Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustration Has Led To New Paranoia And Strictness...


healinginprogress

Recommended Posts

healinginprogress Enthusiast

Well, I've been gluten-free for just over two weeks with very little sign of improvement, if any. In fact, at times things have been worse, though I know some of that can be chalked up to withdrawal.

My most recent bout of bloated, crampy, gassy gluten-ness, however, has really upset me. I've been resisting certain changes...like getting a new toaster oven and pots and pans, and going dairy-free as well. But I am SOOOO sick of feeling like this, and need to figure out what is causing it!!! I like to cook sort of fancy and I've also been enjoying some of the gluten-free treats from the bakery, so regardless of keeping a food diary, it's been pretty much impossible to pinpoint the glutening culprit.

But tonight, all of a sudden, I went hyper-celiac. I started feeling like everything I touch has gluten in it!! That part has calmed down a bit, but my "paranoia" is definitely in high gear...but this is probably a GOOD thing! I packed up all my gluten-free breads and put them in the freezer, to be enjoyed only when I can afford to get a new toaster oven. I cleaned out the microwave. I vowed to give up dairy (at least for now) and to eat simple things so that I can more easily tell what is making me sick. I also vowed to be more careful about kissing my boyfriend, and handling the dog food and dog licking. Until I can buy new pots and pans, I will only eat what I can cook in the microwave or in the oven with some tin foil on a baking sheet/pan.

**QUESTION, THOUGH: Do I have to get NEW pots and pans, or can I clean one or two of the ones I already have really well and dedicate them to gluten-free only???

Problem is, I'm sort of feeling like a freak....like a germ-phobe almost, you know? Okay, not that germ-phobes are freaks, that's not what I mean...I've dealt with mental health my whole life, I think I'm just too worried about other people perceiving me as a paranoid freak. But I guess I should stop worrying about what other people MIGHT think, and just worry about getting well.

It really is just a whole new world...and not my favorite, to say the least :P Wish me luck...elimination diet it is.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

I cleaned my pots and pans-they are stainless steel. Are your pots and pans stainless or non-stick?

I also kept my toaster oven and just cleaned it real good and the rack the bread sits on is washable so that should be OK. My house went gluten free so the toaster oven is not used for gluten anymore and it hasn't made anyone sick yet, that I know of.

I think some people who live with gluten eaters wash the rack or put foil on it and they have been fine.

I guess I'm trying to save you from buying a new toaster oven. But if that is what you need to do, by all means do it.

I think for sure the dog and your partner could be glutening you. If you took care of those two things you will probably feel better.

Also, your secondary intolerances might be showing up so you are right to think about elimination diet. Soy was the biggest one for me. Nightshades, corn, you probably know them.

Good luck, I know it isn't easy. It isn't what I wanted to do, but I sure feel better for doing it.

I'm glad you went Hyper-Celiac today. You probably needed to.

I have my days too!

healinginprogress Enthusiast

LOL thank you, you're right, I probably needed it! And thank you for trying to save me from buying a new toaster oven...I've had this one for ages and cook so many things in it. My SO hasn't gone gluten-free, so I guess that's where my concern was. I cleaned it out, but could probably do a better job, and I was rinsing the rack every time before I used it, in case he'd used it in between.

So crumbs that happen to fall on the bottom of the oven (not the rack) won't gluten me??

And I have non-stick pans, nothing fancy/expensive, so pretty much all of them are scratched. I just read that they can harbor gluten if they're scratched...and so can wooden spoons and plastic cookware. yayyyyyyyyyyy (sarcasm LOL)

I'm really hoping I don't have many secondary intolerances...and if dairy is one of them, I hope it is temporary! Soy and corn would be sucky ones, too.

BUT best to find out. Feeling better will be soooooooooooo nice, I can hardly even imagine it, to be honest. Thank you so much for the advice, and for the encouragement :)

GFinDC Veteran

Just get one nice stainless steel pan with a lid, and you can do most anything in it. Non-stick pans are not good for you anyway, the coating flakes off and gets in your food and is not healthy. Or go to a thrift store or hardware store and get a nice cast iron pan. Just clean it real well and dedicate it to gluten-free forever.

A simple diet is easier to understand and interpret the effects on you. You can always add things but do it slowly one item at a time and not more frequently than every 3 days to a week.

Roda Rising Star

Off the subject but in another topic you mentioned you had several prescription medications that had gluten in them. Did you ever replace them with gluten free ones?

healinginprogress Enthusiast

Off the subject but in another topic you mentioned you had several prescription medications that had gluten in them. Did you ever replace them with gluten free ones?

I went to my pharmacy yesterday and they were pretty useless, but then I went to a more celiac-aware pharmacy and he investigated all my meds. He said none of them have gluten YAYYYYYY! But three of them do have lactose. I have my hydrogen breath test on wednesday, and I'm starting dairy free (aside from the meds) today, so we'll see whether I need to change them or if the lactose won't be a problem.

healinginprogress Enthusiast

Woke up with a headache and feeling nauseous, though...not a pleasant start.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

    2. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

    3. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,107
    • Most Online (within 30 mins)
      7,748

    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.