Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Skin- Worse Before Better?

healinginprogress

Recommended Posts

healinginprogress Enthusiast
healinginprogress
Posted

Did anyone's skin get worse before it got better when going gluten-free? I don't have DH, and my skin isn't that bad, really...but what I do have are these little bumps that kind of look like pimples, though not usually pink or red, and if I squeeze them (I know, not supposed to squeeze/pick!), it looks like something should come out but it's just water/clear liquid.

I didn't have very many before, but over the past year as my health got worse, I got more of these bumps...mostly on my chin, jawline, cheeks, upper neck.

I started using gluten-free cleanser and face cream recently and I'm hoping that will clear it up, along with my new diet...maybe I just need more patience, but it seems almost like it's worse instead of better.

Just wondering if anyone has experienced something like this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cassP Contributor
cassP
Posted

Did anyone's skin get worse before it got better when going gluten-free? I don't have DH, and my skin isn't that bad, really...but what I do have are these little bumps that kind of look like pimples, though not usually pink or red, and if I squeeze them (I know, not supposed to squeeze/pick!), it looks like something should come out but it's just water/clear liquid.

I didn't have very many before, but over the past year as my health got worse, I got more of these bumps...mostly on my chin, jawline, cheeks, upper neck.

I started using gluten-free cleanser and face cream recently and I'm hoping that will clear it up, along with my new diet...maybe I just need more patience, but it seems almost like it's worse instead of better.

Just wondering if anyone has experienced something like this?

what you're describing sounds exactly like DH... little bumps/blisters with clear liquid coming out when squeezed.

i have some bumps on my forearms that come and go... but i had a small patch on my stomach that didnt even show up untill i went gluten free!! they came 3 weeks after i went gluten-free.. and they stayed for about 4 months.

healinginprogress Enthusiast
healinginprogress
Posted
  • Author

But they don't itch at all, and look nothing like the pictures when I google DH. I just really hope it goes away <_<

txplowgirl Enthusiast
txplowgirl
Posted

I have those at times on my upper shoulders and upper arms. They didn't start going away until I was a year into this. but they come back with a vengeance if I get glutened or if I have anything with potato starch. It's a bummer.

YoloGx Rookie
YoloGx
Posted

It could be DH or it could be an allergic reaction to your cleanser. I suggest you get something that is fragrance free as well as gluten-free.

Bea

healinginprogress Enthusiast
healinginprogress
Posted
  • Author

I was going to post pics, are we not able to do that?

eatmeat4good Enthusiast
eatmeat4good
Posted

You can post pics if you like.

It sounds like what my rash was like before it got really bad. DH

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


healinginprogress Enthusiast
healinginprogress
Posted
  • Author

yeah when I took pictures it looked a little more like DH than I thought. I guess I'll go to the doctor...if I find a spare moment UGH. Feeling really down right now. Not just about my skin, but everything. Regardless...is there anything you can do for DH? Or is it just gluten-free and wait it out? And why is it on my face, has anyone else had it one their face? I guess I should go to the DH forum.

eatmeat4good Enthusiast
eatmeat4good
Posted

I have it on my face.

10 lesions- they go down then flare again.

It is not fun. At least if it were on my limbs, I could cover it up with clothing.

I was misdiagnosed for a long time since it is on my face. Treated for fungus, acne, herpes, etc. on and on.

Since all the literature says DH does not occur commonly on the face, it may take some convincing to get a dermatologist to test you for it. But you may have better luck than I did.

I will tell you that iodine can activate the rash and lesions and you should avoid iodine temporarily until the rash heals. It takes both gluten and iodine to cause DH. It is very slow healing. This is 5 months now for me. I have made mistakes like eating shellfish, fish, using iodized salt. I thought eliminating gluten would be enough but it has not been.

One website said DH sufferers heal faster if they avoid dairy, eggs and peanuts in addition to gluten. But most of the literature says gluten and temoorary iodine avoidance are enough. I have become more vigilant about avoiding iodine, since I started this journey. Use uniodized salt.

For the pain, Walgreens makes a benzocain ointment calle Pain Relieving Ointment, but it is only temporary relief. The experts say that the antibodies can remain in the skin for up to 10 years and can easily be activated for several weeks just by accidental cross contamination. It is true in my case. Some people have healed after a few weeks gluten free, some after a few months. Some take up to 2 years according to Dr. Peter Green.

The DH forum is very helpful. I'm sorry you have to go through this. It adds a whole other layer to Celiac and food elimination. I too, have wondered how many have it on their face. I know of 2 others on this cite that I can recall. So I don't think it is entirely rare...just unrecognized maybe.

