Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Had Allergy Testing Today And I Have Questions


cahill

Recommended Posts

cahill Collaborator

I saw an allergist today. He talked to me ,,briefly <_< and then ordered some blood work. I felt rushed in and out .... anyway,,,,,

He said

1.. blood test are more accurate then skin testing for allergys

2.. even though I am not currently eating the foods I am being tested for, it will still show up in the blood test if I am allergic

What do you guys think, does he know what he is talking about ??or is this just another doc blowing smoke ??.....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

I don't know but I'm interested in everyone's responses. I go to see and allergist next week.

cahill Collaborator

I was not sure the doc was even listening to me until I started telling him about the elimination diet I have been doing ,He actually turned and looked at me then , and the nurse said to me " good for you" :) I like nurses more and more :) doctors I am not to sure about any more :ph34r:

GlutenFreeManna Rising Star

I was not sure the doc was even listening to me until I started telling him about the elimination diet I have been doing ,He actually turned and looked at me then , and the nurse said to me " good for you" :) I like nurses more and more :) doctors I am not to sure about any more :ph34r:

I'm just curious, are any of your reactions anaphylactic or hives-producing or are they more like intolerances like gluten? I have the reaction where my tongue swells up or my throat closes when I eat shellfish, pork, and now just recently dairy. I break out in hives from mushrooms and lotions with wheat germ oil in them. I'm really looking forward to my appointment with the allergist to see what they say. I hope mine is not as dissappointing. I just recently found a dr that is good about listening to me. She doesn't know much about celiac/gluten intolerance but she at least encouraged me to continue to avoid it (and all my suspected allergy foods) if it makes me sick. So don't give up lookign for a good dr that will listen. They are out there but they are hard to find!

cahill Collaborator

I'm just curious, are any of your reactions anaphylactic or hives-producing or are they more like intolerances like gluten? I have the reaction where my tongue swells up or my throat closes when I eat shellfish, pork, and now just recently dairy. I break out in hives from mushrooms and lotions with wheat germ oil in them. I'm really looking forward to my appointment with the allergist to see what they say. I hope mine is not as dissappointing. I just recently found a dr that is good about listening to me. She doesn't know much about celiac/gluten intolerance but she at least encouraged me to continue to avoid it (and all my suspected allergy foods) if it makes me sick. So don't give up lookign for a good dr that will listen. They are out there but they are hard to find!

The reason I decided to go to an allergist is because when I added eggs and almonds back , I had reactions that concerned me.

With eggs, my lips swelled as soon as I put them in my mouth and my nose started itching.

With almonds my throat got all scratchy and tight, I felt like someone was sitting on my chest .

What is very,very scary is I had been eating both on a daily bases not 8 weeks before .

There were others but those two concern me most .

As to a good doc,,,Maybe they are out there some where,,,I just haven't found one yet

Roda Rising Star

DS2 had both skin testing and the blood (RAST) testing and everything was negative. We tested DS2 for wasp allergy and it was negative on blood work, but then he told me even though it was negative doesn't mean he isn't allergic. :blink: It's so confusing.. Anyway all I know, and he agrees with me, is that each time he was stung by a yellow jacket his reaction was worse. It still was classified as a local reaction, but next time it may not be. He is going to get us a rx for an epi pen just in case. So all that really probably did was confuse you more. DS1 has only had skin testing done and you can see an immediate reaction on his skin to what he is allergic to. The spots swell up like hives and are really itchy for him. He is back to doing two allergy shot twice a week again. Then our allergest told me that everything could be negative and yet you still could have an intolerence to something. He is the one who is telling me that both my kids need to be gluten free. At least at this point one is and the other, I suspect will be by summer after hubby and I agree on the route we are taking.

PS. Maybe why we love him so much is the fact he is a nurse practitoiner. He is so down to earth. He does consult with a top notch allergist in his group so we have that backing too.

GlutenFreeManna Rising Star

The reason I decided to go to an allergist is because when I added eggs and almonds back , I had reactions that concerned me.

With eggs, my lips swelled as soon as I put them in my mouth and my nose started itching.

With almonds my throat got all scratchy and tight, I felt like someone was sitting on my chest .

What is very,very scary is I had been eating both on a daily bases not 8 weeks before .

There were others but those two concern me most .

