on, and what can I do about it? I cannot go back to how I felt a couple of weeks ago, I suffered immensely for three years before figuring out how to get better.

Thank you for anything you can offer,

Beatha


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dixiebell Contributor

Welcome to the forum Beatha.

It sounds to me like you are having withdrawls. You could try to eat more protein to help keep you full and possibly eat more meals and snacks throughout the day.

Can I ask what food you are craving? We might be able to help you with a gluten-free sub.

beatha Newbie

Welcome to the forum Beatha.

It sounds to me like you are having withdrawls. You could try to eat more protein to help keep you full and possibly eat more meals and snacks throughout the day.

Can I ask what food you are craving? We might be able to help you with a gluten-free sub.

Cookies, cake, just something sweet, goopy, and chewy. Just ran errands and was literally daydreaming about chocolate cake while driving... this is bizarre!

I have tried swapping in gluten-free cereal & fresh fruit for the sweetness, even nuts for the chewiness... but not a good fit thus far. I have some oatmeal in the house, but as it is Quaker oats I am leery to touch it - when I've had it in the past, it has caused some serious stomach issues.

How long does withdrawal typically last? Is this a result of my body flushing out the results of previously eaten gluten or something?

horseshoe Newbie

Hi there !

Sounds like withdrawal to me. A lot of food that we eat these days (processed stuff that contains wheat, hf corn-syrup, etc) has drug like effects on our bodies-- drug like in that these foods sort of stimulate the pleasure centers of the brains and prompts dopamine (a neurotransmitter) to be produced (brain science isn't my forte, and it's still a strange field, so a lot of what I'm saying here is surmising and logic.) This makes us happy. So going off of these foods that we have been conditioned to eat since we could eat foods (breads etc...) has the same sort of effect as if we quit smoking, or doing drugs. Suddenly those happy centers of our brains aren't being stimulated by the constant consumption of our friendly drug gluten. So then we have withdrawals.

Unfortunately there's not much we can do about it :(. Eventually the cravings will go away, but that might take time. It's like smoking... smokers crave nicotine long after they've quit.

Hang in there.

Dixiebell Contributor

Betty Crocker has some gluten free goodies and on the live gluten freely website they have many

recipies to make with the mixes.

Open Original Shared Link

Gluten Free Brownie Mix

Gluten Free Chocolate Chip Cookie Mix

Gluten Free Devil

eatmeat4good Enthusiast

This is probably the most unhelpful advice, but it is the truth.

I ate a Snickers every single day of my first month gluten free and I loved it.

It was my reward for staying off gluten and eating all meat and veggies all day long.

I eventually lost the craving for them too.

Now 1/4 of a Snicker bar is entirely too sweet for me.

But for that first month.... :unsure:

I'm tellin ya... ;)

Snickers really satisfies! :D

If you are a stronger woman than I am...you will politely ignore this advice!! :rolleyes:

horseshoe Newbie

*has a snickers fantasy*

Good grief. Now I want one :D.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StacyA Enthusiast

Cream cheese helped me through the cravings. I made cream cheese frosting (cream cheese, butter, vanilla, powdered sugar, sometimes also whipping cream/cool whip - there's a ton of different variations) and put it on a lot: cupcakes made with Betty Crocker chocolate cake, pumpkin rolls with gluten-free flour, Morning Glory cupcakes, strawberries...

Maybe it was the smooth, creamyness of it (I miss the gooeyness of gluteny stuff). I'm not sure. Also, dark chocolate also helps in the release of some nice neurotransmitters in the brain - Dove has always been safe for me.

beatha Newbie

Thanks guys,

Such good responses... so I totally caved and ate some Samoas and Tagalongs... and am very sorry for that now. Literally.

But I see it as a learning experience - I slept like crap and feel about like that, too, so all that is left is I guess hydrate and move on?

This is very challenging... I find myself second guessing and bargaining, trying to talk myself out of something I know to be accurate. I thought I was done with the stages of grief but I guess not.

