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Guest imsohungry

By Guest imsohungry
in Coping with Celiac Disease

Recommended Posts

Guest imsohungry
Guest imsohungry
Posted

Ok everyone....

Please don't lecture to me. I made a mistake; I pitched a temper tantrum...and now I'm confessing out loud. :(

This weekend I had classes for school. I've had seizures all week, and my body was hurting from the autoimmune problems.

I got so fed up...I finally said to myself, "WHY DO I CARE?" I take nearly 20 pills a day, don't eat gluten, pamper my super-sensitive seizure-ridden body, deal with all of the side effects of these dam* medications, have horrible joint and muscle aches, every day new pain, and I'm still in my 20's!!!! :(

Anyway, I rebelled and ate gluten all weekend away at school. Pizza and junk food...boy was it good! :unsure: And STUPID of me! <_<

Needless to say, fatigue, diarreah, migraine, and cramping followed. What's worse is that the seizures still came and the joint pain just got worse! I solved nothing by pitching my temper tantrum...I just hurt myself.

I had to take today off work. Too tired to go in to the office...completely worn out from the repercussions of my weekend of rebellion.

Oh well, I guess I answered my question, "Why do I care." My body feels like I've been hit by an 18-wheeler right now...I guess that's why I care.

Thanks for reading. :rolleyes: -Julie

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Guest nini
Guest nini
Posted

no lectures... just cyber {{{{{{{{{{{HUGS}}}}}}}}}}}}

hope you feel better soon.

KaitiUSA Enthusiast
KaitiUSA
Posted

I'll bite my tongue this time too :D I hope you feel better and hopefully this helped you so you won't do it next time. *HUGS*

celiac3270 Collaborator
celiac3270
Posted

Yes--nothing needs to be said. Sometimes you need to go through that testing stage to remember why this takes such a high priority in your life. I haven't needed to, but everyone is different. Feel better :(

happygirl Collaborator
happygirl
Posted

I'll be thinking of you and hoping you feel better. Two weeks after my diagnosis, I thought it would be smart to see if this was really "it" and ate a brownie. Well, it is definitely gluten that hates me. I know its not necessarily the smartest thing to do, but it did teach me a valuable lesson and I have never been tempted to cheat again. Sometimes its important to learn something yourself rather than learning it from others.

Rest and feel better soon-take care.

jenvan Collaborator
jenvan
Posted

Hope you feel better soon, and that your will is renewed :)

ianm Apprentice
ianm
Posted

I would have said "I told you so" but you had the wisdom to figuire that one out for yourself. Hope you recover quickly.

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Guest imsohungry
Guest imsohungry
Posted

Thanks for the support (and no lectures) everyone. :)

I am beginning to feel better. Gosh, I need a good kick in the butt! :rolleyes:

I mean...the pizza WASN'T even that good!! :blink:

My mom always told me as a child pitching temper tantrums didn't get you anything.... Well, mom was right! :rolleyes:

Ya'll know I'm usually a positive person... thanks for your (((Hugs))) and support.

Take care of yourselves (and I'll do the same) B)

-Julie

watkinson Apprentice
watkinson
Posted

I was accidentally glutened about 3 weeks ago. I still don't feel completely better. <_< The really sad thing is that just before this happened, I was feeling the best I have felt in 20 years. Almost zero joint and muscle pain, sleeping better, ect. Then I was gluttened and now I'm still paying for it.

I've always said since I learned I was a celiac that "nothing tastes as good as not being sick"! :) Being glutened just reinforced that feeling. :)

Hope you feel better soon, I'm sorry you still have to go through so much. Do you take vitamins? A B-complex may help you feel better. Try omega 3 also.

Wendy

jenvan Collaborator
jenvan
Posted

I'm still amazed at times about being "glutened" and how powerful of a reaction it can be. I had my first 'documented' case of being glutened a few weeks ago I believe (it can be hard to tell for me). My friend had some balsamic dressing, homemade, at a restaurant, and commented on how nasty it tasted. I, being a cook-type, wanted to taste it and critique, and when I did taste it my brain went (*%#&! This isn't balsamic vinegar, its soy sauce!) I tried not to swallow, and wiped my tongue off, but had a similar experience later that day with a bar that was said to be gluten-free when I called the manufacturer. A day or so later I got the major fatique, brain fog and head ache that lasted for over a week. Arg. Watch out for those Peaceworks KIND fruit and nut bars. When I called the manufacturer they insisted they were all gluten-free--one of the bars I checked, for the heck of it, and the lable said wheat fiber. They must be smoking some crack over at Peaceworks if they think that is gluten-free :P !

drewsant Rookie
drewsant
Posted

I did kinda the same thing this weekend, only just once, not the whole weekend. I have been pretty much gluten-free for almost 4 weeks now. Diarrhea gone for the first time in literally years, for more than just a week at a time. I haven't gotten a positive diagnosis yet, (I go in for the results of the blood tests tomorrow). Anyway, I spoke to a dietitian when I started this, and she said to see how it goes, then if I see an improvement, try something with gluten in it and see what happens. I've accidentally had gluten a few times, but really didn't bother me--it was hidden in things that I didn't realize until too late. Then, Friday night, I was out running errands, and about 6 o'clock, I was starving, and 1/2 hr from home, so I decided since it was the weekend, I would test myself. I went thru the drive-thru at Burger King and got a hamburger and fries. I was fine that night, but Saturday afternoon, out of the blue, I got sick again. For about 4 hours. Sunday, I drank a glass of milk, and got sick several more hours. On and off for the last few days now I've continued to have diarrhea. I'm thinking when I have the diarrhea, I can't tolerate milk. Any other time, I have no problem with dairy.

