Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Social Difficulties And Anxiety


jasonD2

Recommended Posts

jasonD2 Experienced

ive obviously come a long way and am very comfortable ordering gluten free food in restaurants under most circumstances, but i still get this jolt of anxiety when people ask to go to dinner or bring food into plans...like every time!

I just got out of an 8 month relationship. she seemed very tolerant and accepting of my dietary needs but i know deep down it became a problem for her in the long run. she will eat anything anywhere and weve been unable to eat out at some of her favorite restaurants together, which i know upset her. on the flip side i had a problem with her diet...she ate mostly junk food and drank a lot (with an alcohol allergy mind you). over time she became a moody angry person and it wasnt even fun to be around her so we ended things and now i have to go back out into the world and find a girl who will be accepting of my diet and not let it bother her if i choose to lead a healthy lifestyle and not eat things that will make me sick. at the very least i need a partner who believes in a healthy active lifestyle, who takes care of her body and mind and all that good stuff. i hope she is out there :)

Still what im getting at is the the fact that its so frustrating to have this condition while attempting to have a normal social life. i feel like people just dont get it and i always wind up looking like the odd ball at the dinner table for asking the server if there is any gluten in the sauce.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

With the warm weather coming up, maybe you could invite people to your place and grill. Try to do things that are not so food involved like a movie or bowling, concert..whatever.

I was reading about this too singleswithfoodallergies.com It's a dating service for people with food allergies like match.com

YoloGx Rookie

I have gone through this, go through this. In time it gets a little easier. Thank god I now have someone where this just isn't an issue. However I remember this dilemma well. It is easy to feel socially ostracized and misunderstood. However there are ways around that plus ways to make it into a virtue.

Like the last poster suggested, think of alternative things to do. One thing I have done is invite x on a walk with a small picnic, but one where I prepared all the food. Going to the zoo, an art museum or gallery, a poetry reading, a play, musical performance are all good alternatives to going out for dinner. And later when you do actually go out to dinner, choose a reliable gluten-free restaurant.

As far as social embarrassment with a possible date, its helpful to remember there are others out there with far worse problems--like diabetes etc.

If someone can't love you for yourself and accept your needs, your really don't want to be with them anyway, do you? In a way having this condition helps one cut to the chase by flushing out selfish, grasping people. It looks like you are on the right road--you want someone who takes care of themselves just as you do for yourself too. Die hard junk food eaters who refuse to consider eating any other way often indicates a poor self image, someone who can't really love any one else since they don't love themselves.

Meanwhile, take up a hobby and pursue it, maybe take a class or two in it or get involved in a club or some kind of artistic or other social events. I have often met the best people that way--including my current significant other.

Bea

Cattknap Rookie

If I know we are going to be going out to a restaurant with a group of people, I call ahead and talk to the manager and get a list of what they have that is gluten free. Then when I arrive at the restaurant, I can order without the waiter or waitress running back to check with the chef in order to try to accommodate me (while inconveniencing our friends).

I really try to downplay my condition - I don't want it to be the center of attention or conversation at every social event where there is food. Sometimes I eat at home first if I'm not sure what restaurant we are going to be going to or what food will be available at a party - then I'll order a house salad with plain broiled chicken and ask for extra lemon.....there are things you can do to minimize the hassle of eating out.

T.H. Community Regular

I think sometimes finding hobbies that also encourage healthy habits/eating can make it more likely you'll find someone who 'gets' eating a certain way.

Sports hobbies, like biking, mountain climbing, hiking clubs - those might do. Health conscious folks there, ya know? Gardening clubs, too, that are focused on organic gardening, at least.

Cooking classes for particular trends or diets, like gluten free, vegetarian, etc... might be a good place to meet people of like minds. :-)

Fire Fairy Enthusiast

Cooking classes for particular trends or diets, like gluten free, vegetarian, etc... might be a good place to meet people of like minds. :-)

I think this a great point especially as you will probably be greatly out numbered by the women. :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,192
    • Most Online (within 30 mins)
      7,748

    DenisC
    Newest Member
    DenisC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.