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winenstuff

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winenstuff Newbie

Just saying hi. :)


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kareng Grand Master

Hi! Welcome to the forum.

cahill Collaborator

Hi, your going to love the people here :D

mamaw Community Regular

Hello & welcome.

Let us know if we can help you in any way....

love2travel Mentor

Welcome here! You're going to find this quite a special group, I'm sure! :P It is reassuring to know that there are so many going through the same sort of thing. Don't forget you are not alone in this! :)

psawyer Proficient

Just saying hi. :)

Welcome to our community.

PURRFECTCRAFT Newbie

Just saying hi. :)

Thanks new to Forums


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PURRFECTCRAFT Newbie

What do I do???

GFinDC Veteran

What do I do???

Hi, welcome to you also! Take a look around and ask questions if you want. There is lots of info in the pre-diagnosis forum and the coping with forums. you can use the search option to find threads on topics you want to read about.

You can also use the find new content link at the top right of the forums t see threads with new posts.

josh052980 Enthusiast

Hey all! I'm new to the forum. I haven't been diagnosed with Celiac, but I am gluten sensitive. Hoping to meet some new people. If you live in Michigan, or just wanna chat, drop me a line!

  • 4 weeks later...
Beachbaby Newbie

New to this, but I have been reading the forums for quite sometime. It's been a blessing to know that there are other people out there going through the same thing

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    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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