Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Off The Pill In Late May, Dx In June, No Period


carriecraig

Recommended Posts

carriecraig Enthusiast

I went off the pill after being on it for 10 years, because I was having spotting for 2 years straight. I was diagnosed with Celiac in mid-June. My first period after going off the pill was 1 week late, this month, it's 1 1/2 weeks late. Did anyone have a similar reaction with being diagnosed and going off the pill around the same time?

I plan on taking a HPT on Saturday if I still haven't gotten it by then...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jknnej Collaborator

I went gluten free six months ago and I've been on the pill for 11 years.

I didn't go off the pill, but after going gluten-free I missed my period 2 out of 4 months just because. I think it has something to do with going gluten free. Our bodies are in shock.

gf4life Enthusiast

I went off the pill after being on it for 5 years and it took me 6 months to start having periods again. I wasn't gluten free at the time, so I don't know how much that affected my situation. It is not uncommon to be late or even skip periods when stopping the pill.

God bless,

Mariann

Anya78 Explorer

When I went gluten-free in December my periods remained normal (I was still on the pill then -- just went off a couple weeks ago, so we'll see how that goes). I'm sure it's possible that going gluten free could mess with your cycle, just as it can take some time on the diet before Celiac symptoms disappear. It is pretty likely that your body is just readjusting to going off birth control. Many women's bodies take time to adjust to a normal cycle after stopping the pill.

Keep us posted on what happens. Though there's no way to know for sure if it's the readjustment from going off BCP or going gluten-free that is altering your cycle, I'm still curious.

Best wishes

  • 6 months later...
Sarah Beth Newbie

This isn't much different than what the others said, but I know that going off BC can mess with your hormones and throw off your cycle. Missing periods is one of the potential symptoms of celiac disease as well, and it takes 6-18 months of being gluten-free to heal up. You BC could have been what was keeping you regular.

I was diagnosed with celiac disease over a year ago (Dec 2004). When I went off the pill in October 2005, I had a 15 day cycle, then a 26 day cycle, then I missed a period completely (52 days w/out a period), and then a 25 day cycle. Before I went off the pill I had a solid 28 day cycle.

So I would just give it time. Go to a doctor if you miss two periods in a row, though.

-Sarah

tarnalberry Community Regular
I went off the pill after being on it for 10 years, because I was having spotting for 2 years straight. I was diagnosed with Celiac in mid-June. My first period after going off the pill was 1 week late, this month, it's 1 1/2 weeks late. Did anyone have a similar reaction with being diagnosed and going off the pill around the same time?

I plan on taking a HPT on Saturday if I still haven't gotten it by then...

If being celiac, and untreated, left you very underweight, that might be part of the reason. In that case, your period would be expected to return as you put on weight (particularly body fat).

mookie03 Contributor

Ironically, this post recirculated itself just as i was thinking the same thing.... I was dxed in June 2005 and went off the pill in July. Its now february and i havent gotten my period yet since june-- i am thinking it is from going off the pill but has anyone else not gotten their periods from the change in diet? (and no, i havent lost weight and yes, i am going to the doctor), just wondering if going gluten-free had such an effect on anyone else, b/c i know my doc has no knowledge of celiac


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jkmunchkin Rising Star

I've also been on the pill for 10 years or so. I haven't gone off it however, I was diagnosed in the end of June/July and I have noticed the last couple of months my period has not been as regular. I normally got it like clock work on the Tuesday after my last active pill. This past month it was a couple days late and same thing the month before. I think it has something to do with our bodies getting used to the new diet.

