Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

If You Get Glutened Friday Night, You Feel The Effects ________


Gardening

Recommended Posts

Gardening Apprentice

You feel the effects when? Friday night? Saturday morning? Later?

Both my daughters are gluten sensitive/celiac, and I've been off gluten for 6 months - very strict - to see if it would help my fibromyalgia. It didn't seem to help. I tried something with gluten a week ago as a test, and didn't see any effects. So Friday night, my husband and I went out to dinner and I didn't bother with staying gluten-free. I seemed fine on Saturday. We had a late Saturday dinner (gluten-free)and I immediately had some stomach discomfort. Intestinal pain overnight and then some cramping/loose stool on Sunday around noon.

So... could it have been a delayed gluten exposure? Or did I eat something bad Saturday night?

I'm mostly curious, though, to hear your experiences. I sometimes struggle with tracking down the source of x-contamination/accidental gluten exposure for one of my daughters who seems highly sensitive.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

Sounds like a delayed reaction to me. Everyone's different but reactions can be delayed up to 3 days. I usually get my neuro symptoms right away (headaches, blurred vision, naseaua, balance issues, brain fog, etc, etc) but my digestive symtpoms are more subtle--I have C for a two-three days followed by several days of D. It takes me a good week to 10 days to fully recoved from a glutening if it's a bad one. The last one I had really bad was from eating pasta that was supposed to be gluten-free but was not (restaurant brought me the wrong stuff).

I hope you feel better soon!

AzizaRivers Apprentice

Could be. For me it often varies, sometimes I wouldn't feel the full effects of a Friday night glutening until Sunday morning. My gluten reactions always wait until morning, for some reason.

eatmeat4good Enthusiast

Me too...delayed reaction. I will think I got away with eating gluten free in a restaurant then the next day I feel slightly off or tired and the next day I have a full on migraine, nausea, diarrhea, and depression with muscle aches and pains. Lasts 3 more days to a week before I start feeling normal.

T.H. Community Regular

could be either, I'd say. Only way to tell is if you try it again, I imagine. Maybe you could have the same foods, even.

For me, I get neuro symptoms within about 20 minutes, at the latest. My father reacts with gut issues the next day or the day after.

ravenwoodglass Mentor

I also get neuro symptoms within 24 hours but the gut reaction can take up to 3 days for me. I will have gas and stomach pain for a day or two before the D hits. Intolerance reactions are often delayed.

aeraen Apprentice

I haven't been able to pinpoint it anymore. I used to be able to say "20 minutes", but lately I've been getting hit w/ sudden D out of the blue, and I know the last thing I ate was gluten free (such as a salad).

I've decided to be a little more pro-active about it and keep a food diary for a month or so, document what I ate and when, on one page and how I (and my tummy) feel on the opposite page. By following the pattern, I just might find out that I'm reacting to something I ate a day or two before.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



maile Newbie

Neuro symptoms within 1-2 hours (usually insomnia) gut symptoms 10-12 hours after the fact. get D if it's been a while since glutened but I echo the 7-10 day recovery window..if I"m unfortunate enough to get glutened again within the 7-10 days I get C instead of D

brendab Contributor

Stomach pain within 20 min. neurosymptoms soon afterwards and lasting for several days. Gas comes hours after exposure. I was told it was IBS, tested neg. for celiac.

glutenfreesavvy Rookie

I think you suffered a gluten reaction as well. I think one of the most frustrating things about getting glutened (besides the obvious ickiness!) is the symptoms can manifest differently over time. My personal experience, along with researching others' experiences, that symptoms can go in cycles...you react the same for a while, then all of sudden symptoms change around some. I've wondered why that is...maybe changes in our nutritional profile (deficiency in certain nutrients?), stress level, amount of gluten contamination??? I don't know & I'm not sure how easily anyone could actually test that... ;)

Personally, I usually react immediately - or at least within 30 minutes of being in contact with gluten. Although, I've noticed a few times symptoms don't seem to arise until the next day. When that happens, I'm assuming it's a very, very slight cc. (I'm extremely sensitive - can't eat in restaurants (with a few exceptions, yay PF Changs!!!), gotten sick via air & skin exposure, basically eat everything from scratch & prepared fresh in my kitchen)

Since you have fibro & children with gluten issues along with this recent reaction, I wouldn't advise you to eat gluten again. Of course, I'm not a doctor, just an avid health researcher & gluten "hater". :D (Oh, I'm not really a gluten hater...I just hate what it does to my body.) The experts still don't have a full understanding of this gluten thing - what causes it, all the different manifestations of it - celiac, gluten intolerance, gluten ataxia, etc. I've gotten to be so protective of my health, taking any risk is just not worth it, imho.

So sorry to hear you were sick. I hope you're feeling better now. :)

Warmly,

Faydra

Gardening Apprentice

Thank you for all your feedback.

Just to complicate issues ;) My 5 year old woke up with belly pain last night. Felt like she was going to throw up in the morning, then it went away. By 1pm, she had thrown up at a friend's house. Felt naseous the rest of the evening, D at bedtime, and just woke up to throw up again. She's clearly sick.

Now I remember that late last week, when my 3 year old had D for no reason I could trace at all, she was extremely cranky (my husband kept asking me if she had a fever) and complained that her tummy hurt (which she never does when she's having a reaction).

So... I think a bug went around my family.

Also, I'm being tested for Lyme - my practioner thinks that my non-typical fibro isn't fibro at all.

Unfortunately, nothing happens in a vaccum. I plan to stay gluten-free for another week or so, then test again.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.