Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Appetite


rgarton

Recommended Posts

rgarton Contributor

Sorry im new here and im sure there are hundreds of posts similar but i was diagnosed in January as Coeliac, and have been gluten free since, except the slip up of drinking diet coke which doesn't agree with me at all! I was just over 10st and now im 8st 3, i can't seem to put the weight back on yet, I'm 5,7" btw. I've only just started to notice the difference its making but my appetite is driving me insane! I don't have one! Then when i do eat i feel light headed so i eat then i get shaky... Seems i can't win! I'm still really tired from being severely anemic but i just want to be better! So envious of the people that seem to feel better nearly instantly! Any tips? Natural ways to increase appetite? Thanks guys.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

I struggle with having no appetite at all. I never want to eat. I know it was really bad in the beginning and now it is still an effort to eat. If I did what I wanted I would only eat once a day. BUT my body needs to heal and needs energy to do that. So I started making myself eat a measured amount of nuts in the morning. A chicken breast for lunch and some kind of meat for supper. The increased protein has really made a difference. I try to finish all the meat first because protein builds new cells, then I flesh it out with some veg or fruit or more nuts. But to be honest with you my appetite isn't there at all...I just do it cause it is right. I think probiotics can help that. Reduced motility is what they call it medically...I'm not sure of the right way to handle it, but I noticed by day 3 that I felt a whole lot better and more clear mentally. Hope this helps some...at least you know you are not alone

  • 3 weeks later...
rgarton Contributor

I struggle with having no appetite at all. I never want to eat. I know it was really bad in the beginning and now it is still an effort to eat. If I did what I wanted I would only eat once a day. BUT my body needs to heal and needs energy to do that. So I started making myself eat a measured amount of nuts in the morning. A chicken breast for lunch and some kind of meat for supper. The increased protein has really made a difference. I try to finish all the meat first because protein builds new cells, then I flesh it out with some veg or fruit or more nuts. But to be honest with you my appetite isn't there at all...I just do it cause it is right. I think probiotics can help that. Reduced motility is what they call it medically...I'm not sure of the right way to handle it, but I noticed by day 3 that I felt a whole lot better and more clear mentally. Hope this helps some...at least you know you are not alone

Thank you, unfortunately i'm vegetarian, have been since i was 4, im now 21. I've never craved it or wanted meat so i listen to my body. But protein is the way to go! Will start eating more nuts and stuff... Really does suck not having an appetite... Thanks again.x

monika Newbie

Thank you, unfortunately i'm vegetarian, have been since i was 4, im now 21. I've never craved it or wanted meat so i listen to my body. But protein is the way to go! Will start eating more nuts and stuff... Really does suck not having an appetite... Thanks again.x

You might want to try Blue Diamonds Almonds. They are Great! and peanut free!!!

I live off of that... I've also noticed that my appetite has diminished to nothing. It's horrible.

Juliebove Rising Star

I don't have celiac but I do have gastroparesis. That means I digest my food more slowly than normal and this causes no appetite most of the time. I am also diabetic so to keep my blood sugar stable, I should eat on a schedule. However because I wasn't hungry I keep delaying my meal by an hour...then another hour... That did work for me so well!

I am also limited as to what I can eat. By the diabetes. By the gastroparesis. And then food allergies. So I take what is left and try to focus on what I like of those foods and then try to come up with balanced meals. Yes, I do take a lot of supplements because it is hard for me to get what I need.

I am overweght though. I need to lose but can't see to.

What seems to help me is to surround myself with food. I find if I watch cooking shows on TV, something will look good to me and I will eventually want it. Or the smell of food might make me want it. For instance, when I step into Target, I smell the popcorn and then I want it! I can't always finish the bag. Most of the time daughter and I will each get a bag (they are small) and eat half. We'll combine them into one bag, put the empty bag over the top as a cover and she will take it home to eat later.

Even posting here or reading the posts seems to help because I will read about things that sound good and that will tend to stimulate my appetite.

Dr. B Newbie

You might be taurine deficient and taurine plays a very important role in the body. You might also have systemic candidiasis, which causes weight loss, anemia and auto-immune diseases.

I have found that the body seeks it's ideal weight and so I wouldn't worry about it. Sometimes the "loose skin" that results from the weight loss, that results from going gluten free, is a little scary....but the skin will tighten up after 2-3 months.

I have also found that the "cleansing" process the body goes through when changing to a gluten free diet can cause the loss of appetite. I, personally, went down to 128 pounds, before going back up to 135-140 pounds (20 BMI). Before I was gluten free (and grain free), I weighed 155-160 pounds. People say I look thin, but they are just the ones that are used to seeing me with love handles and droopy jowls, etc... all now which are gone. :-) It takes many months for the

shadowicewolf Proficient

Same, however at the moment, i have just been 'grazing' by eating a little bit here and there. If i don't eat something i get light headed :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
order Newbie

I've been diagnosed as Wheat allergic 11 days ago, and since then, my appetite has diminished to nothing. I've removed wheat completely from my diet, which is most gluten products that celiacs also have to remove. I was also diagnosed peanut intolerant, so there are not many foods I can go by anymore. I have to force myself to eat 2 small gluten-free crackers in the morning, and live off half a carton of yogurt (fat free) with a bit of cucumber and some meat... but I force myself to eat, otherwise, I'd plan on not eating at all. I have to eat, otherwise I get weak, and my tummy rumbles at me like crazy.. I'm currently overweight, and I suspect I'll lose quite a bit during this process... My question is, will I ever regain my appetite?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.