I'm also breaking out like I'm going through a second round of puberty!!

floridanative Community Regular

I went off the pill in August when my hubby's vasectomy doc confirmed the procedure worked. By September I thought I was losing my mind. My hormones were way out of whack and my gyno said the only thing I needed to know about going off the pill (after 18 years) was to take the last pack completely. Wrong!!! Someone on this board recommended a book that save me emotionally. It's called 'What your doctor may not tell you about Premenopause (not perimenopause) by Dr. John R. Lee. I got it used on amazon for less than $6 with shipping. It was the best $6 I've ever spent. It recommends natural therapies including Natural Progesterone cream, Evening Primrose Oil and OTC vitamins. My mood swings were so dramatic and out of control that my pcp told me St. John's Wort would be good to try too but I'd already started taking them too before I saw her. Luckily everything I was taking is gluten free (St. John's Wort and Primrose Oil even states so on the box/bottle) so I didn't have to change my therapy with the dx of Celiac last month. I would tell anyone if they can avoid HRT they should. It's cheaper to go with the natural remedies as well. Since I've been on the program recommended in the book (and approved by my pcp) I have regular cycles just like when I was on the pill. Unfortunately Dr. Lee is now deceased so his used books may call out quite a price in the future. Good luck to you!

mookie03 Contributor

It's wierd, other than minor bloating, i really have no signs of getting my period at all...in the past when i have gone off the pill i have skipped a few months but always had at least cramps each month.. but i agree, jillian, the change of diet seems to be a part of it...especially since im not the only one with this problem! floridanative- thanks for the advice, thats something i will ask my doc about if she wants to put me back on the pill, b/c i really dont want to!

  • 4 weeks later...
christa Contributor

I went off the pill two years ago and haven't had a period since. I went on progesterone and still didn't have one then I went on clomid and had one. But when I was off it I didn't have one. Who knows

sillyyak Enthusiast

I last had my period in August 2005, when I finished taking the PILL (by my own choice, not doctor ordered). Since August 2005 I have not had a single period or even a single body inkling (cramping) that I am going to get one either. I was diagnosed in November 2005. No doctor can tell me why I have not had my period either but I keep getting asked what "plan to do about kids" (by the doctors). Nice to know they have a plan also! grrr.

  • 4 years later...
Emily22 Newbie

I had a similar experience too. I have not been diagnosed with celiac disease, but I have gluten sensitivity and the past two months that I have been gluten fee I was late 2 weeks in June and it's been 2 weeks this month and I still haven't gotten my period. I went off the pill in late March of 2010, because I was having a lot of problems and I thought that the pill might be causing them, but I was wrong. I was always regular on the pill and not it seems just the opposite.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Teaganwhowantsanexpltion posted a topic in Introduce Yourself / Share Stuff
      0

      A little about me and my celiac disease

    2. - trents commented on Scott Adams's article in Winter 2026 Issue
      2

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

    3. - Paulyw commented on Scott Adams's article in Winter 2026 Issue
      2

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

    4. - xxnonamexx posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Healthy Gluten Free Foods low sugar that you found?

    5. - Jmartes71 replied to Jmartes71's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Medications

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,231
    • Most Online (within 30 mins)
      7,748

    83Erik
    Newest Member
    83Erik
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Teaganwhowantsanexpltion
      I was diagnosed at 6 after having severe stomach pain after eating white bread or any kind of gluten my sister had one done aswell I was scared for the biopsy but thats bc the gas mask thing but now that I am a 14yr old female struggling with severe chronic pain making my body ache for no reason making it hard to sleep and do the things I love like playing spot which I love to do but I can sometimes not even be able to walk bc my knees hurt so bad I can or my hips or back the only think I wish for is to be a normal kid which I can't even be and I get accused of faking pain bc there is no physical things to notice especially at school when one day it will be so sore im limping the next im walking perfectly fine idk if its all from celiac disease but im the only one in my family that has this problem 
    • xxnonamexx
      I noticed eating gluten-free or CGF foods have higher sugar and sodium some. No added sugar protein bars I found better with plant fiber. I wanted to know what are you go to besides whole fruits/veggies that you find are healthy for you where you can feel eating normal without hurting yourself or health. I was looking into subscription based like Thrift to see if there is something that is healthier CGF that can make me feel normal. Thanks
    • Jmartes71
      Thankyou because I met up with K B with well known bay area hospital once and she said she knows I don't like to take meds, I said thats incorrect, I have issues.Thats the one that said I was deemed " unruly " when she admitted I was celiac when I asked why am I going through this.
    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.