Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

#*($&, $@#(*&!


thleensd

Recommended Posts

thleensd Enthusiast

SO frustrated right now. I don't eat out, I try to buy trusted brands, I rarely buy gluten-free processed foods... and I don't know if it's gluten or something else, but I feel miserable right now. My dad ate all of the same things I did, so I know it's not food poisoning.

I was craving Indian Food today, so I looked up some recipes and we cooked chickpeas and rice. I've eaten (frequently!) everything that went into that meal except for cumin seed (I usually buy it already ground) and cardamom seed (which I didn't eat, just left the whole pods in to soak then removed them.

About 45 minutes after I ate, I had doubling-over cramps and an unpleasant session sitting atop the porcelain throne. I know it was lunch because upon examination of the evidence, the chickpeas were definitely a part. How the heck can my whole lunch get through my system THAT FAST!?

All of the spices I used were either McCormick single spices or from thespicehouse.com (they have a good gluten policy).

I soaked the chickpeas all night, then cooked them today. Could they get contaminated? They were arrowhead mills...the site lists them as gluten-free... but the little gluten free triangle is not on the package.

I hate the not-knowing part of this. And now I have to toss a GIANT YUMMY pot of chana masala and huge pan of AMAZING spiced rice because I don't know what caused the problem. :angry:

I don't think any of you can solve this (ooh, maybe we have a psychic on board, that would be awesome!), but I needed to rant to the understanding masses. Now I will go make some ginger tea and cry into it. Why is there no crying emoticon? *sigh*


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eatmeat4good Enthusiast

Oh, I'm so sorry you can't eat all that good food.

I have been there and it is no fun.

Sorry, I'm not the psychic about why or how one gets glutened.

Sounds like you are super careful.

Maybe it isn't gluten but inability to digest those foods??

Just thinkin out loud.

AzizaRivers Apprentice

I don't know how spicy exactly you made it, but have you eaten anything that spicy recently? Indian food of any kind will do that to my boyfriend and he has no issues with gluten. Some people just can't handle the spice. Any chance it was that? Or maybe your healing gut at least couldn't handle it quite yet?

thleensd Enthusiast

I didn't even make it very spicy... and ALL of the spices and ingredients (except the two I listed) I eat on a regular basis, often in higher quantities.

The only thing I've found so far is that cardamom can be a diuretic... but I didn't even eat any... just let a couple pods soak and removed them (like bay leaves). For the time being, I'll eliminate cardamom and hope it wasn't a gluten thing.

I'm still going to pout, though.

Edit: And my whole house still smells SO yummy. pfffft.

cassP Contributor

im sorry that i cant relate at all with the speed of gastric emptying... i never had that with gluten.. my D with lactose intolerance was kind of sudden- but things never passed thru me that quickly (except when i had salmonella).

BUT- i CAN say- that 75% of the time i canNOT eat Chickpeas at all- they will give me painful cramping. SOMETIMES i can survive a little hummus- but regular chickpeas NEVER

Monklady123 Collaborator

im sorry that i cant relate at all with the speed of gastric emptying... i never had that with gluten.. my D with lactose intolerance was kind of sudden- but things never passed thru me that quickly (except when i had salmonella).

BUT- i CAN say- that 75% of the time i canNOT eat Chickpeas at all- they will give me painful cramping. SOMETIMES i can survive a little hummus- but regular chickpeas NEVER

Now this is interesting, because I recently bought something called "spicy chick peas" from Trader Joe's. I don't think they specifically said "gluten free" but there were no gluten ingredients, and I'm usually fine with things like that. Well, not with these! Pretty definite gluten symptoms. Or so I thought. Maybe it was just because of the chick peas? Is there something in them that "mimics" gluten? I eat hummus just fine though, so I don't know...

Well, for the OP, I'm sorry that happened. The meal sounds absolutely yummy. At least your dad can eat it.

dilettantesteph Collaborator

Since it was all things that you usually eat, which one was from a new container? CC can happen anywhere. Maybe there was something in with the cumin seeds since you usually eat those ground. Was there anything else from a new container?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



thleensd Enthusiast

BUT- i CAN say- that 75% of the time i canNOT eat Chickpeas at all- they will give me painful cramping. SOMETIMES i can survive a little hummus- but regular chickpeas NEVER

Wow, that's really interesting.... I'm not sure I've eaten whole chickpeas before (that is, in my "new life" ...since Diagnosis). I didn't even consider that since I eat hummus frequently. Now I'm trying to remember if I have. I eat beans nearly every day... and am fine with lentils. Can you eat beans? I've been ok with Hummus, but don't eat too much at once. My gut is still pretty sensitive, though (after two years! ugh!). If I eat too many nuts or sunflower seeds I get cramps.

I'm still cranky and "off" from yesterday though. Maybe I should make a t-shirt for these days ("speak to me at your own risk" or something).

black list: cardamom pods, cumin seeds, whole chickpeas.... <_<

cassP Contributor

Wow, that's really interesting.... I'm not sure I've eaten whole chickpeas before (that is, in my "new life" ...since Diagnosis). I didn't even consider that since I eat hummus frequently. Now I'm trying to remember if I have. I eat beans nearly every day... and am fine with lentils. Can you eat beans? I've been ok with Hummus, but don't eat too much at once. My gut is still pretty sensitive, though (after two years! ugh!). If I eat too many nuts or sunflower seeds I get cramps.

I'm still cranky and "off" from yesterday though. Maybe I should make a t-shirt for these days ("speak to me at your own risk" or something).

black list: cardamom pods, cumin seeds, whole chickpeas.... <_<

most beans wreck me completely... and legumes (including peanuts) wreck me too-> id say the pain is sometimes worse than gluten big time. im assuming i can do a little hummus cause the chickpeas have been pulverized- maybe when some of these foods are blended to smithereens-> maybe it renders some of the proteins easier to digest.

but u know we're all different. if beans & legumes dont bother u, than you might be completely okay with chickpeas.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,079
    • Most Online (within 30 mins)
      7,748

    Terra33
    Newest Member
    Terra33
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.