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I Feel Like I Make Stupid Mistakes....


Jenn624

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Jenn624 Rookie

I have been gluten-free since December 26th. I noticed a problem with wheat after my gallbladder removal in May. People told me that my bowel changes were due to my gallbladder removal and I foolishly believed them. I originally started the gluten-free lifestyle on a recommendation that it might help my hashimoto's thyroiditis and epstein-barr. It became immediately obvious that I have a gluten intolerance. Now even the smallest amount makes me sick for three days. I try to be diligent, but I feel like I am making a lot of mistakes. For example, a local grocery store carries a gluten-free chicken salad. I bought chicken salad at another store without really checking ingredients and have been really sick since yesterday. It's stupid moves like that that are driving me crazy! I have decided if a packaged product is not clearly labeled gluten-free, I'm not touching it. I've checked all my hair products and creams and had to replace some of those. My vitamin is labeled gluten-free. Hopefully I will get a better grip on all of this!!! I sure do feel good when I am 100% gluten free!


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etta694 Explorer

I am SOOO there. I keep making the little mistakes, or careless mistakes. I attributed it to fuzzy thinking ;) which I've had for years. It happens mostly when I am either out and about or in a hurry. Duh.. and then - yes, I feel crappy for a few days or more. I think as time goes by I'll get tired of 'shooting myself in the foot' and I'll be more careful. ME TOO!! I feel so good when I am totally gluten free :D .

Takala Enthusiast

It's not easy training one's self to be in a state of hyper paranoia about labeling. ;)

It's not stupidity.

Luddie Newbie

It's not easy training one's self to be in a state of hyper paranoia about labeling. ;)

It's not stupidity.

HOW TRUE! HOW TRUE!!

It does take a lot of work to follow this path.

Luddie :rolleyes:

anabananakins Explorer

You'll get there! It just takes awhile to get used to. But as soon as I read your message title I realised that I hadn't had a gluten nightmare in ages (by which I mean, dreams where I accidently eat something glute-y and I wake up in a panic trying to spit it out, lol). I think the dreams stopping probably reflects quite well how much more comfortable I feel, particularly having gotten through the holidays and moving into a new year. It does get better and easier :-)

notme Experienced

You'll get there! It just takes awhile to get used to. But as soon as I read your message title I realised that I hadn't had a gluten nightmare in ages (by which I mean, dreams where I accidently eat something glute-y and I wake up in a panic trying to spit it out, lol). I think the dreams stopping probably reflects quite well how much more comfortable I feel, particularly having gotten through the holidays and moving into a new year. It does get better and easier :-)

oh. my. gosh! i thought i was the only one who had these! i keep dreaming i'm packing for a road trip and people contaminate my meals. once i dreamt i forgot all my clothes because i was so worried about what i was going to eat.

Fire Fairy Enthusiast

oh. my. gosh! i thought i was the only one who had these! i keep dreaming i'm packing for a road trip and people contaminate my meals. once i dreamt i forgot all my clothes because i was so worried about what i was going to eat.

Hey, I haven't had any gluten nightmares in awhile either! I usually dream I have something gluten free like say gluten-free cupcakes and someone unthinking swaps it for the gluten version. :( I realize it just after swallowing a bite.

It's not easy being a label watch dog. :) I made the mistake of letting my dad buy the groceries without me and as soon as I opened the cabinets I saw gluten filled food. He can't see the labels so he just assumed all canned veggies were safe....wrong.


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txplowgirl Enthusiast

Hi there Jenn,

after 2 years I still make a boo boo every once in a while. It happens, I try not to worry about it.

Like last night I guess my son accidently glutened me, wasn't thinking, he offered me a bite of his steak salad and duh, I forgot that he had put croutons on it, and this morning my chest and tummy hurts and i'm having sharp pains run through my right foot every time I step on it and I just have this general rundown feeling and the one I really hate is every time I bend over I get dizzy and feel like I'm gonna faint. Kinda hard when you're trying to clean house.

Oh well, just have to wait it out.

As for the gluten nightmares, been there done that. Oh yeah, I believe anyone who is gluten free has had them. I believe it's natural for us. Lol,

Sorry for my rambling, lol, anyway, hang in there and it will get easier.

catsmeow Contributor

Hi Jen, what are your symptoms when you get glutened? I'm sick for 3 days too after getting glutened. I get a histamine reaction right away (hives,plugged ears, coughing, tight throat, itching from head to toe, with hot spots on my skin), followed by a 3 day migraine with bad joint pain. No gastro issues at all, I have a wheat allergy.

I also had to change all my beauty products. regular shampoo breaks me out in itchy hives on my head. The itching drives me insane!!

I swear, I could have written your post..It's been a year, and I still get glutened from time to time, and it's usually when I let my guard down....I hate when that happens!!!!!

I'm still having nightmares of accidently eating wheat, and waking up trying to spit it out. It's such a relief when I realize it was a just a nightmare..

It was so good to hear y'all share the nightmare thing.....thank you. I feel so alone with this problem. People just don't understand....

Jenn624 Rookie

Hi Jen, what are your symptoms when you get glutened? I'm sick for 3 days too after getting glutened. I get a histamine reaction right away (hives,plugged ears, coughing, tight throat, itching from head to toe, with hot spots on my skin), followed by a 3 day migraine with bad joint pain. No gastro issues at all, I have a wheat allergy.

I also had to change all my beauty products. regular shampoo breaks me out in itchy hives on my head. The itching drives me insane!!

I swear, I could have written your post..It's been a year, and I still get glutened from time to time, and it's usually when I let my guard down....I hate when that happens!!!!!

I'm still having nightmares of accidently eating wheat, and waking up trying to spit it out. It's such a relief when I realize it was a just a nightmare..

It was so good to hear y'all share the nightmare thing.....thank you. I feel so alone with this problem. People just don't understand....

My symptoms include a headache and horrible diarrhea where I literally have to run to the bathroom. I also get a rash on my rear end as well. I got glutened by the chicken salad on Thursday, and am starting to feel better today. I guess by tomorrow (DAY 3) I will be fine.

Thanks everyone for your replies! I teach school and have to go camping with my 5th graders next month as a field trip. I already told my coworker that I will only feel comfortable taking my own food. She kept saying that if I tell the kitchen, they could surely prepare some gluten free stuff for me. I had to tell her I wouldn't trust there wouldn't be cross contamination.

rachbomb Rookie

I make these kinds of mistakes all the time and even worse, there are times I KNOW that I got glutened but I can't figure out how. It seems like it might take a day or two for me to feel the worst of the symptoms and sometimes I just can not figure out what I did wrong. I have only been gluten-free for 2 months and it seems like I only can get 3 good days before I mess up again. As a side note, I discovered dairy was a bad idea about a week ago after I tried to reintroduce it. Is it possible that I am still just healing or am I really missing gluten somewhere? FRUSTRATING!!!

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    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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