Ask any questions you like. This is a difficult thing to manage, and everyone here has been really helpful to me.

healinginprogress Enthusiast
healinginprogress
Posted
  • Author

Thank you, so much, eatmeat4good...I'm sure I WILL have more questions

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Flash1970
      - Flash1970 commented on Scott Adams's article in Additional Concerns
      1

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

      He should have gotten millions. How much is your life worth?
    2. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

      @cristiana, I react the same way. Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies. This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies. We have opioid receptors throughout our...
    3. knitty kitty
      0

      About Celiac Remission

    4. TheDHhurts
      - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      need help understanding testing result for Naked Nutrition Creatine please

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing...
    5. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Insomnia help

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated. So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly. I came off dairy completely next and it worked like a charm...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,106
    • Most Online (within 30 mins)
      7,748
    Maggie1349
    Newest Member
    Maggie1349
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @cristiana,  I react the same way.  Dairy consumption flushes out my digestive system within an hour, too! As casein is digested, it forms casomorphins that bind to opioid receptors in our bodies.  This is similar to digested gluten peptides being able to attach to opioid receptors in our bodies.   We have opioid receptors throughout our bodies including lots in the digestive tract. Casein raises tTg IgA antibodies just like gluten consumption does, which leads to further intestinal damage and continuing inflammation.  No wonder our bodies react to it by pushing the "emergency evacuation" ejection seat button! The mother of my childhood friend was British and introduced me to drinking tea properly with milk or cream.  I miss it so much.  And chocolate ice cream.  Not worth the after effects, though.  I've found taking Omega Three supplements (flaxseed oil, sunflower seed oil, evening primrose oil) helps shake those dairy cravings.   Green leafy veggies like broccoli, kale, and greens (mustard, turnip, collards) are great sources of calcium.  Avoid spinach as it is high in oxalates that block calcium absorption and may cause kidney stones.  Yes, more leafy greens are needed to reach the same amount of calcium in a glass of milk, but the greens have other benefits, like increased dietary fiber and polyphenols that act as antioxidants, reduce inflammation, and promote health.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards.  The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.   Some people in remission report being able to consume gluten again without consequence.  Another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.  
    • TheDHhurts
      need help understanding testing result for Naked Nutrition Creatine please

      By TheDHhurts · Posted

      Hi, I bought Naked Nutrition Creatine. It lists itself as gluten free but is not certified. (It used to be, but they dropped it in the past year or two apparently.) I wrote the company and asked them what testing results they had for creatine and they sent me the attached, which says the test result for gluten is <0.025MCG. I'm used to seeing test results as ppm, so I'm not sure what <0.025MCG means. Can it be converted to ppm easily? I want to confirm that it is safe to use.
    • cristiana
      Insomnia help

      By cristiana · Posted

      When I was still recovering my gastroenterologist suggested I bought lactofree product as I was very bloated.  So I bought some from the supermarket and from memory, I drank a nice big glass of milk - and it went right through me literally within an hour or so, if my memory serves correctly.  I came off dairy completely next and it worked like a charm, but started to reintroduce quite gradually it as I missed it! To this day, if I overdo dairy products, they work like a mild laxative.  I've never wanted to give up milk completely as I like it so much, and my mum had osteoporosis and it's an easy way of getting calcium.  But it doesn't really 'sit' well with me.   You may need to experiment a bit as when I was healing certain dairy products were worse than others - I could cope with one brand of Greek yoghurt, but I got extremely and painfully bloated with another brand of live British yoghurt.  
    • wellthatsfun
      nothing has changed

      By wellthatsfun · Posted

      i have been strictly gluten free for 7 months. this includes avoiding anything that may contain gluten and making sure surfaces and appliances are clean. i am 18 years old in australia and my tTG-IgA results were 69U/mL, pretty low compared to most people's, for reference. i feel the exact same as before. sure, i was pretty much asymptomatic/silent. the worst i'd get was occasionally bad stools and pitting of the nails/brittle hair since early childhood - and i was diagnosed with low iron and vitamin d which checks out due to easy bruising and such. but those symptoms have remained. maybe i'm jumping the gun, sure. i know it can take years to fully heal. but being over half a year in, i feel that i should be, y'know, healing. i'm nearly at my wits end and wondering if i should have a piece of bread or something to see how i go - to see if i possibly have refractory? my mental health is declining as i feel myself wanting to bang my head against a damn wall out of frustration every day. cravings haven't gotten better. look, i love the stuff i still can have, like salads and such. OH! i haven't lost any weight, which is mind boggling considering i eat very healthily now! i've always been on the chubbier side which is atypical of coeliac. i just don't know what's going on with me. i try to remain hopeful but i'm just so sad all the time. thanks for reading  
    • trents
      Severe severe mouth pain

      By trents · Posted

      @Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.  Are you realizing that in my PPI taper down recommendations in an earlier post above, I was responding not to your posts but to @Caligirl57? If you must use a PPI, I certainly would advise taking the lowest dose that is effective for you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.