As to a good doc,,,Maybe they are out there some where,,,I just haven't found one yet

That is scary and I can relate! With dairy I suspected lactose intolerance so I avoided it for six months along with gltune then I added it back ina nd seemed to be fine with it. Then one night I ate a yogurt and couldn't breath--my tongue was swellign up and I thought I was going to have to go to the ER. I managed to get a benedryl down and it helped before my throat closed all the way, but boy was that scary! The week after that I had a little butter by accident and my lips tingled and my tongue got puffy. I also had been eating cheese and milk all my life without these severe reactions before.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

DS2 had both skin testing and the blood (RAST) testing and everything was negative. We tested DS2 for wasp allergy and it was negative on blood work, but then he told me even though it was negative doesn't mean he isn't allergic. :blink: It's so confusing.. Anyway all I know, and he agrees with me, is that each time he was stung by a yellow jacket his reaction was worse. It still was classified as a local reaction, but next time it may not be. He is going to get us a rx for an epi pen just in case. So all that really probably did was confuse you more. DS1 has only had skin testing done and you can see an immediate reaction on his skin to what he is allergic to. The spots swell up like hives and are really itchy for him. He is back to doing two allergy shot twice a week again. Then our allergest told me that everything could be negative and yet you still could have an intolerence to something. He is the one who is telling me that both my kids need to be gluten free. At least at this point one is and the other, I suspect will be by summer after hubby and I agree on the route we are taking.

PS. Maybe why we love him so much is the fact he is a nurse practitoiner. He is so down to earth. He does consult with a top notch allergist in his group so we have that backing too.

The intolerances I can deal with .It is the possible anaphylactic reactions that I am concerned about.Once I eliminate that possibility ,hopefully , I can concentrate on healing my gut and eventually eliminating most of the intolerances.

If we can at least eliminate the possibility of an anaphylactic reaction the 1 1/2 hour drive ,each way, to see the allergist will be worth it.

But to be honest guys, I am about done with doctors .I had the appointment with the allergist yesterday. I have an appointment with a new endocrinologist today , I am hoping that goes better than yesterday :unsure: . Then gastroenterologists in about 2 weeks .I had to INSIST my PCP give me those referrals :angry: .I am just waiting until all my appointments are completed to fire my current PCP. I am not sure I can find a PCP that is more knowable but at least I hope I can find one that is not harmful and will listen to me :unsure:

mushroom Proficient

I guess you will find out from the test results how much smoke the guy is blowing :P Having had anaphylactic-type responses to eggs and almonds, if you test not reactive to them then pretty much you can say he was puffing :unsure: because you definitely should not with those reactions be eating those things. Although, given your story I would guess those results will be positive. I really know very little about allergy testing, have only had skin testing myself and found it a little bit helpful. At least it did pinpoint that I had a "slight" problem with corn and soy. I have never had an anaphylactic response to anything, although my husband has, to raw fish, and to hornets/wasps. He has had a desensitization series for insect stings and carries an Epi-Pen. It is not something to mess around with because it can kill you. With the raw fish, the allergist (a good one) told him that it was a problem of food being absorbed at the wrong level in the intestine which makes a lot of sense now that we know about leaky gut, and now we find out that my husband is a celiac. So if you can heal your presumed leaky gut maybe your reactions to these foods will go away, once they get absorbed in the proper state of digestion.

I will be interested to hear of your results. My husband, incidentally, had skinprick testing, not blood testing.

cahill Collaborator

I guess you will find out from the test results how much smoke the guy is blowing :P Having had anaphylactic-type responses to eggs and almonds, if you test not reactive to them then pretty much you can say he was puffing :unsure: because you definitely should not with those reactions be eating those things. Although, given your story I would guess those results will be positive. I really know very little about allergy testing, have only had skin testing myself and found it a little bit helpful. At least it did pinpoint that I had a "slight" problem with corn and soy. I have never had an anaphylactic response to anything, although my husband has, to raw fish, and to hornets/wasps. He has had a desensitization series for insect stings and carries an Epi-Pen. It is not something to mess around with because it can kill you. With the raw fish, the allergist (a good one) told him that it was a problem of food being absorbed at the wrong level in the intestine which makes a lot of sense now that we know about leaky gut, and now we find out that my husband is a celiac. So if you can heal your presumed leaky gut maybe your reactions to these foods will go away, once they get absorbed in the proper state of digestion.

I will be interested to hear of your results. My husband, incidentally, had skinprick testing, not blood testing.

I guess we will see when the results come in :P meanwhile I am just going to concentrate on healing my gut and stay way from eggs and almonds

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,051
    • Most Online (within 30 mins)
      7,748

    Anna4386
    Newest Member
    Anna4386
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.