I really was thinking I may not have this because it seems like everytime I get tested for anything but a urinary tract infection, the tests come back negative. ALWAYS. But after seeing how quickly I went from being "normal" to having diarrhea, and how long and bad it's been, I'm starting to think I do have it. Guess I won't be eating a hamburger with a bun again anytime soon! :(

celiachap Apprentice
celiachap
Posted

If anybody is going to eat gluten, or even THINK they might by accident, they should try this:

Open Original Shared Link

I have some, and am going to try it the next time I go to eat out, or anytime I think I might get glutened.

This stuff COULD start changing the future of Celiac disease for many of us. One person on this board tried it, but got sick because she has another condition that does not agree with it.

A trial sample bottle only cost 3.50.

I'm going to show this to my gastro Dr. the next time I see him, which will be in a couple of months. I definitly will have tried it by then.

I'd like to know if anybody else had any experience with it - right now, it's the only choice we have for help.

Carriefaith Enthusiast
Carriefaith
Posted

Glad to hear that you're starting to feel better :)

and BTW

I mean...the pizza WASN'T even that good!!
Thanks for saying that the pizza wasn't good :D I am craving it right now. I just polished off a whole pint of blueberries though to make me stop thinking I'm hungrey :lol:
Guest imsohungry
Guest imsohungry
Posted

Thanks for sharing your stories everyone! B)

Jen and Wendy

Yep, it stinks to get accidently glutened... especially b/c of label/manufacturer screw-ups! <_<

Drewsant,

I hope you get firm answers soon on your health...but either way, do what makes you feel healthy. Maybe you've found your answer! :)

Chap,

Thanks for the info.

Carrie,

Funny thing was...it really WASN'T that good :blink: I just knew in my mind that it would be delicious, but I was kind of disappointed. And it DEFINITELY wasn't worth the pain. Good grief! :rolleyes: Nah, I've become so used to my little gluten-free pizza until the gluten stuff didn't taste as good as I remember! :)

Take care ya'll. ;) -Julie

KaitiUSA Enthusiast
KaitiUSA
Posted
If anybody is going to eat gluten, or even THINK they might by accident, they should try this:

Open Original Shared Link

I have some, and am going to try it the next time I go to eat out, or anytime I think I might get glutened. 

This stuff COULD start changing the future of Celiac disease for many of us.  One person on this board tried it, but got sick because she has another condition that does not agree with it. 

A trial sample bottle only cost 3.50. 

I'm going to show this to my gastro Dr. the next time I see him, which will be in a couple of months.  I definitly will have tried it by then.

I'd like to know if anybody else had any experience with it - right now, it's the only choice we have for help.

<{POST_SNAPBACK}>

It may be something to try to see if it helps with symptoms after they have it but you can't see if its damaging your body you just see if it is masking the symptoms. I think people will think this is an oppurtunity to cheat when they still would do damage to themselves.

Carriefaith Enthusiast
Carriefaith
Posted
It may be something to try to see if it helps with symptoms after they have it but you can't see if its damaging your body you just see if it is masking the symptoms. I think people will think this is an oppurtunity to cheat when they still would do damage to themselves.
I agree. It would be something to take during accidents or when you are eating out and worried about cross-contamination. However, it would not prevent intestinal damage, just help relieve symptoms.
anniej55 Apprentice
anniej55
Posted

Hi,

And I thought I was the only one what wanted to rebel. I've got a major case of "why did this happen to me - screw it" .... and have been fighting off a major urge to eat what I want. It's been very difficult these past two weeks and I don't know if I'm over it just yet ... My biggest problem is that I didn't really get as sick as you all.

Sorry to hear the pizza wasn't worth it. I want a BLT on Wonder Bread .... it's the Wonder Bread that I crave.

Ann

celiachap Apprentice
celiachap
Posted
It may be something to try to see if it helps with symptoms after they have it but you can't see if its damaging your body you just see if it is masking the symptoms. I think people will think this is an oppurtunity to cheat when they still would do damage to themselves.

<{POST_SNAPBACK}>

From reading the manufacturer's information, it has the ability to actually DIGEST gluten - so hopefully there should be no damage, or symptoms to "mask", if the gluten is digested properly.

These are the same supplements that are being studied at Stanford and in Oslo.

Open Original Shared Link

We can help by giving it a chance.

Having health problems from gluten ingestion, either accidental or deliberate, will eventually be unnecessary, and we may yet see that day in the not-too-distant future. :lol:

celiachap Apprentice
celiachap
Posted
I agree. It would be something to take during accidents or when you are eating out and worried about cross-contamination. However, it would not prevent intestinal damage, just help relieve symptoms.

<{POST_SNAPBACK}>

How do you know that? Did you read these links?

Peptidase supplement product for Gluten ingestion now available. If the link does not work, it is by Kirkmanlabs.com and the product is called DPP-IV FORTE™ Capsules, under "enzymes":

Open Original Shared Link :D

Research at Stanford University regarding Peptidase dietary enzyme supplement:

Open Original Shared Link

Originally posted by Michelle:

Open Original Shared Link

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