Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"but You Only Have 'borderline' Gluten Intolerance!"


Pamela B.

Recommended Posts

Pamela B. Apprentice

Well, I did it again.

I went to Chipotle and didn't want to embarrass myself by asking them to change gloves for me since it was busy, so I ordered a burrito bowl like normal. Everyone's been telling me I need to not worry about cross-contamination because my test results said I "only have a borderline gluten intolerance", even though my gut (pardon the pun, haha) feeling has always been to be just as strict as someone with celiac disease. You would have thought that I would have learned my lesson last time about being careless with my eating, but noooooooo.

Hello once again, chronic fatigue flareup times 10.

I was kind of thinking that the first time MIGHT have been just a fluke, but now I know without a shadow of a doubt that it wasn't. I always have fatigue issues, but never this severe, except for these two times where I had not been careful with my eating the day before.

I HATE THIS CRAP. Really, really hate it. I hate having to watch what I eat all the time and having to avoid everything containing a key staple of the American diet.

Hugs would be very welcome right about now. ._.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



krystynycole Contributor

If I knew where you were I would hug you! I definitely hear ya! I feel like if I had some sort of other food issue, such as peanuts, it would be better---like people would take me more serious and not be such a "burden" on them.

**HUGS**

ravenwoodglass Mentor

Well, I did it again.

Everyone's been telling me I need to not worry about cross-contamination because my test results said I "only have a borderline gluten intolerance", even though my gut (pardon the pun, haha) feeling has always been to be just as strict as someone with celiac disease.

((((((((((((((((((((((((((HUGS))))))))))))))))))))))))))))))

Being a 'borderline gluten intolerant' person is kinda like being a 'little bit pregnant'. Your gut instincts have turned out to be correct. Sorry you are feeling so badly and I hope it passes soon. Sometimes we have to let our body tell us how sensitive we are before we really know.

cahill Collaborator

(((HUGS))) to you :)

Judyin Philly Enthusiast

{{{{{{{{{{{{{{{{{ HUGS }}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

I have gone from 5 years gluten-free and now told gluten intolerant also and this fatigue is reallying getting me

I know we should just listen to our bodies.

fatigue and depression seem to be my side effects now as the dx of MC treated with asacol took care of the digestive issues

good luck

cassP Contributor

oh u r not alone!! I feel the same as u- 1/2 the time i ask them to change their gloves, and then other times im too embarrased. Cant tell if ive ever had cc cause i also get similar symptoms w/ fructans and if i overdo the peppers and onions, im in trouble. Dont beat on urself *hugs*

T.H. Community Regular

Hugs and a big chocolate chip gluten-free cookie!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Pamela B. Apprentice

If I knew where you were I would hug you! I definitely hear ya! I feel like if I had some sort of other food issue, such as peanuts, it would be better---like people would take me more serious and not be such a "burden" on them.

**HUGS**

I'm in the Kansas City area, but e-hugs are just as welcome! Thank you! *hugs back*

I have massive issues with being a burden on people. That, right there, is the biggest issue I am having with this diet. I'm high-functioning autistic and I was always made to feel like I was a burden on others while I was growing up. I tore myself to pieces trying to "learn how to be normal" to the point to where it's not that noticeable anymore, but it's really messing me up to think that I may have to deal with this all over again.

Pamela B. Apprentice

((((((((((((((((((((((((((HUGS))))))))))))))))))))))))))))))

Being a 'borderline gluten intolerant' person is kinda like being a 'little bit pregnant'. Your gut instincts have turned out to be correct. Sorry you are feeling so badly and I hope it passes soon. Sometimes we have to let our body tell us how sensitive we are before we really know.

This is a very good analogy! Thank you! *hugs*

Pamela B. Apprentice

(((HUGS))) to you :)

Thank you! *hugs back!*

Pamela B. Apprentice

{{{{{{{{{{{{{{{{{ HUGS }}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

I have gone from 5 years gluten-free and now told gluten intolerant also and this fatigue is reallying getting me

I know we should just listen to our bodies.

fatigue and depression seem to be my side effects now as the dx of MC treated with asacol took care of the digestive issues

good luck

*hugs* Glad you were at least able to get the digestive issues taken care of!

Pamela B. Apprentice

oh u r not alone!! I feel the same as u- 1/2 the time i ask them to change their gloves, and then other times im too embarrased. Cant tell if ive ever had cc cause i also get similar symptoms w/ fructans and if i overdo the peppers and onions, im in trouble. Dont beat on urself *hugs*

I'm glad I'm not alone, but I'm sorry you have to deal with this, too. It sucks. *hugs*

Pamela B. Apprentice

Hugs and a big chocolate chip gluten-free cookie!

Yum! Thank you very much! *hugs back*

kareng Grand Master

I'm in the Kansas City area, but e-hugs are just as welcome! Thank you! *hugs back*

I have massive issues with being a burden on people. That, right there, is the biggest issue I am having with this diet. I'm high-functioning autistic and I was always made to feel like I was a burden on others while I was growing up. I tore myself to pieces trying to "learn how to be normal" to the point to where it's not that noticeable anymore, but it's really messing me up to think that I may have to deal with this all over again.

Hug from Leawood!

I hate to be a burden on people but I'm finding that lots of people don't mind being a burden on me! I think in the end it evens out.

srall Contributor

Hug from Leawood!

I hate to be a burden on people but I'm finding that lots of people don't mind being a burden on me! I think in the end it evens out.

True that.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

    3. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      My journey is it gluten or fiber?

    4. - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,747
    • Most Online (within 30 mins)
      7,748

    hampiebee
    Newest Member
    hampiebee
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
    • knitty kitty
      There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  
    • xxnonamexx
      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
    • knitty kitty
      How can you be negative for HLA?   What markers did you have here? Curiouser and curiouser...  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.