It took me a month to make the change to gluten-free, the whole time kicking and screaming, trying to convince myself that I don't want to be different, I'm NOT different. But who isn't different? If anything, I am grateful for this situation because I think I will learn a lot about myself while navigating through it...

Lori2 Contributor

Just read an article recently stating that sugar was more addictive than cocaine.

wheeleezdryver Community Regular

Hi and welcome!

I think a lot of us know how you're feeling

(trust me, I understand the 'I don't want to be different' thing!!)

I have some oatmeal in the house, but as it is Quaker oats I am leery to touch it - when I've had it in the past, it has caused some serious stomach issues.

You are correct to be leery of the Quaker oats... any oats that aren't certified gluten free are cross-contaminated with wheat-- they are either grown in a field near wheat, &/or processed on the same production lines as wheat.

GFinDC Veteran

You might find this article interesting. It's about gluten mimicking opiates in the brain and gluten withdrawal.

If you search for "gluten opiate" you will find lots of info on it. This articles doesn't mean you are a druggie, just that your brain can have a craving for gluten. :) The first step is admitting you have a problem? :o:rolleyes::P:D

Open Original Shared Link

Jill0711 Rookie

I'm only a month and a half into this journey. I just wanted you to know that I felt exactly like you are describing when I eliminated gluten. It didn't help that because I was malabsorbing fat that my body craved it...and not the good kind. I will second the Snickers. They did help me get through that time. I will tell you that it does get better. I'm just now starting to feel like my appetite is leveling on and the cravings are lessening. Now if only I can eliminate sugar :rolleyes: I'm starting a whole foods only eating plan on Monday to try to see what other intolerances I have. I expect to go through the withdrawals all over again. It completely stinks, but it is worth it. Hang in there. Take it one day at a time and don't beat yourself up. This is a learning process and your body goes crazy trying to process all the changes and begin to heal.

txplowgirl Enthusiast

Welcome to the forum. Yes, definetly withdrawals, to help with the cravings take 500 mgs of magnesium. That will help with those sugar cravings. You will have intense hunger pains for a while. Your body is finally getting the nutrients it needs and is craving all it can hold. So, eat more protiens like meats and nuts. That will fill you up and keep you satisfied longer. And, eat whenever you feel hungry. Your body is getting rid of the gluten and needs nutrition so eat when ever you feel like it. But only whole unprocessed foods, none of the gluten free foods because they are higher in carbs and sugars which will defeat the purpose. Hang in there it does get better.

  • 2 weeks later...
beatha Newbie

Thank you so much to everyone that replied - the opiate connection makes a lot of sense!

I know this WILL get easier, eventually I expect it will become a new normal... but in the meantime... !

Thanks again :)

Takala Enthusiast

Typical American female diet is low fat high carb. A roller coaster of eating things that quickly break down into sugars, and then running out of fuel again.

Try eating more "good fats" such as coconut milk, coconut oil, avocado, olive oil, nuts. Put some mayo on things, for a treat. Cheese if you can tolerate it. More protein, more vegetables.

And try a gluten free calcium supplement, magnesium, B complex. Takes a while to get over the malnutrition. Your body interprets this as sugar cravings.

And chocolate rewards are entirely appropriate. :)

pondy Contributor

This is probably the most unhelpful advice, but it is the truth.

I ate a Snickers every single day of my first month gluten free and I loved it.

It was my reward for staying off gluten and eating all meat and veggies all day long.

I eventually lost the craving for them too.

Now 1/4 of a Snicker bar is entirely too sweet for me.

But for that first month.... :unsure:

I'm tellin ya... ;)

Snickers really satisfies! :D

If you are a stronger woman than I am...you will politely ignore this advice!! :rolleyes:

Snickers are gluten free? Whoa, Happy Days!!! You just made my week! :D

Jenn624 Rookie

The Betty Crocker Gluten Free Brownies saved my the first couple weeks off gluten! Hershey Bars and M&Ms too! Now I don't really crave it too often...I am on month 3!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,407
    • Most Online (within 30 mins)
      7,748

    H2HPizzaWagon
    Newest Member
    H2HPizzaWagon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.