Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Got Positive Wheat Allergy Test!

GlutenFreeManna

Recommended Posts

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

It's a small victory but I am really, really happy to at least have gotten a positive wheat allergy test. Finally, I have medical docuamentation to validate the last 15 months I have eaten gluten free and explain why I feel so much better gluten free. The dr did say that the result was a "low positive". He was sort of skeptical that I could have the range of symptoms I had prior to going gluten free with just a "mild" wheat allergy. Well I don't care if he calls it mild. It at least proves I was on the right track by eliminating it. I'm still going to operate as if I have Celiac disease-- since my symptoms when I get just a little wheat are severe (not throat closing severe, but extreme D, fatigue, brain fog, memory problems, hair lose, etc). But now it is certain I can't have wheat (I was already pretty sure but this will convince skeptical family at least) and I can get a dr's note if I ever need it for anything.

Unfortuantely, all my other suspected allergies came back negative. The dr did admit that false negatives were possible. He said the false negative rate for the allergy blood tests is 3%. Does anyone know if that is true for allergy tests or if it is higher like the celiac panel test? I have not gotten a copy yet so I don't know the name of the test they did but I will be getting one to check out the numbers for sure (I might just frame the positive wheat result, LOL).

Okay now here is the somewhat bizarre part: Since my other allergies came back negative the dr offered to do "further testing" if I wanted to still find out if I was allergic. What was the further testing? An eating challenge. He wants me to make an appointment to come into the lab and eat the food I suspect I'm allergic to until I have a reaction or until it's clear I don't have a serious reaction....Umm...I can do that on my own without having to pay anyone. I have an epipen and lots of benedryl. He did say I could also just test by eating something I think I'm allergic to at home and to be sure I had my epipen and someone to take me to the ER. I might test some of the foods I have not eaten for years (Shellfish, pork, mushrooms) but I'm not going to test milk anytime soon I don't think. My husband had ice cream last night and then kissed me. I was congested, coughing and blowing my nose for the rest of the night form the moment he kissed me (I had been breathing fine before that).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Looking for answers Contributor
Looking for answers
Posted

The blood tests won't be accurate if you've given up the foods, as your antibodies will subside.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted
  • Author

The blood tests won't be accurate if you've given up the foods, as your antibodies will subside.

I know that is the case for the Celiac panel test but is that true for allergy testing as well? I even asked my Allergist this question on the phone since I have not eaten shellfish for over a decade. He was pretty adamant that a food allergy would show up even if I had not eaten those foods for a very long time.

sb2178 Enthusiast
sb2178
Posted

IgE-based allergies will show up even if you haven't eaten it for a long time (or ever, if you're talking about babies/kids). IgG/IgA-based reactions will not show up if you aren't exposed.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted
  • Author

IgE-based allergies will show up even if you haven't eaten it for a long time (or ever, if you're talking about babies/kids). IgG/IgA-based reactions will not show up if you aren't exposed.

Thank you for the clarification. I am pretty sure my allergy tests were for IgE reactions.

salexander421 Enthusiast
salexander421
Posted

Sorry to sound dumb here but, they can test for IgE mediated allergies through blood test? I was thinking that IgG were the only ones that were tested through blood test. I'm new to the idea of actual food allergies and trying to figure it all out!

GlutenFreeManna Rising Star
GlutenFreeManna
Posted
  • Author

Sorry to sound dumb here but, they can test for IgE mediated allergies through blood test? I was thinking that IgG were the only ones that were tested through blood test. I'm new to the idea of actual food allergies and trying to figure it all out!

Yes. I did the skin prick tests too, however my dr said the blood tests are more accurate and he always does both types. All my skin tests were "negative" --no little circles popped up as big enough to be conclusive-- but they itched like crazy for days afterward. I'm sort of new to the food allergies thing too so I don't know much about the tests. I asked if there were any other allergy tests they could do (since milk makes my throat close up) and the dr only offered an eating challenge.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,074
    • Most Online (within 30 mins)
      7,748
    Amy1620
    Newest Member
    Amy1620
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.