Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Appetite

rgarton

By rgarton
in Related Issues & Disorders

Recommended Posts

rgarton Contributor
rgarton
Posted

Sorry im new here and im sure there are hundreds of posts similar but i was diagnosed in January as Coeliac, and have been gluten free since, except the slip up of drinking diet coke which doesn't agree with me at all! I was just over 10st and now im 8st 3, i can't seem to put the weight back on yet, I'm 5,7" btw. I've only just started to notice the difference its making but my appetite is driving me insane! I don't have one! Then when i do eat i feel light headed so i eat then i get shaky... Seems i can't win! I'm still really tired from being severely anemic but i just want to be better! So envious of the people that seem to feel better nearly instantly! Any tips? Natural ways to increase appetite? Thanks guys.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eatmeat4good Enthusiast
eatmeat4good
Posted

I struggle with having no appetite at all. I never want to eat. I know it was really bad in the beginning and now it is still an effort to eat. If I did what I wanted I would only eat once a day. BUT my body needs to heal and needs energy to do that. So I started making myself eat a measured amount of nuts in the morning. A chicken breast for lunch and some kind of meat for supper. The increased protein has really made a difference. I try to finish all the meat first because protein builds new cells, then I flesh it out with some veg or fruit or more nuts. But to be honest with you my appetite isn't there at all...I just do it cause it is right. I think probiotics can help that. Reduced motility is what they call it medically...I'm not sure of the right way to handle it, but I noticed by day 3 that I felt a whole lot better and more clear mentally. Hope this helps some...at least you know you are not alone

  • 3 weeks later...
rgarton Contributor
rgarton
Posted
  • Author

I struggle with having no appetite at all. I never want to eat. I know it was really bad in the beginning and now it is still an effort to eat. If I did what I wanted I would only eat once a day. BUT my body needs to heal and needs energy to do that. So I started making myself eat a measured amount of nuts in the morning. A chicken breast for lunch and some kind of meat for supper. The increased protein has really made a difference. I try to finish all the meat first because protein builds new cells, then I flesh it out with some veg or fruit or more nuts. But to be honest with you my appetite isn't there at all...I just do it cause it is right. I think probiotics can help that. Reduced motility is what they call it medically...I'm not sure of the right way to handle it, but I noticed by day 3 that I felt a whole lot better and more clear mentally. Hope this helps some...at least you know you are not alone

Thank you, unfortunately i'm vegetarian, have been since i was 4, im now 21. I've never craved it or wanted meat so i listen to my body. But protein is the way to go! Will start eating more nuts and stuff... Really does suck not having an appetite... Thanks again.x

monika Newbie
monika
Posted

Thank you, unfortunately i'm vegetarian, have been since i was 4, im now 21. I've never craved it or wanted meat so i listen to my body. But protein is the way to go! Will start eating more nuts and stuff... Really does suck not having an appetite... Thanks again.x

You might want to try Blue Diamonds Almonds. They are Great! and peanut free!!!

I live off of that... I've also noticed that my appetite has diminished to nothing. It's horrible.

Juliebove Rising Star
Juliebove
Posted

I don't have celiac but I do have gastroparesis. That means I digest my food more slowly than normal and this causes no appetite most of the time. I am also diabetic so to keep my blood sugar stable, I should eat on a schedule. However because I wasn't hungry I keep delaying my meal by an hour...then another hour... That did work for me so well!

I am also limited as to what I can eat. By the diabetes. By the gastroparesis. And then food allergies. So I take what is left and try to focus on what I like of those foods and then try to come up with balanced meals. Yes, I do take a lot of supplements because it is hard for me to get what I need.

I am overweght though. I need to lose but can't see to.

What seems to help me is to surround myself with food. I find if I watch cooking shows on TV, something will look good to me and I will eventually want it. Or the smell of food might make me want it. For instance, when I step into Target, I smell the popcorn and then I want it! I can't always finish the bag. Most of the time daughter and I will each get a bag (they are small) and eat half. We'll combine them into one bag, put the empty bag over the top as a cover and she will take it home to eat later.

Even posting here or reading the posts seems to help because I will read about things that sound good and that will tend to stimulate my appetite.

Dr. B Newbie
Dr. B
Posted

You might be taurine deficient and taurine plays a very important role in the body. You might also have systemic candidiasis, which causes weight loss, anemia and auto-immune diseases.

I have found that the body seeks it's ideal weight and so I wouldn't worry about it. Sometimes the "loose skin" that results from the weight loss, that results from going gluten free, is a little scary....but the skin will tighten up after 2-3 months.

I have also found that the "cleansing" process the body goes through when changing to a gluten free diet can cause the loss of appetite. I, personally, went down to 128 pounds, before going back up to 135-140 pounds (20 BMI). Before I was gluten free (and grain free), I weighed 155-160 pounds. People say I look thin, but they are just the ones that are used to seeing me with love handles and droopy jowls, etc... all now which are gone. :-) It takes many months for the

shadowicewolf Proficient
shadowicewolf
Posted

Same, however at the moment, i have just been 'grazing' by eating a little bit here and there. If i don't eat something i get light headed :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 1 year later...
order Newbie
order
Posted

I've been diagnosed as Wheat allergic 11 days ago, and since then, my appetite has diminished to nothing. I've removed wheat completely from my diet, which is most gluten products that celiacs also have to remove. I was also diagnosed peanut intolerant, so there are not many foods I can go by anymore. I have to force myself to eat 2 small gluten-free crackers in the morning, and live off half a carton of yogurt (fat free) with a bit of cucumber and some meat... but I force myself to eat, otherwise, I'd plan on not eating at all. I have to eat, otherwise I get weak, and my tummy rumbles at me like crazy.. I'm currently overweight, and I suspect I'll lose quite a bit during this process... My question is, will I ever regain my appetite?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    2. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    3. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    5. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,696
    • Most Online (within 30 mins)
      7,748
    Knotalota
    Newest Member
    Knotalota
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.